(And with a deep breath, and fingers crossed, I put forth into our little world what I hope that I help happen:)
I have decided that since I have heard from so many people in New Mexico that feel out in the dark over this whole living in NM with Lyme thing, that I believe I am going to start a support group, (since the other one met it's demise a year or more ago.)
Although it will have some of the standard elements of support groups - mostly, support to each other, buddies and call lists, time to share and support, I also foresee it as a place to share good food recipes (to help keep us off sugar and on the right foods to protect our immune systems,) and as a way to have fun with other people who totally get your limitations and potential mooodiness and/or need to beg out at the last minute.
Since I live in a huge old rental house, with a great back yard, on a main drag in Santa Fe, I think I'll start by inviting people here. And since I am most often in my jamies, everyone should be able to come dressed however they want, (including masks to protect you from other's germs, if need be...) I am hoping we can have a really rollicking good time, lots of laughter, and fun, maybe even dancing on hot summer nights - I know we can all handle it for at least 2 seconds before we collapse! We could also have a sort of running book review section, (maybe every other time we do a book review or review of new Lyme info/studies/whatever, and ) a public speaker alternate times, and then maybe also some penny-anti poker at the end... (I joked online the other day that we should all bring the meds we can no longer take and anti with them...) Anyway - let me know if any of you are game for such an idea. I am thinking that since it's hard for folks to drive up to Santa Fe sometimes that we could do a once a month thing to start and see where it goes from there. I already know of at least 2 people who would be great to speak at it. I'd like to see it ideally be every 2 weeks, but, that may be too much for all of us.
What do you think? Let me know, preferably at my email which is [email protected]. If thre is enough interest, then I'll post back and we can organize. If not, then whomever wants to come over or go to tea with me, I'd love the company. Non-lymies invited if they can put up with our Lyme talk anf kvetching... (We have to have some place to let loose, but let's have fun, too!)
-su
Posted by hopeful123 (Member # 3244) on :
i wish i were there to go to your support group lymiebabe
good luck with it Posted by Yemaya (Member # 8842) on :
You go girl! get those Lymies going. Lets get proactive.
Jo, veronica doesn't have the group anymore unfortunately.
So somebodies gonna have to teach me to play poker.
Love & Light, Yemaya
Posted by farah (Member # 8496) on :
I'll be there. I think there are a lot of people in Santa Fe with Lyme who have been misdiagnosed with Fibromyalgia and chronic fatigue.
Farah
Posted by lymiebabe (Member # 8890) on :
Thanks guys!
It's been a weird past few days, and my computer is experiencing technical trouble. So - I haven't gotten much done to move this forward, but thanks for all your support,
I will be working on it in this next week. If anyone can tell me other good ways to advertise this (I'll get someone to put up flyers asround town, get it listed in
the New Mexican events page and SF Reporter, and let the doctors and medical folks I know, know about it as well.
I believe Dr. K and another Doc who deal with CFIDS and chemical sensitivities are going to be doing a lecture series and also a conference in SF in the next month - that may be another way to spread the word.
I'll also catch craigslist and post something on the website my friend has made for me. If any one has more suggestions to spread the word, I'd love to hear from you.
If anyone could post flyers in key places down in ABQ, let me know and I'll get the materials to you.
And once again - thanks to everyone, and hang in there!
Namaste, all you wonderful, strong people who are challenged by this teacher we call Lyme.
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