This is topic Lyme strokes need help asap in forum General Support at LymeNet Flash.


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Posted by Aries327 (Member # 3757) on :
 
Hello everyone sorry I have not been on in some time but have just been barly getting by lately and now i,m here for Help my older sister has come down with lyme disease and back to back stokes and the drs here in sussex county are clueless .
I would have brought her to the tick born disease center but I heard what happened to them and i,m not going to be able to get her to go to south jersey just yet I need to find the very best Drs in north Jersey that can be of help including the stokes they are afraid she is going to have another one at any time so I have to work fast I know of drs F and Drs G but I do not have there contact info Numbers addresses ect please e mail me at [email protected] or call me at home at 973-362-1464 I need to work very fAST . ALSO ANY ONE WHO HAS KNOWEDGE ON LYME AND STROKES . thanks Tim Rowett
 
Posted by Geneal (Member # 10375) on :
 
Hi. I think the link between Lyme and stroke is related to meningitis caused by Lyme.

Has she been tested for meningitis?

Hope this helps. Will pray for her and you.

Geneal
 
Posted by Lymetoo (Member # 743) on :
 
Did they put her on a blood thinner? That would be the safest thing to do. I hope you can find a good LLMD right away!
 
Posted by charlie (Member # 25) on :
 
Tim...sent you and somebody who has had an apparently lyme related stroke an email

Charlie
 
Posted by cbb (Member # 788) on :
 
In 1992, I asked a LLMD about small strokes caused by Lyme.
He said that small strokes are caused by inflammation in the blood vessels of the brain.

As the inflammation causes the blood vessel to swell, the blood supply is reduced or blocked causing the stroke.

Not sure about more severe strokes.

After 15 years, I don't know if this info would still be considered accurate or not, but it makes sense to me.

So sorry to hear about your sister.
You said she has "come down with Lyme disease".

How severe were her strokes?
Has a dr diagnosed her with Lyme?
Has she been tested for Lyme and/or co-infections?
Is she on any antibiotics?
 
Posted by bettyg (Member # 6147) on :
 
Originally posted by Aries327:

Hello everyone sorry I have not been on in some time but have just been barly getting by lately

now i,m here for Help my older sister has come down with lyme disease and back to back stokes and the drs here in sussex county are clueless .


I would have brought her to the tick born disease center but I heard what happened to them.


i,m not going to be able to get her to go to south jersey just yet


I need to find the very best Drs in north Jersey that can be of help including the strokes:

they are afraid she is going to have another one at any time so I have to work fast


I know of drs F and Drs G but I do not have there contact info Numbers addresses ect

please e mail me at [email protected] or call me at home at 973-362-1464

I need to work very fAST .
**************************


ALSO ANY ONE WHO HAS KNOWEDGE ON LYME AND STROKES .
--------------------------------------------------------------------------------

forgot to say, sending you PM w/LLMD info...


your sister is very FORTUNATE to have such a loving brother caring about her and getting that much needed help
*****************

posted 15-01-2007 03:36 AM
--------------------------------------------------------------------------------
i found this in treepatrol's newbie links compiled by ART DOUGHERTY; he quit doing this, but here's what was there.

perahps the DAY SHIFT can come up with more info for you! best wishes to you/your beloved sister !


Lyme Disease and Stroke and Transient Ischemic Attacks (TIAs)

Links to MEDLINE abstracts on LD and Stroke and Transient Ischemic Attacks (TIAs)
MEDLINE - Stroke AND Lyme disease - 21 on 29 Jan 01

--------------------------------------------------------------------------------
MEDLINE - Cerebral Infarction AND Lyme disease - 9 on 29 Jan 01
MEDLINE - cerebral neoplasms AND Lyme disease - 2 on 29 Jan 01
MEDLINE - Transient Ischemia AND Lyme disease - 1 on 29 Jan 01


Other abstracts - conferences, JSTD, etc. on LD and Stroke and Transient Ischemic Attacks (TIAs)
LD vs. Depression vs. Somatization: Cognitive Tests & Functional Imaging, April 19-20, 1996
Conference abstract: Psychiatric Aspects of LD & the Use of SPECT Imaging, April 28-30, 1997


Articles on Lyme Disease and Stroke and Transient Ischemic Attacks (TIAs)
Medscape Clinical Full-Text: LD & Stroke & Transient Ischemic Attacks (TIAs) - 3 on 13 Feb 00
Medscape News: LD & Stroke & Transient Ischemic Attacks (TIAs) - 8 on 13 Feb 00


above was posted in seeking drs/copied here! [Wink]
 
Posted by Aniek (Member # 5374) on :
 
Aries,

Perhaps you should post another topic with the heading that you need to find a good LLMD in NJ area? Make sure the right people read that request.
 
Posted by CaliforniaLyme (Member # 7136) on :
 
Aries/Tim,
Good to see you-
hope you got help!!!
Sincerely,
Sarah
 
Posted by mag (Member # 8920) on :
 
hi aries,

- there is not a treasure of information on this

I will look for some links too!

as I recall - the neuro toxins can cause vasculitis (swelling in the vessels in the brain) - especially in the hyper intensity areas -- thereby increasing the chance of a stroke

So sorry for your sister - will pray for you and her

mags
 
Posted by Aries327 (Member # 3757) on :
 
Hello the two strokes came 24 hrs apart they were thinking ishams strokes but the testing has not shown this to be the case the only hints we have are 1 red blotches all over her skin very dull not like any lyme rash i have ever seen but its in my mind 2 she has a bad sinusitis infection and a mild ear infection .

but befor the strokes she was exibiting all the common lyme simptoms such as iritable loss of memory fatuge fear hot and cold flashes to the extreem ps in 60s allready past met

but she does live next to a small river in a swampy area in northern NJ so her potential for lyme is very High again any help thank you Aries
 
Posted by pq (Member # 6886) on :
 
hbot may be approved for stroke by the fda, and most,if not all types of insurance.

hbot is supposed to provide excellent results for many, if not all kinds of strokes, i should think ischemic strokes in particular; arterial hemorrhage might be a different matter, but i don't really know.

good luck,

pq
 


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