I am just now able to sit up (10 days after procedure). Worst headache ever. I want to kick all of my Docs square in the nuts (only, some are female).
They said this website was full of crap and not to listen to your horror stories.
I certainly trust this site more now than ANY Doctor!!
Thanks for trying to stop me - those who did, Kevin
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Kevin Hamblin: I certainly trust this site more now than ANY Doctor!!
Me too!! Thanks for the vote of confidence!
Did you post this in medical too?
Posted by dmc (Member # 5102) on :
oh poor you. Lesson lrarned, i too will NEVER allow a LP. Maybe if I'm in a coma...naw, not even then.
Posted by randibear (Member # 11290) on :
sorry sweetie, but what did you have? i honestly can;t remember. lyme brain ya know.
whatever, please listen to this board. they know more than any llmd, well, except a few.
no matter what i ask, somebody has already had it and been there before...
Posted by merrygirl (Member # 12041) on :
I am sorry and they do SUCK BAD. Never again!!
Posted by Lymetoo (Member # 743) on :
Randi...lumbar puncture...spinal tap. UGH!!!
Posted by pab (Member # 904) on :
quote:Originally posted by Kevin Hamblin: I am just now able to sit up (10 days after procedure). Worst headache ever. I want to kick all of my Docs square in the nuts (only, some are female).
They said this website was full of crap and not to listen to your horror stories.
I certainly trust this site more now than ANY Doctor!!
Thanks for trying to stop me - those who did, Kevin
Was the opening pressure high?
My kids have pseudo-tumor cerebri and LPs are the only thing that helps them.
Posted by bettyg (Member # 6147) on :
kevin,
sorry to read this! yes, this board is lyme savvy; so listen to them and take the printed copies of EVIDENCE BASED stuff mds want in order to believe you are creditble! Posted by elle108 (Member # 11730) on :
They said this website was full of crap and not to listen to your horror stories.
Well, that statement right there ought to let you know where those docs were coming from. Sorry you had such a horrendous experience with the LP.
Elle
Posted by kelmo (Member # 8797) on :
My daughter had a spinal tap before she was diagnosed with bart/babs. It was, of course, normal.
The next day her head hurt so bad I had to taker her back to the ER. They gave her demoral. She said that was the closest to heaven she has ever been.
Posted by jazzygal (Member # 9145) on :
YEs....they are aweful...but as one member mentiond...WHAT WAS YOUR OPENING PRESSURE??
Pseudotumor cerebri (PTC) is very COMMON in Lyme due to the use of tetracyclines ....
In the case of PTC a spinal tap/lumbar puncture could save your life and your vision.
I do not recommend them routinely--but if PTC is a factor in your Lyme then you will need to have more or risk having permanent blindness.
Do a google search on Lyme and Pseudotumor cerebri and see what you find--very eye opening!
Dawn
Posted by Ellie K (Member # 12056) on :
Hey, I was going to do this... I think I should seriously re-consider. Thanks so much for sharing.
Posted by hiker53 (Member # 6046) on :
Never again will I have a lumbar puncture. I got the worst headache and have to have the blood patch to get rid of it. The doc doing th blood patch said if docs who did lumbar punctures would use the proper needle there would be no headaches, but they use a larger needle to get the fluid out faster. I don't understand why they just don't do a blood patch and insert blood to cover the hole the made routinely. Hiker
Posted by bsigel (Member # 11810) on :
My daughter had 2 spinal taps within 7 months. Both taps showed high opening pressure, but the idiots at the hospitals did nothing. First pressure was 250, second was 230. We were told 230 may be her normal pressure, "Take her home and get her back to a normal life." It's a mystery, we may never figure it out. Samantha stopped vomiting after 2nd tap and when we got home from hospital I researched what would cause increased cranial pressure and saw that lyme can cause that. Found the symptom checklist and got her to an LLMD as quick as possible. If she starts vomiting again we will have to take her for another one. Have been using diamox for pressure, just have to keep an eye on her blood pressure and she can not take anything like doxycycline.
Posted by merrygirl (Member # 12041) on :
When they do the LP is it routine to check the pressure? I was too sick to remember. They didnt say anything about it...Melissa
Posted by salydega (Member # 7309) on :
I with you Merrygirl. I have had many lp's and nobody has ever told me what my pressure was.
Maybe it depends on why you have the lp to begin with.
Sorry Kevin you had a bad experience. I have had it both ways. Only of a couple times with the bad pain and needing the blood patch though.
The last few that I have had have actually made me feel better.. hmmm???
Maybe I need to research the pseudo-tumor cerebri myself. Is this common with LYME??
Posted by Kevin Hamblin (Member # 12019) on :
Yah,
I don't know what the starting pressure was. I was hoping it started a little high, so my head would feel better (because I had headaches before the LP).
The good news is, my Commander and ID want to send me to an LLMD and have the military pay the bill!!! I might actually get some progress!!!
Kevin
Posted by Soleilpie (Member # 8481) on :
Kevin,
It's amazing that the AF would even consider an LLMD! But it sounds like your Commander is open minded and not full of him/herself! That's awesome news!
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