LymeNet Flash: IMPORTANT-Show our numbers by signing petition

This is topic IMPORTANT-Show our numbers by signing petition in forum General Support at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/18402

Posted by ellenluba (Member # 1707) on :

Hi folks,
We need to refocus on one of the most important - and
easiest - activities to promote the access of Lyme
patients to medical care.

PLEASE , if you have not already done so, sign the
petition protesting the IDSA guidelines.

These guidelines of the Infectious Disease Society of
America (IDSA) claim that 3-4 weeks of antibiotics are
always sufficient to treat Lyme disease.

These guidelines have provided ammunition to insurance
companies to deny reimbursement for treatment for
chronic Lyme disease. The guidelines deny the very
existence of chronic Lyme disease.

We are sick and , compared to powerful groups like the
IDSA, we are politically weak. BUT the strength we
have is in our numbers.

Right now only 28,000 have signed. That's only a
fraction of the number of signature we can get if we
start working on it.

IF YOU HAVE NOT YET SIGNED THE PETITION GO TO:
http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1

Then send the link to friends and family asking them
to sign.

The following paragraphs from the LDA give more
explanation of the issue:

"The new IDSA guidelines published in October by the
Infectious Diseases Society of America (IDSA) are
already causing patients to be denied treatment for
chronic Lyme disease. The guidelines have recommended
against any long term treatments, listing numerous
specific antibiotic classes not to be given, listing
alternative treatments and even supplements not to be
offered to Lyme patients. Clinical discretion has been
removed from treating physicians. We ask that you,
your families, and friends across the country sign
this petition immediately. Lyme treatment is at stake.

"Petition Information: The petition on this website is
for those 18 years and older to sign. Names and
addresses will NOT appear on the internet but will be
printed out with the petition when it is ready to be
presented to the appropriate entity. LDA never sells
names, nor shares them with marketers. The petition
will be used in an effort to advance our cause at the
appropriate time and will be kept private until that
time. Remember, like many of you, LDA is all patients
and families of patients ? and all volunteer."

Posted by elle108 (Member # 11730) on :

Just signed it! Not sure if I signed it before, though. Thanks for posting this!!

Posted by merrygirl (Member # 12041) on :

signed it and forwarded it

Posted by Melanie Reber (Member # 3707) on :

If YOU haven't taken the opportunity to sign this petition yet...

Now would be an excellent time! [Smile]

(Hi Miss Ellen)

Posted by bettyg (Member # 6147) on :

ellen,

i've been promoting it in he first pages of my newbie links i've been sending newbies since it came out!!

also, promote it another way too in seeking drs. section. [Wink]