LymeNet Flash: Getting Sicker Again

This is topic Getting Sicker Again in forum General Support at LymeNet Flash.

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Posted by believe3 (Member # 6216) on :

Well so much for getting better and better. I

was so close to thinking I would beat this

thing. Then all of a sudden my meds stopped

working. I am not sure if I am becomming

resistent to the zithromax or what. But I have

been in a downward spiral for a while. I have

been denying it because that is what you do, or

at least what I do. Then I was stupid and went

out drinking with my sister on her birthday.

Over a week ago. Im still paying the price.

How dumb can I be. I just wanted to be normal

you know? So I am so terribly affraid to give

up the Zithromax even though it has basically

stopped working. I am adding Malarone and I am

terrified of herxing now that I am working full

time again. What if I can't do it? I am

doubting everything. I am tired all the time

again. Im craby and in pain and im tired. It

just sux. Sorry im venting, I just want to be

better, but I guess I may never be.

I was better for about 8 months. Almost totally

normal. Then I feel like im back to square one.

It is very disheartening. I will get through

this..somehow.

Thanks for letting me scream. That is what im

doing. SCREAMING!!!

[cussing]

Posted by Geneal (Member # 10375) on :

It may be time to switch meds.

I plateaued on bactrim ds (1600mg) after about 5 months.

Just didn't do anything for me at the end...except give me big yeast issues.

I take malarone with biaxin. Zithromax caused ear ringing for me.

Call your LLMD and let them know you are doing worse.

Have you been ill or under any unusual stress lately?

That could be contributing.

Sending positive thoughts and prayers for you to turn the tide and start

Climbing that rope to feeling better.

BTW, have you been checked or treated for any other co-infections?

Did you just start malarone? It could be the babs holding you back.

Hugs,

Geneal

Posted by believe3 (Member # 6216) on :

Thanks Geneal. I haven't been tested for Co-

infections. My LLMD doesn't think the test are

worth it since they are not accurate. He just

goes off of symptems. Yes I have been under a

lot of stress. Marriage is on the rocks. But I

am trying to be strong. I haven't started the

Malarone yet. I think I will start it

tomorrow. He wants me to keep taking the

Zithromax with the Malorone and see what

happens. I just talked to him last week.

Im just terrifed of a huge herx right

now, since I am already feeling so crappy.

Thanks again. Time to go home.. Yippie!

Posted by KS (Member # 12549) on :

Oh, I can only imagine how disappointing this can be for you. Sounds to me like it might be time to hit those suckers with another round of meds. Hey, you've had a spell of feeling good so just have to get over this hump to get back there again.

Hey, since you were doing so well, maybe the herx won't be so bad. Best of luck!! One day at a time...

Posted by Andie333 (Member # 7370) on :

Merrie,

I avoided any mention of co-infections for about 6 months...but then I started treatment for them. I'm so glad I did!

You're under a lot of stress, but it really could be co-infections surfacing, too. I had to take different things for them. In addition, wondering if you've used a cyst-buster--something else I avoided, just because they sounded so awful. Again, I'm glad I got past that.

I really do hope you find something that can reverse these symptoms and get you on the path to feeling good again.

Andie

Posted by sixgoofykids (Member # 11141) on :

The Malarone needs the Zith, but Biaxin can be taken with Malarone instead.

If you feel you are backsliding, maybe you're having candida issues. The symptoms can be similar to Lyme symptoms.

So you are treating co-infections now ... have you been tested for heavy metals?

There are a lot of different things that can contribute into our feeling bad with Lyme Disease. I hope you start feeling better, soon.

Posted by stymielymie (Member # 10044) on :

my cocktail that has helped, use at your
discretion.

zitro,doxy,vfend,mepron,acyclovir,plaquenil,

most important is min of10 weeks of vfend
with blood test.
acyclovir is for viral infections.

you can use cyst busters, but i have given
up on them .
my goal is to keep the cyst forms cysts and kill
the infections in the blood stream.

i am very bad with my diet, but still have gotten better with a bad diet.

just added mnepron last week and my joint pain went away after 1 dose.it is still sorebut more tolerable.

got ulcer using motrin, now using ultram for pain

discuss all treatmwentwith docs since everybody has different symptoms and coinfection.

i was tested neg for all coinfections , but my doc ,along with help from me decided to try mepron for babs, and it seems to help.

so i am semi in remission ,even with all the cold rain in the mountains and the cold weather.

you can pm me if you need more info.

docdave [group hug]

Posted by believe3 (Member # 6216) on :

Thanks for your replys. I am getting the Malarone

today. I am hoping my insurance will cover the Zith

and the Malarone. Yikes. I hear Malarone is very

expensive. So I guess I will have to see. I will

be getting it later today. I thought I had some but

I don't. I have Mepron....so many meds I just

don't know anymore.

Thanks again. Trying to keep my faith.