Ok... I'm very new to this whole thing, so please bear with me here...I've dealt with now 2 rounds of antibiotics (was a bug spray fanatic after the first round of doxy and the iv antibiotics) and the tests came back positive 2 years later, and was back on medication AGAIN... then diagnosed with babesiosis along with Lyme... I can't seem to find enough information to back up that Lyme disease can recur in people with compromised immune systems such as mine. Can anyone help me out here please, or anyone else have the same problem? Posted by Lymetoo (Member # 743) on :
Oh yes it can come back over and over. I don't believe we ever really get rid of it!! At least not unless it was treated RIGHT AWAY....like within a few days from the tick bite....and treated long enough the first time.
You'll get more replies if you repost this in Medical Questions.
Posted by Allison Smith (Member # 11631) on :
I was diagnosed back in 1997, but it is believed I have had this most my life.
Was bit back in 1979 got the rash, doctor said it was nothing. Had a horrible childhood with tons of illness.
When diagnosed in 1997 I was just put on a short 30 day round of abx, which helped for a while.
4 years later it came back...though it probably wasn't ever gone. I was constantly ill with strep the those 4 years that I was always given abx for those infections. I even got rhuematic fever...who gets that anymore?? I have received no treatment since it has come back (lack of doctors in this area, or funds for those who say will treat it) and it is basically slowly killing my body.
So yes, it can come back, I'm living proof. And I was told since it wasn't treated when I was first bitten the odds are that it won't ever go away...maybe go in remission if ever given the correct amount and length of abx needed.
Posted by treepatrol (Member # 4117) on :
Absolutly Posted by CaliforniaLyme (Member # 7136) on :
Oh yes!!!
WELCOME!!! *)!*)!*)!*)!*!)!
You definitely need to be here and read up. I am sorry it didn't stay away but it is not unusual at all- glad you are here!!!
Posted by Michelle M (Member # 7200) on :
The Infectious Disease Society of America (IDSA) would pretend it can't come back. No such thing as chronic lyme.
However, this position ignores not only thousands of patients' experiences, but summarily ignores a trove of research studies proving definitively that the bacteria can persist despite repeated antibiotics.
Here's a few links..it pays to be educated since you will typically meet a lot of resistance from mainstream doctors --even hostility. You will need to know more than them but fortunately, this is not difficult.
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