The local news is coming to my house on July 6th to interview my son and I and talk about our experience with lyme disease. I hope that this is a good opportunity to get the correct message out to Michigan. They believe lyme does not happen here and we hope to get them to understand. One local channel did a short segment on it and said 30 days on antibotic and then you are fine! My son is 16 and we hope his story helps others.
Amy
Posted by Ann-OH (Member # 2020) on :
That's terrific, Amy!
I hope you will let us know how it goes and if they put it on their website.
You and your son are the kind of people we need to step forward for all of us.
Are you Upper or Lower MI?
Thanks, Ann - OH
Posted by concerned mother (Member # 8128) on :
We live in the lower penn. of Michigan in a suburb of Detroit.
Posted by Lymetoo (Member # 743) on :
Go for it!! Kick butt!! well, really....Just get the word out. Let us know how it went!
Posted by bettyg (Member # 6147) on :
Amy, how exciting for you 2! Hope your son really tells it like it is without sugar coating anything.
Did he miss alot of school? Friends dropping him?
Yes, please let us know how it went, and show the link for our reading the newspaper and sending the writer our feedback comments.
Posted by Carol in PA (Member # 5338) on :
Amy, I think one thing that will make an impression is if you say that none of your doctors figured it out.
It was another Lymie who recognized the pattern of symptoms. (Shhhh...please don't say who.)
This is really a sad state of affairs, when the doctors can't recognise the symptoms of a growing epidemic.
For an interview, it does help if you think about what you want to say ahead of time.
If the reporter asks an open ended question, you can swerve into a point you'd like to make.
If you don't like the question, you can say, "What you really should be asking about is...."
Make a copy of Tincup's "Fifty Questions" to give the reporter.
You can write out a list of websites with good info, such as the ILADS site, and the LymeInfo.net site. Also the Canadian Lyme Foundation. That way the human interest story can be "up to date" with computer links. And that way, the reporter doesn't go looking for links, ending up with info that may be worthless.
Good luck, and I hope it goes well. Carol
Posted by shazdancer (Member # 1436) on :
Agreed, give the reporter a list of websites for further info.
Hi Amy, sent you a Private Message.
Posted by bettyg (Member # 6147) on :
Since your son is under 18, would be great somehow if you could get Dr. Jones' name mentioned for his being one of a few lyme literate MDs who treats kids, and they are trying to take away his medical license!
It's an opportunity even if YOUR son is not treated by him. What would your son do if HIS LLMD wasn't there because the health dept. had taken his license and could NO LONGER TREAT LYME KIDS? Posted by Lisianthus (Member # 6631) on :
I hope it goes well Amy.
I have 3 sons with lyme also. There is alot of people in Michigan with lyme they just don't know it! I have 11 in my family alone, and we are all in lower Michigan where it just doesn't exist!
Good Luck, Lisi
Posted by lymelighter2 (Member # 6953) on :
Go Amy! I agree with some posters, try to get your son's story told---and underscore the difficulties obtaining diagnosis, treatment, and then see if you can fit in Dr. Jones' being treated so badly in the courts on account of the medical boards.
This is your chance to really shine....if you can, throw in a bit about the ALERT ACT legislation currently in the House and Senate HR3427 and S.1479....
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