I am on the way to the Dr. yet again...this time with my son who has been having tingling in his spine for a long time, toe walking and concentration difficulties....I am also going to see him about me...and this time I want us all tested for lyme. I grew up in infested tick areas..to pass the time we used to pick the ticks off the dogs and squish the big fat grey ones!!!As a kid I always had ticks at the back of my neck. I have never strung all my symptoms together until my son has been having the same joint tingling as me. I have a scar on my leg from a nasty bite 12 years ago. I was ill I've had bells palsy, joint pain and for the last three years skin lesions that won't heal. How do they accurately test for Lyme and how will I get my Dr. to listen to me. Posted by lou (Member # 81) on :
You are canadian, right, so maybe you might want to hit the canadian lyme website. They might be able to steer you toward help. The average doc does not know much about tickborne diseases and the testing isn't very reliable.
Also, click on the support groups line in left side green menu box, see if there is any group near you.
And finally, troll thru the newby links at top of medical forum page on this website. Good stuff there. Pick out the most relevant to your current situation, save the rest til later.
Posted by bettyg (Member # 6147) on :
Scratch,
Welcome to this 24/7 educational & support group board, www.lymenet.org ! Here's TREEPATROL's and TINCUP'S combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.
print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
Some guidelines from Betty/others on using this message board:
* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.
* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.
* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.
* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.
* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
* Also, we have ``lyme'' disease; not lymes... We are ``lymies''.
Bettyg, Iowa
Posted by Lymetoo (Member # 743) on :
You get a dr to listen to you by choosing your dr carefully! You MIGHT get lucky....but your best bet is to find a KNOWN LLMD, a dr who regularly treats Lyme patients.
Your symptoms and experience SCREAM Lyme, so if the dr you find isn't smart enough to figure that out....find a new doctor!!
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