LymeNet Flash: Newbie

This is topic Newbie in forum General Support at LymeNet Flash.

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Posted by NotEZ2C (Member # 10679) on :

Just found this site - can't believe so many are telling my story.
Catching on to all abbreviations - but what does " herx " mean??
Unfortunately my symtoms include uveitis, which is inflamation of the eyes. So several times I have lost my eye sight - NOT FUN!!!
Can anyone recommend Drs. in the Philadelphia area???

Posted by AZURE WISH (Member # 804) on :

Hi welcome to lymenet [hi]

Herx is an abrevated for for herxhiemer reaction (I assure I butched the spelling)

Anyway a herx is when the bacteria dies off and your body gets toxic (You have more junk in your system then your system is capable of clearing out)

This causes your current symptoms to get worse, and/or new ones to pop up, and/or old ones can return.

You might want to post on seeking a dr. make sure your pm is enabled cuz we do not post lyme literate drs (llmd) names or info on the board

If you need a specialist for your eyes you could ask about that too.

I know some people on the board have had some real eye problems too.

Best wishes

Posted by stymielymie (Member # 10044) on :

a herx:

http://www.angelfire.com/biz/romarkaraoke/Herx.html

must email me at[url] [email protected] [/url]
we do not give names of doctors lighter on this site.

docdave

Posted by bettyg (Member # 6147) on :

Welcome! I'll private message, PM, you with my 20 pages of newbie links/advise which includes a link with the abbreviations, herx, and MUCH more including the LONG LIST OF LYME SYMPTOMS, and info galore on filing for SSDI, disability insurance benefits! [Big Grin]

Posted by NotEZ2C (Member # 10679) on :

thanks for your replies.

I am seeing an Opthamologist who is a uveitis specialist and an immunologist - but he, as most opthamologist would do - is treating the symptoms and not the cause.

I have been all over - NY - Phila, Wills Eye Hospital and Johns Hopkins. I have just recently seen a Dr who is affiliated with the Integrated Medicine Division of Thomas Jefferson University Hospital in Phila. -after reviewing all my symptoms, this Dr brought up the idea of all this stemming back to Lyme. Also told me of all the political implications of treating Lyme.

I am taking this opportunity to read, post and learn as much as I can because (not to be dramatic, but....) I don't know when or if I will lost my sight again.

As posted in Med Ques - I am having a spinal on Friday to check for a myriad of possibilities.
Not looking forward to this.

I am trying to find a Dr who check me for Lyme and treat me if necessary.

Posted by bettyg (Member # 6147) on :

hi there! do a SEARCH found at top under NEW POST area

uveitis
medical
body text
ANY DATE...make sure you edited MY PROFILE to allow any date for search vs. default

leave membership blank and hit enter search key

Look for posts by ICESKATER; she has lost a majority of her eyesight since last year; been all over to eye specialists! good luck! [group hug]

Posted by NotEZ2C (Member # 10679) on :

Thank you all for the info.
I know I have a lot of homework to do - and you are all pointing me in the right directions.
I appreciate your help.