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Posted by char (Member # 8315) on :
 
My daughter has research paper. Thinking of polling teens with lyme and teens without lyme to compare their knowledge of the disease. Or something like that still in the works.

She wants to use it as springboard to educate non-lymes and I am hoping somehow to encourage hope in the kids with lyme.

Do you have a teen with lyme that would participate? If so, could you pm me with thier name and how to contact them. Perhaps thru you if your child is as forgetful as mine!

Thanks,

Char
 
Posted by maeflower21 (Member # 4379) on :
 
I am technically not a teen anymore (I turned 20 a month ago) but I've had Lyme for all of my teen years. I would be happy to help if you need it, just pm me!

~mae
 
Posted by Michelle M (Member # 7200) on :
 
Hi Char.

My daughter would be happy to help. She's 14.

PM me any details, or post 'em.

She did a six month course for CDC positive lyme, way bad knee pain, resolved and has never revisited us. (FIVE MONTHS ABX-FREE AND COUNTING!!!) Yeah!!! [woohoo]

Hopeful,

Michelle
 
Posted by tanzi2u (Member # 9237) on :
 
Char-

PM sent.

My daughter is more than willing to help out.

When she took the ACT's this Spring she was very upset that the science passage had to do with an 1989 study concerning Lyme...using old, discounted data points.

Was she ever steamed that a large number of teens exposure to Lyme would be based on erroneous information! She wrote a nice rant in her test book about it, and when she has enough energy will be writing the ACT company itself.
 
Posted by DR. Wiseass (Member # 6777) on :
 
Char -

My daughter is not quite a teen - she's 12.

If that's close enough - let me know.

I'd be interested to know how much my daughter knows about Lyme too -- as in 'I wonder how much she actually listens to me'???!!!

Hugs & [kiss]
 
Posted by concerned mother (Member # 8128) on :
 
My son and I would be happy to help, he is 16 and really is having a battle with this lyme. Let us know how we can help.

Amy
 
Posted by PinchotGail (Member # 5066) on :
 
Char,
I don't know if you knew this but, there is a teen yahoo group for teens with lyme:


WWW.LYMEPA.ORG

Gail

 -
 
Posted by NP40 (Member # 6711) on :
 
quote:
Originally posted by concerned mother:
My son and I would be happy to help, he is 16 and really is having a battle with this lyme. Let us know how we can help.

Amy

Amy, hang in there. My son is 16 also and has been abx free for several months after a year of treatment for lyme/babs. He's back to being a normal, healthy teenager again. You can PM me if you'd like.

As far as the poll, I'll get him to participate if I can keep him home long enough to do so. [lol]
Just send me a PM.
 
Posted by char (Member # 8315) on :
 
You guys are awesome! Will get a hold of you when we are organized, God willing.

Char
 
Posted by kelmo (Member # 8797) on :
 
My daughter is 18 and has Bartonella. She just graduated last night, which was a miracle, a test of endurance, and a blessing.
 
Posted by NP40 (Member # 6711) on :
 
quote:
Originally posted by kelmo:
My daughter is 18 and has Bartonella. She just graduated last night, which was a miracle, a test of endurance, and a blessing.

Wow, it's amazing how strong children are, isn't it ? My boy took abx that would make a horse herx and busted right through it. An adult over 30 probably would have had a coronary.

Children's immune systems are so strong they recover much more quickly. Bartonella ? Nasty disease and then she graduates with it ? They truly are amazing, aren't they ?
 
Posted by kelmo (Member # 8797) on :
 
HOWEVER, she took a Vicodin in order to walk down the aisle. She adds Rifampin to her Zithromax. The doctor said to wait until after graduation so that she can just exist. I guess it really knocks you down, so we are preparing for the worst.

Hopefully, this will be the trick to knock this nasty bug down.

One thing in common with teenagers and Lyme...do they have friends? All my daughter's "friends" abandoned her.
 


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