LymeNet Flash: Hi everybody - I am conducting a Lyme study and looking for Participants!

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Posted by Princeli (Member # 8106) on :

Hey --
My name is Lisa. As part of my Master's thesis, I am embarking on an Exploration of the Experience, Prevention and Treatment of chronic Lyme disease in endemic areas. (I, personally, have had chronic Lyme for 15 years.) I am currently looking for Lyme patients, Health Care Practitioners and Lawn and Tree Specialists who would like to take part in my study sometime between August 22 and December 9th. Interviews will range from 30 - 60 minutes, and I will come and meet you in a location that is convenient to you. If you do not live within close proximity to me, I am making an online questionnaire which will be available shortly.

If you, or anyone you know would be interested in being a part of this study, please email me at: [email protected].
Many, many thanks!
* Lisa [Big Grin]

Posted by NP40 (Member # 6711) on :

Lisa,

May want to post this in medical as many more people scan that board than in here.

Posted by heiwalove (Member # 6467) on :

you go to goddard in vermont? i know a few lovely folks around that area; beautiful and lyme endemic, indeed.

i'd definitely be open to participating in your study. [Smile]

in peace,
heather.

Posted by Princeli (Member # 8106) on :

Thanks NP40 - I will do as you suggest, I appreciate your help!

Heather, PM me your email and I'll send you the info!

Just for everyone's info, I have had Lyme for 15 years as well. My mother, brother, son and husband also have chronic Lyme. We have all been through the ringer with this disease, but I am doing alright with it now. I was treated by Dr. R in Stamford, CT, and have since, opted for methods that boost, rather than kill my immune system. I am doing a study primarily on "illness" simply using the "lens" of Lyme disease. I am simply a fellow Lymey, and Masters Candidate in the Health Arts and Sciences program. I am not trying to prove a point, or take sides. I am well aware of the corruption in the medical community, in general, as I am the Director of the Hepatitis Research Foundation (www.heprf.org) as well. We currently have an immunotherapy that will CURE hep c, but the govt won't fund it because there is no money in a cure.

I have an Informed consent agreement which makes clear the fact your names will always be confidential, and not shared with anyone. Ultimately, I will share my thesis, which will be in the form of a website with all participants, etc., when I am done. I want to help, not take advantage. I promise.

Peace -

Lisa

Posted by hurtingramma (Member # 7770) on :

Sure, I would be glad to be part of this study.
I like the on-line questionaire part of it, as I'm not that great at expressing myself.

Posted by daniella (Member # 6753) on :

I'd like to help if I can...

daniella [kiss]

Posted by Princeli (Member # 8106) on :

Thanks sooo much you guys - I'm overwhelmed with the positive response I'm getting! I've PM'd all who have expressed an interest --

Again, thank you!

* Lisa [group hug]