I just had to educate one of my friends about lyme and serious bladder inflamation.
Not sure you want to call these people friends. he inquired about me being on happy pills. Um, no. He feels being happy is important. I told him no damn happy pills are going to help a bacterial infection.
He also felt i used to drink to be happy....dont think so, when i did go out for a few drinks it was to socialize and have fun...i was already happy.
I think they feel im depressed.....hello im in pain.
So, i told 'friend' alcohol is poison...duh!!!
I wish i could find more positive people in my life, i think that is why i did so well in the hospital. The dr and nurses were all positive.
I always feel like i have to defend myself every day...it gets very tiring.
anyone know where i could find some positive people.
Posted by TheCrimeOfLyme (Member # 4019) on :
Youre not going to find many positive ones on here. HAHA jk.
Sc*ew your friend. I had family and friends alike do this crap to me when I was at my sickest.
Honestly, the only ones I found that DO understand are *SOME* on here. One I became dear friends with and we talk alot on the phone. That helps.
Well, I hope I helped ya. Lets go out for some beer .. I have happy pills we can lace it with. Im just kidding!
Posted by tickitout (Member # 6982) on :
Hi Cant...happy pills well I'll take a few, got any?
I found out along time ago what a friendship is all about and let me tell you they are far and few between.
When you are so sick you really don't feel like being bothered with anyone so maybe it's a stand off too, I don't know.
But the people I was very close to for a long time got more distant then disappeared. But you know I didn't care. I can honestly say I have one (1) best friend who I'd give my life for who stuck by me through everything.
Maybe because that person had been through hell too with another disease and understood what it is like. I would rather not have anyone in my life than phoney people who don't care to understand what you are going through.
So, Can't , the heck with them. You don't need people like that right now atleast. A drink, right, just what your body needs right now! They just don't get it. Unless they walk in your shoes they will never understand.
Take care of yourself for you are #1.
Wishing you the best of luck with everything you are going through.
Posted by Nebula2005 (Member # 8244) on :
Happy pills? I wish such a thing existed.
Alcohol? Right, when one glass of wine knocks me on my butt and keeps me awake at night, makes my nerves wind up, makes me feel poisoned!
I so wish alcohol helped! It's cheap, legal and easily available. And it's fun. Oh, yeah, it's also the cause of much misery, death and disease.
I don't miss the drinking much at all--I do miss the easy socializing that went with it.
I sent a good friend an e-mail for her birthday yesterday. I didn't go into details, just apologized for not getting a card written (I don't get out much. I'm uncomfortable driving and I don't feel good most of the time) and told her I was still sick.
She answered that she was sorry that my health isn't better, but then, how would we know if it isn't just due to the aging process.
AAARRRGGGHH. I'm not old, I'm sick!!! Well, I'm old, too, but I don't feel old! I feel like crap! By the time I'm well, I'll find out how old I really am. How much of this is mine for the rest of my life, and how much has been fixed.
Another example--my daughter's friend told me she wanted my life!!! I work at home, and I watch TV and read a lot. I like TV, I like to read but I can't DO anything else! I kindly reminded her that she wouldn't want the Lyme Disease. Oh, guess not, she said.
She's 25 years old. I can forgive her. She has a great job, gets her nails done every week, and spends the rest of her time looking for fun.
I need a haircut, I need to puck my eyebrows(ouch), I need to lose 15 pounds, I need to do so many things--some days I congratulate myself for just getting the dishwasher emptied. Yay, me.
I feel like I have to defend myself every day, too. I understand!!! Posted by Aniek (Member # 5374) on :
Before I was diagnosed with Lyme, I was diagnosed with fibromyalgia. "Happy pills" are often used to treat fibromyalgia pain.
It's not that it is focused on depression, but that an imballance in neurotransmitters can cause pain. Certain anti-depressants can balance the neurotransmitters and reduce pain. If your transmitters are off.
For me, the antidepressants were awful. Each one gave me multiple side effects and none reduced the pain. I was 28 and having hot flashes. I was exhausted all the time. Definitely not happy.
As for alcohol, it's really fun to be totally sober and watch your friends get wasted. Posted by AZURE WISH (Member # 804) on :
You know how when your body is really toxic you feel much worse...
same with toxic people. Need to get rid of them too.
I had a couple close friends that didn't stick around. Good riddance.
Life also seems to need probotics. When our good bacteria dwindles the bad bacteria builds up and makes us terribly ill. (I have had c.diff - trust me - not fun. We need good bacteria and good people in our lives.
I am lucky my family has stuck by me. And I hope you find some people in your life besides us who are sympathic and don't judge what you are going through.
I am sorry if this isnt real coherent. I am exhausted. Thoughts are blury.
Best wishes
Posted by lpkayak (Member # 5230) on :
i can relate...i've been there for 2-3 weeks...now that i am home i will focus on keeping my environment positive...but as far as finding others who really understand lyme and all it entails...i only find them here...or at support groups i gusess...yeah...thats ans idea...gotta get back to those...
Posted by char (Member # 8315) on :
Unfortunately, we have to ignore these commets from the uninformed. Hurts when it is someone we have been close to...
Don't give up the fight. We have to stand our ground and keep praying for them.
Amazing, my relatives, who are scientifically inclined are still not getting it. Fortunately they are nice about it.
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