I'm new to this site..but i'm a teen and have had Lyme Disease for 9 years. However, i just started being treated for Lyme 2 years ago because i was misdiagnosed. I went through doctors telling me i wanted attention, threatening me, telling me its all in my head and everything before i found my Lyme Disease specialist who is based out of Boston. I had such muscle diease in my legs that I couldn't walk sometimes, went to the ER many times, and even missed 2 years of school. Although I'm on my way to recovering, I still feel like i'm stuck and doomed. I still want to die rather then go through this pain. Is anyone else in this position? It would really help if i had someone else who understands what I'm going through..
Posted by tdtid (Member # 10276) on :
Jenna,
I can CERTANLY relate as I know most everyone here can so you have definitely come to the right place.
This has to be so hard to handle. You sound like a very strong and level headed young lady and with all you have been through proves it.
Please stick around. I'm new also and have been through much of what you are speaking of and I see we have both been through some of the Boston doctors.
I thought for sure they were going to find what was making me so sick. But I learned the hard way that you need a lyme specialist.
Please stick around and let us know how you are doing with your treatment program?
Cathy
Posted by bettyg (Member # 6147) on :
TO ALL READING THIS,
I copied Jenna's above post and Cathy's reply to MEDICAL where she had an almost same post there so they would be in ONE thread so all responses will go there.
If you have comments, please post in MEDICAL. *******************************************
I've sent a pm to Jenna asking her to delete this thread with instructions on how to do it as well as my 19 pages newbie links/advise. Bettyg
[ 19. October 2006, 04:49 PM: Message edited by: bettyg ]
Posted by char (Member # 8315) on :
Dear Jenna,
I am soo sorry. Did you say your age.
My daughter got diagnosed 2yrs ago after having it for 4 yrs. She's 15.
She has been through so much pain and emotional toll is high, especially trying to deal with it as a teenager when you need to be out there having fun.
Thankfully, the dr has just figured out 2 problems POTS and pre-diabetes that are causing a lot of problems for her. So her brain fog and dizziness, fatigue are getting better. They say almost everything she has could be coming from these. Maybe the lyme is better than we thought.
All 3 of us here have lyme and we are finally having a big turn around after 2yrs. Sometimes it looks and feels the worst and the change for the better is around the corner. We have to keep hope admidst the pain and suckiness.
I don't like my kids to say this generally, but lyme sucks. You have a right to be mad. Just take care of yourself.
It does get better!
Do you get netflicks?
Char
Posted by concerned mother (Member # 8128) on :
It breaks my heart hearing another teen suffering. My son is 17 and has been ill with lyme for over a year. The road is a bumpy one but there are people who can help. My son talks with teens on Wednesday's on a teen chat. There is a message here about how to join. It may help to talk with others.
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