I have tried a couple of times to join eurolyme and for some reason I don't seem to be able to register.
How is lyme treated in other parts of the world? Are there therapies that are being used that we are not doing here in North America?
Diana
Posted by vitch (Member # 8094) on :
I believe America is the leader in the field.
Posted by Linda LD (Member # 6663) on :
they look to the U.S. for guidance is what I understand...
L
Posted by AP (Member # 8430) on :
I was able to get these cool little pills in Singapore that stimulated my nerves... I was actually able to feeld parts of my fingers and a bit more of my face while I was on them, but the RX ran out, and they aren't available in the US. Can;t remember the name, but I think of them as my happy pills... It was nice to feel my extremities while it lasted.
I found the doctors were a little more "gung-ho" about trying treatments that were off the beaten path. They didn't have to deal with medical malpractice so they were a bit more willing than US doctors to treat this confusing disease.
[ 20. December 2005, 11:20 AM: Message edited by: AP ]
Posted by Southampton Lyre (Member # 8310) on :
quote:Originally posted by diana:
How is lyme treated in other parts of the world? Diana
I can tell you how Lyme is viewed here in Britain by giving you the following real-life quotes from British doctors:
GP: "Most doctors have never heard of Lyme. The only reason I've heard of it is because I trained in xxxxxxx (known hyper-endemic area). But I've never seen a case of Lyme."
-----------
Paediatric Registrar in Known Endemic Area: "It can't be Lyme, because children never get Lyme."
Parent: "But there are thousands of children in the US with Lyme!"
Paed. Registrar: "Oh, Americans! What do they know?"
-----------------------
Consultant at nationally famous hospital:
"So what's Lyme disease?"
--------------------------------------
UK Lyme expert and head of our reference lab:
"The only sign that enables a reliable clinical diagnosis in everyday practice is a typical erythema migrans skin lesion."
"The IDSA guidelines addressed the issue of chronic Lyme disease or post-Lyme disease syndrome...The consensus of the IDSA expert-panel members was that there is insufficient evidence to regard 'chronic Lyme disease' as a separate diagnostic entity."
----------------------------
In other words,when it comes to Lyme, you can get more sense out of a coconut than a doctor here.
Southampton Lyre
Posted by the netherlands (Member # 8394) on :
In Holland it is also terrible, they give you two weeks antibiotics. Afterthat, if you are still ill, they give you the advice to go to a shrink because all his in your head
Posted by Gabrielle (Member # 5329) on :
I think we in Germany are in the best position in Europe when it comes to be treated for Lyme. But still the situation is very bad. There is only a handful of doctors who believe in chronic Lyme and who are willing to give you a longterm antibiotic treatment.
Treatment of coinfections like Bart or Babs practically doesn't exist, because "this isn't a problem here".
Comment of a doctor at the Institute for Tropical Diseases in my hometown: "Don't be ridiculous! If you would have Babesia you would be lying in the intensive care section of the hospital instead of sitting here and looking healthy. And if you would have it, we would have found it in your blood - it's very easy to find".
I wish I'd live in the US.
Gabrielle
Posted by elle (Member # 7721) on :
My llmd has a brother that is in Germany and contracted lyme. His doctor used a combination of rife, abx & herbs to treat him and he is symptom free and doing extremely well.
Her brother was visiting recently in the states and she arrainged a call between the doctor & herself with the brother as an interpreter. Alas, the meds that the doctor used are not available in the US.
Posted by Gabrielle (Member # 5329) on :
Elle,
Could you find out the name and adress of this doctor for me and send me a PM?