And NO Im not saying that's what Laura has right now - just concerned about the possibility.
Thanks for your prayers.
Hugs & Kisses,
Posted by CaliforniaLyme (Member # 7136) on :
I will-!! Poor kid.
Posted by jazzygal (Member # 9145) on :
quick update:
I am still waiting for the ID clinic to call me back to see if they work Laura into the schedule today. No one called--just left a message twice.
Laura does have an appt with an LLMD on Tues.
In the mean time I want her seen to make sure we are not overlooking something.
2 weeks agao when she was in the hospital they put her on IV rocephin and ampicillin for 72 hours. She did improve while on abx.
After they stopped, she has not bounced back to "normal"...she came home with a 99.4 to a 99.6 low grade temp...but they said it was nothing to be concerned about.
She has maintained the low grade temp all along...and yesterday it spiked to 103.
She is having a headache...and extremely fatigued...almost lethargic. I am having to wake her every few hours to get her to drink fluids and check her mental clarity.
They said she had viral meningitis at the hospital. They put her on abx preventatively just in case it came back viral. Within 12 hours of being on abx she came out of the coma...but it was still another 12 hours before she was really cohearant and knew where she was.
I'll be checking in later to see if anyone else has any more ideas of questions I should be asking the docs.
Thanks, Dawn
Posted by hshbmom (Member # 9478) on :
Hi Dawn,
I'm praying for wisdom, knowledge, and favor for you and your daughter.
Nancy
Posted by seibertneurolyme (Member # 6416) on :
Maybe you could get a scrip for Rifampin? It is oral but does cross the blood brain barrier.
Surprised they didn't at least prescribe an antiviral such as Ribavirin.
Don't have any experience with actual meningitis, but I am pretty sure that seizures are one symptom you should watch out for. Would definitely go to the ER if she has a fever and starts having seizures.
A bath is one way to lower a fever.
Extreme sensitivity to either noise or light would be other signs of a possible brain infection -- especially if this is a new symptom.
Do you have a PCP who could call the LLMD and would be openminded enough to start meds now instead of waiting until the appointment?
Good luck and I hope she gets to feeling better ASAP.
Bea Seibert
Posted by Beverly (Member # 1271) on :
I will keep your daughter in my thoughts an prayers.