She has had to temporarily take a break at a Duck Motel in Seattle..She is to have exploratory surgery to see if there is a kidney stone..
The good news is she saw a few things before the stop that she says were beautiful..
Let's keep her in our prayers guys and gals!!
Thanks..Lymemomtooo
Posted by seibertneurolyme (Member # 6416) on :
Thanks for the update.
Kidney stones are not always easily seen. Hubby has one that at one time we thought it was 9mm and then another imaging technique said it was 4mm and then the doc couldn't even see it.
A year later we now know that the herbal things I did apparently caused it to break in two and he has 2 stones that are each 4mm. I stopped the herbs when the doc said he should be able to pass the 4mm stone but probably need to resume them as obviously the stones are still there.
Generally kidney stones only hurt when they are moving unless they are blocking the flow.
The newest info says that kidney stones are usually caused by nanobacteria. Hubby tested positive for that. Tried the recommended treatment (doxycycline and a proprietary amino acid supplement) but at the time he was having G.I. problems and did not continue with the treatment.
Lithotripsy is the recommended treatment for kidney stones. Hubby had that done in 1997 and his health has never been the same since. It has been one thing after another. So, even though surgery does not sound fun it may actually be the better option, in my opinion.
Trails -- so sorry your trip was cut short. Hoping for a speedy recovery.
Bea Seibert
Posted by StinkBug (Member # 5191) on :
Here's feeling a little blue for you, Trails. But thanks for the update Lymemomtoo, I came to the board tonight to see if people knew our pal needed some cheering on. Trails has been in touch with me and if she's in for extended stay, I'll toodle on up (with some driving help from my spousal-unit-on-vacation - yay!) and drive her nuts with silly hiking stories.
Trails, you got my number so let's figure out a way to keep each other smilin' eh? Hugs all round, thanks, everyone, for being so loving towards each other. As time goes on and many continue to struggle, well, it means a lot the care that people pass around. Just don't pass me no cooties *tee hee* StinkBug (aka Kathryn in Colton)
I'm really glad you wrote, Trails
Posted by Carol B (Member # 9110) on :
May this be a definitive diagnosis with a resolution! Don't know a damm thing about kidney stones-just sending best wishes and know that you will be in my thoughts.
Love, Carol
Posted by Lymetoo (Member # 743) on :
We'll keep vigil over here!!
Posted by 5dana8 (Member # 7935) on :
Thinkin and praying for ya.
Hang in there trails Posted by trueblue (Member # 7348) on :
I'm thinking of you and sending my very best healing thoughts.
hang in there, kiddo
May this all be resolved and you;re on the mend soon.
true Posted by elley0531 (Member # 9434) on :
Hope all goes well Trails and that you get on the mend soon
so sorry your trip had to be cut short.
Posted by lymemomtooo (Member # 5396) on :
Stinkbug, give her a hug from me..And tell her to behave and get well..She can get in that canoe when she is feeling better..lymemomtooo
Posted by Melanie Reber (Member # 3707) on :
Adding many good thoughts and prayers from here too.
She is the "least pukey" post op ever. They didnt find any kidney stone. They coudnt get the camera up very far---too much narrowing.
They put in a stent to drain the kidney and she says she ALREADY feels better, even though it could get uncomfortable soon.
The good news is she gets to continue on her planned trip!
(She's not giving up that trip, by golly.)
Hope we hear more good news from our Trailsey soon.
Michelle
Posted by Lymetoo (Member # 743) on :
Cool!!! So glad to hear!!
Hi Trails!! Posted by bettyg (Member # 6147) on :
Michelle, thanks for the updates on Trails.
Trails, glad you feel some relieve down there. And happier to read you continue ON YOUR 4 WK. VACATION! YIPPEE. Hope they treat you well, and suck up to them while you can where they take care of your every whim! well, most whims anyway! Bettyg
Posted by trails (Member # 1620) on :
HI EVERYONE!!
let me tell ya that I wept as I read all your kind words. I am so friggin sensitive these days and i also am so appreciative of you time, energy and well wishes. It was so nice to read in the hospital after surgery!!!
No stone as my bud Michelley said. Looks like my original theory is holding out----I wish i didnt know my damn body so well sometimes.
Most likely endo, adhesions, fibrosis or the last surgery 6/5/06 caused the ureter to become too narrow to let much of anything pass thru. My kidney got pretty backed up but it wasnt like a stone--it was "chronic" which hurts a LOT less but is much more harmful as you dont know about it--all your blood work and chem panels are fine coz the other kidney works fine and you dont have much pain--just minor pain/fullness sensation.
Anyhow--STENTS STINK!!! It hurts darn it. Feels like just what it is--a plastic tube inserted into my ureter that goes between my kidney and urethra. fun fun. It hurts more than the swollen kidney, but now i know I aint hurting the kidney no more. So that is good.
Vancouver is a BEAUTIFUL city!!! OMG. you can touch the mmountains from the city, the bay and the islands and the NOT being USA---We need to find jobs here. It was sunny and cool yesterday and today is cloudy which is a welcome relief from the CA weather that poor melanie has been stuck in!! Mel---I am soooooo sorry to hear what you have been going thru. I wish i was home only to offer you AC in the hotter than hell valley.
We will continue further north and I will kayak but much less than originally expected. oh well. I am sort of amazed at how well both my partner and i are taking all this. Everyone has been wide eyed when we tell them, yeah, we are on vacation now--just a short stent surgery stint in seattle but nothing that wont ruin the trip. Having dealt with lyme for 16 years now has really taight us some lessons. We lymies are stronger and smarter than we think.
