I'm praying that the lady who was also seen by Dr. S this morning will see this. You talked to my brother for awhile.
He says that we have a lot of the same symptoms and I would really like to talk. He said that you know of several people cured by Dr. S.
I gave my email address to your Mom. I hope that you see this. If you do, please get in touch.
Posted by stymielymie (Member # 10044) on :
sorry to disappoint you but went to dr.s for 2 years and never saw anybody "cured'
better yes but most everyone relapsed.
he is also very conservative in treat ment and never tested me for coinfections.
docdave
Posted by motownlyme (Member # 11485) on :
Who do you recommend? Please PM me. I'm not getting better and as I posted in medical earlier I was just told to take large does of supplements. I'm afraid to start. I'm afraid not to because I really want to get better.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by stymielymie: sorry to disappoint you but went to dr.s for 2 years and never saw anybody "cured'
There are at least 2 Dr S's in PA.
Posted by stymielymie (Member # 10044) on :
sorry you are correct i saw dr. s. in chadds ford the other i think is in kennett square. have heard better things from him, but not heard enoug to evaluate.
many docs are getting more and more conservative in treatment since the witch trials started.
it may be very hard to find many docs at this point that will prescribe long term abx.
i have been lucky in florida, my doc trained at jefferson in philly.
he is however an id that specializes in exotic ,tropical and travel disease.
i m able to work out a treatment plan with him and he supplies the drugs. we work together and i volunteered as his gunea pig.
When you say long term antibiotics, do you mean just the IV or the oral stuff too?
Posted by tailz (Member # 10014) on :
I personally did not care for Dr. S in Chadds Ford. I was so toxic while infusing there that I begged, pleaded, and screamed to be able to infuse at home since it was a DANGEROUS 2.5 hour drive there, and a good 3.5 hour drive home, yet he said Medicare wouldn't approve it.
I called Medicare, and they said he would need to call and give reasons for my home infusions. He wouldn't do this for me.
I think the number of times I mistakenly ran red lights due to Lyme fog was plenty reason. My personality changes were another.
And like one of the other posters said, everybody who sees him relapses because he doesn't go after coinfections unless they miraculously turn positive.
And when I pointed this out to him, he pat himself on the back for at least helping part of the infection. When you're as sick as I was, sorry, that just isn't honorable to me.
But I'm tough on doctors after my hellish experience.
Posted by stymielymie (Member # 10044) on :
long term abx= oral and iv i had iv 3 timesand orals for 5 years out of 8 years
doctors will be reluctant to give abx of any kind due to the rediculous idsa guidelines that are law as far as docs are cocerned,even llmds.
![[bonk]](graemlins/bonk.gif)
ment and never tested me for coinfections.