LymeNet Flash: I'm Back !

This is topic I'm Back ! in forum General Support at LymeNet Flash.

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Posted by beach4so (Member # 3832) on :

It has been awhile, since I have been here. For

some reason something has been tugging at me to

come see what was going on here at Lymenet.

For all the newcomers and to let everyone know

what we have been up to.

I have been registered here since 2003 when my

oldest child (Dominic)was dx with chronic lyme.

He had a tick bite while we were on vacation

back in 1999, dx lyme, CDC positive.

Antibiotics for 6 weeks life went on.

It wasn't until 3 years later that our world

flipped upside down. After a bad virus Dominic

never got better. Within months he as on his

death bed. We were lucky to have a pediatrician

who cared and worked with us in finding what was

really wrong. I found Lymenet and we started

testing for Lyme, again. We went see Dr. C and

Dom started treatment immediately. We started

see results within 2 months of treatment but

still had many years of treatment down the road.

While reading all the info on Lyme I realized I

had a lot of the symptoms and having lived in MO

knew I had been exposed to ticks. I was tested

in the summer of 2004 and it came back

positive. I started treatment. In Oct of 2004

I had my other two children tested and they were

positive also. We have all been on treatment at

one time or another since then.

Dominic was the worse case and was on a variety

of antibiotics, heprin, allergy treatment and

finally amino acids. He was actually free of all

meds/amino's for one year until an accident sent

him into having night terrors again and other

symptoms immerged. We started antibiotics for 2

months and then hit the amino's again. He is

now doing wonderful with the amino's and for the

first time in his 10 years has been playing

soccer like he always dreamed. He is finally

symptom free.

Hannah was on low does antibiotic treatment on

and off for 2 1/2 years and allergy treatment for

the last year. She has responded extremely well

to the allergy treatment. She is allergic to

many, many foods and this was a huge issue we

didn't know about. Her biggest issue was her

memory and stomach/digestion trouble but once on

abx it has been getting better. She has just

started doing amino acids with us, (low dose).

Samuel only had a rash that would appear every

now and then. He also had bladder pain. After

having two surgeries to see what was causing the

pain and not finding anything I checked with Dr.

C who said it could be caused by the lyme. He

was started on low dose flagyl and hasn't had

trouble since. It has been about 6 months and

all is going well with him. He also has just

started doing the amino acids with us and is on

low doses too.

I have been hanging in there. I have issues

with my thyroid and for the first time in 10

years feel great and I have to say it has to be

because of the amino acids. It is the only

thing I have done different. I did have been on

antibiotics on and off for 2 years but the

amino's have really helped our family.

It is great to be here and I hope to be around

more often, if it wasn't for Lymenet no telling

where my family would be. Hopefully ya'll will

be seeing me around a lot more often.

I will be lurking in the background trying to catch up on what everyone is up too...

Hugs
Starr

Not sure why my post is coming out this way.. guess it shows i am still lopsided.. lol

[ 08. June 2007, 11:05 AM: Message edited by: beach4so ]

Posted by just don (Member # 1129) on :

Welcome back beach,
Who could EVER forget YOU???

Now I was trying to remember your moms name she used here,,,wasnt she a regular poster too,,how is she doing??

thanks for the updates!!

can you explain what you mean by amino's,,,first I heard that one,something new????,over the counter or RX.???

Lymetoo is on vacation out of town,I am SURE she would be delighted to hear from you as well!! still--just don--

Posted by bettyg (Member # 6147) on :

beach, i remember you well and your kids plus state! thanks for updates on all.

i have a suggestion for you; you didn't know why it was coming out this way. i went to your post and used "" quote to view it the way YOU typed it,

looks like you hit the enter bar after ENDING EACH LINE not sentence, that's why it's chopped up the way it is! [Big Grin]

Posted by CaliforniaLyme (Member # 7136) on :

W E L C O M E B A C K ! ! ! !!*)!*)*!)!!
!*)!*)!*)!*)!*)!*)!*)!*)!*)!

Posted by meg (Member # 22) on :

We've missed you! Welcome back [Big Grin]

Posted by beach4so (Member # 3832) on :

Thanks so much for the Welcome back party. That is about right that I come back when Lymetoo is gone.

JustDon I think you are thinking of Amanda and for the life of me I can't remember her mom. Her mom was a very frequent poster and Amanda started posting same time as me. We both had the same situation too.

Amino's are Amino Acids. This is something from the Dr. to start. You might be more familiar with Gamma-Aminobutyric Acid or (Gaba) for short.

We also do L-Tyrosine,5-HTP, MSM, Natural Selenium and L- Csteine and lots of Vitamin C, B and D.

All of this was carefully monitored by the Dr. for the first year. Phone consults every 4 weeks. Now we speak every 3 months and see him 2 times a year.

I am sure the antibotics knocked down the lyme and now these are help building our immune system back.

I plan on being around for a while now. I got a lot of catching up to do with everyone.

Hugs
Starr

Posted by Andie333 (Member # 7370) on :

Hi, Starr!

I don't think I recognize your name, but when I started coming to Lymenet, I was so sick and my memory was so shot. That was in June 2005.

Since then (I'd tested CDC positive), I've thankfully seen steady improvement in my health, and I'm now back to work fulltime and not able to spend nearly as much time here as I did in the past.

I'll always be grateful to this site and the people here, and it's so good to hear stories like yours. I'm so glad your son is playing sports again and you and your other children have gotten so much better.

That's great news. I found your post interesting, because my LLMD just mentioned something to me about amino acids, and I have been curious ever since. Do you have a sense of what these did for you and for your kids?

Anyway, welcome back! it's good to talk with you; thanks again for the update!

Andie

Posted by pab (Member # 904) on :

Starr,

I've missed you! Thanks for the update on your family. (I don't post much anymore but I usually read the posts every couple of weeks.)

Do you see the same doctor for the amino acids protocol as you did for Lyme treatment?

Peggy

Posted by Geneal (Member # 10375) on :

Dear Starr,

I am also a Mom with Lyme who just had my two young ones tested via Igenex to discover they both

Show positive Lyme bands. My husband also has Lyme.

Thank you for the update on your family as it gives me so much hope for my babies as they are getting ready to start treatment.

Thank you for posting.

Hugs,

Geneal