I am fairly new here and as I have posted before, I have not been "officially" diagnosed w/ Lyme, only Fibromyalgia.
I only found out about the symptoms of Lyme being often misdiagnosed as Fibromyalgia, and other illnesses, after doing some research, because my son was bitten about a month ago.
I feel sure that I have Lyme, especially after remembering a "bulls-eye" shaped rash when I was 17...
I went to my PCP with my suspicions and he was wonderful about it and has even ordered a test from Central Florida Research for me, which we are at this time waiting on.
But, I know that his knowledge is limited and have asked for, and received (thank you all) some names of LLMD's...which I would really like to make an appt.
But....the closest one is 2 hours away from me and there is NO WAY that I could make the trip alone.
And, I don't believe my Medicaid would cover such a visit, even with a referral...
I think my family all think that I am just a hypochondriac and don't understand the severity of the problems that I am having...
My b/f is the only one working, though I get Temporary Assistance, but we are still broke, so paying for a LLMD out-of-pocket is definitely not an option...
I am at my wits end... I know that it is Lyme..I just know it...
But I get little support, except from b/f...and there is little he can do, but be there for me..
He is no position to help me pay for a LLMD visit.
All his money goes into our trailer payments and other bills...
My mom is a Pastor and her answer for everything is to "pray about it", which is good advice, but doesn't help with getting treatment..
And my sister, though she has helped us tremendously financially in the past, is too busy with her own life to take time out to drive me 2 hours away...
I am so tired of living like this... I have always been such a happy, go lucky gal, but this disease is slowly sucking my life away...
There is so much information on here, but it is hard for me to understand it all, because of the problems with my cognitive functions..
Does anyone have a suggestion?? Do just wait for the test from CFR and get what treatment I can??
Or does anyone know a program that could help me financially??
Thank you all for your support and help so far and sorry for venting this all on you...
Ellen
Posted by LisaS (Member # 10581) on :
I just got off the phone with my ombudman from my insurance. I have state insurance too. She said they have to pay for a specialist if you need one. But I'm not sure that they will agree on which Dr is the best specialist.
But I just want to wish you luck. So many of us are in the same predicament. Hope you find a good Dr and start feeling better soon!
Posted by bettyg (Member # 6147) on :
from all i've ever read on here, no title 19 is paid for ever NOR medicare!!
is it bowen labs or that new one they opened to do the lab work.
igenex, calif. if on MEDICARE; WILL BE FREE!
ask your sister; tell her you need her as a sister as well support during your crisis.
newbie...i sent you my 50+ newbie links; go towards the middle where i have shown the letters from:
lymedad to family/friends
and DAR'S TOY STORY.....email them to her to read,.
good luck; you've got to find the money to be treated. best wishes. Posted by sixgoofykids (Member # 11141) on :
I would get tested by IGeneX as BettyG suggested.
I would see if any of the "specialists" are covered by Medicare.
Does your boyfriend have health insurance with his job? If so, and if the LLMD's aren't covered, why don't you get married so you are covered under his insurance? It sounds like he's a good man for you, you want him and need him, and I'm sure it will make your mom happy, too.
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