This is topic Having a ruff time again, I don't want to do this anymore in forum General Support at LymeNet Flash.


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Posted by Cassie (Member # 2106) on :
 
Hi my friends,

So sorry I haven't been around to play, have missed you guys

My lyme symtoms have come back with a vengence [Frown] The pain in my body is soooo! bad right now I could scream, but I won't it's getting late and I don't want to wake anyone [dizzy]

My GP increased my fentanyl patch and I take 2 extra stength ASA every 4hrs.
I am seeing a doc for the pain in Sept. I have been to him before I was diagnosed, he is a decent guy.

There is a post in Seeing a doc, if anyone can help. I am willing to travel. Hubby is retired now so we don't have nothing better to do [Roll Eyes] We drove for 10hrs to see Dr.B. in Long Island. I enjoyed our trips, that is the times I was conscious [loco]

Does anyone have problems with edema? The other night I looked in the mirror and thought I was looking at a stranger, my face was so puffy and my feet felt like I was walking on pillows.

We have a lyme protest in Ottawa on the 14th of Sept, I'm just praying to make it. It will be about a 5hr drive from where we live and my son lives half way so, we can stop over and visit.

I better try and get some sleep now, [sleepy]
take care your friend Cassie [kiss]
 
Posted by Melanie Reber (Member # 3707) on :
 
Good morning Cassie,

I hope you were able to get a good night's rest... Things usually seem a bit brighter in the morning.

I'm so sorry that you are feeling down and out. It is tuff when you have been treating for awhile, and symptoms return- so discouraging. I wonder if you have successfully addressed possible co-infections? This seems to be the main reason why so many regress.

The Wall of Hope in Ottawa should be a wonderful event, and I do hope you will be able to make it there.

I wish you the best with finding a new LLMD and hope you will find he answer you need to feel better real soon.

Melanie
 
Posted by Aniek (Member # 5374) on :
 
Cassie,

What kind of pain are you having? I have really bad muscle pain. I recently started Zanaflex and it's helped tremendously.

I've been taking it before bed (started at 2mg, then increased to 4mg). I haven't been pain free, but I've been taking less vicodin which is a sign of less pain.

Just today, I started 2 mg in the morning. After a few days, I'm supposed to add 2mg in the early evening. I fell asleep right after taking it this morning, so hopefully I'll get used to it in a few days.

-Aniek
 
Posted by just don (Member # 1129) on :
 
Cassie,

You just HAVE to find a way to continue on,,,where would we be here without our "Cassie"??


Keep looking till you find the answers!!!only--just don--
 
Posted by Geneal (Member # 10375) on :
 
Dear Cassie,

I am so sorry you are having such a bad time of it.

I am sending you positive thoughts and prayers.

BTW, my neighbor (who also has Lyme) was having significant edema issues until she

Started on armour thyroid for hypothyroid.

Hope that helps.

Hugs,

Geneal
 
Posted by bettyg (Member # 6147) on :
 
cassie, [group hug] [kiss] [group hug]

remember, it gets much worse before it gets better. look for the light in the future. [sleepy]
 
Posted by Michelle M (Member # 7200) on :
 
Cassie, I'm sending a hug. Sounds like you are in need of more treatment, along with pain relief.

Don't give up the fight.. I don't know what we'd do without you around here. Your posts are always so supportive and kind.

I hope you are getting care from an LLMD and not just your GP?

Keep us posted and keep the faith!

Hugs to you,

Michelle
 
Posted by Cassie (Member # 2106) on :
 
Hi Everyone,
Thank you so much for your kind words. I always feel so much better talking to people who understand how we feel.

I should look into getting a laptop. Our computer is down a flight of stairs and hard to get to on bad days. It's hard enough to get to the bathroom a few feet away from my bed [Roll Eyes]

May-be Santa (hubby) will send one for Christmas. Or maybe I will be well enough to go down stairs, that sounds better to me [Smile]

Melanie, thanks for the well wishes, I did have some positive feedback on my request for info on Dr.P. so I will be calling this week

Aniek, my pain feels like it right down to the bone. Thanks for the info on Zanaflex, I will mention that to the doc on Sept 11

Don, what can I say, you are so sweet. If I wasn't married what out [Wink] [Big Grin]

Geneal,thanks for the positive thoughts and prayers, they worked I am back down stairs for a little while tonight. I am already on a thyroid med. The tests came back okay but Dr.B. suggested it when I was seeing him

Betty, thanks for the reply, one day at a time is all we can hope for

Michelle, thanks for the hug, here's one for you too [group hug] I get so much support here. I try to keep positive and takes things lightly,however some times it is all to much.

Take care your friend Cassie [kiss]
 
Posted by Lymetoo (Member # 743) on :
 
Hi Cassie!! I do hope you get some relief very soon. It would be really great if you could get a laptop for Christmas!

We don't want to miss your posts! Please take care of yourself....we love you!

[group hug] Cassie [group hug]
 
Posted by cjnelson (Member # 12928) on :
 
hang in there Cassie! [group hug]
 
Posted by Cassie (Member # 2106) on :
 
Tu-tu & cynelson, thanks for the hugs,

Take care your friend Cassie [kiss]
 


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