Thanks again for all your emails and posts and thoughts and prayers. They mean so much to me!!
My best to everyone, Trails Posted by trueblue (Member # 7348) on :
I'm glad to hear you're back on your way, trails, and that your kidney is safe but wish the pain wasn't so bad.
Take pictures of Vancouver, it sounds awesome. Adn you will get some kayaking in. I'm glad you are finally getting to go even if the trip was more challenging than expected. Ugh! I feel for you kiddo.
Have as much fun as possible and "you go girl!"
Hang in there and thank you for the nice message on my ketek post. I'll keep you posted (pardon the pun) on my progress so we can see what this stuff does.
Happy kayaking! Write more soon.
Hugs and stuff, True
Posted by bettyg (Member # 6147) on :
Trails, so HAPPY TO SEE YOUR NAME HERE! Glad you are recouping as well as can be.
I don't know my geology anymore ... is VanCouver near LAKE LOUISE up in Canada? If yes, please take the time to see it! My folks were on a bus trip to go there. USA had flooding going on all over, so bus driver took every county/gravel road he could to get out of Idaho I believe.
Bridges were washed out, etc. They'd turn around over & over. They got to Lake Louise at 4 am & had to LEAVE 7 AM; didn't get to enjoy any of the sights there due to their "scheduled" tour. Bettyg
Posted by lymemomtooo (Member # 5396) on :
I received an email today and they seem to be back on track..
Posted by Andie333 (Member # 7370) on :
Trails,
Enjoy yourselves and enjoy that gorgeous place (not to mention the cool weather, which we don't have here in PA).
Thanks for the update!
Andie
Posted by Lymetoo (Member # 743) on :
I liked Vancouver too....but especially Victoria, BC. I hope you get over that way as well. It's incredible!!!
Take the ferry from Horseshoe Bay over to Nanaimo...then drive down to Victoria. Awesome!!!
HOpe you continue to feel better!!!
Posted by Yemaya (Member # 8842) on :
Trails, You are my Hero . I am glad you are doing better. Have a fun and safe journey. Blessings!
Love & Light, Yemaya Posted by Melanie Reber (Member # 3707) on :
Good morning Dearie,
We are all pulling for you...so please be careful and take extra special precautions when you are out there with those paddles, OK?
So soory that the stint is painful...hopefully, it is a temporary measure?
My love to you and yours, Melanie
Posted by hopeful123 (Member # 3244) on :
hey trails,
glad you're doing okay, now!!!
Posted by trails (Member # 1620) on :
hi again everyone!!!!
I had such a freakin blast in canada I almost didnt come back! The sunshine coast is georgeous. Two ferry rides away up to our little cabin and then we spent several days on an island and only got one day of paddling in---and a few short stints of canoeing. I didnt see any deer or ticks, but amazing waters and sea life and mountians. (betty---i took 4 separate ferries and one was in horseshoe bay and it went north to Gibsons...awesome fjords there. nanaimo was also pretty cool--took a ferry from there to twassen)
biggest problemo was no shower for 6 days with only pit toilets too. not a pretty picture, especially with a stent. The stent hurts mostly in the car and in the canoe. So we tried to tay away from those things. and with the way we smelled we tayed away from almost everything and everyone --
I had hardly any lyme/co symptoms while i was on 5 days of cipro ---for the stent UTI prophylaxis. Now I have been off it for a few days and LOTS of lyme/bart stuff is creeping back in.
I am in Seattle this week and will have the stent removed on friday---then we need to do LOTS of following up and will see if I need further surgery or what can be done. Itis only a temp solution.... I dont know what it takes to get this thing out but it aint gonna be pretty.
Looks like lots of folks here are in much need of TLC. My heart goes out to those of you who are struggling right now, I really can relate to your pain and sorrows. I wish there was some way I could take away your pain.
I hope to write more later, you all take good care now, trails
Posted by lymemomtooo (Member # 5396) on :
glad you made it back and can now get things fixed..lmt
Posted by Andie333 (Member # 7370) on :
trails!
Glad the trip was a wonderful one and that you were well and fit enough to enjoy it!
Also glad you got back safely and wish you much success wtih all the follow-up work.
Keep us posted!
Andie
Posted by Aniek (Member # 5374) on :
Trails,
Sounds wonderfully relaxing. Are you sure it was the Cipro that made you feel better?
I went to Costa Rica in early summer and felt fantastic the entire time. I only took a pain killer once, before I went kayaking to ensure my arms didn't give up.
I think it's because I was away from stress and all the toxins and pollutions of home. Nature is good
-Aniek
Posted by bettyg (Member # 6147) on :
Edited: Trails, enjoyed the comments on the 4 ferries! my being in Norway riding the ferries too; pleasant memories from 22 yrs. ago!
Trails, you give new meaning of being "downwind" from the offensive order! LOL..just kidding!
So glad you have a GOOD time in spite of the way it started! My best to you on the rest of your vacation & recuperation! Bettyg
[ 08. August 2006, 12:56 PM: Message edited by: bettyg ]
Posted by lymemomtooo (Member # 5396) on :
Trails...Going to try a brief trip away myself..Hope you continue to improve and that the stint thing works out for you..
Posted by trails (Member # 1620) on :
oh woopSSSS! It was tutu that talked about the horseshoe bay ferry--not betty---sorry for the mix up there folks.
LMT---hope you can really get away from it all on your trip!!!
everyone else--thanks again for your kind words and encouragement! trails
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. I am glad you are doing better. Have a fun and safe journey. Blessings!![[Frown]](frown.gif)
I dont know what it takes to get this thing out but it aint gonna be pretty.