I was feeling good for an entire month. I went to my LLMD a week or so ago and told him how well I've been doing. He was happy for me and glad that it seemed we've hit on a good medicine.
But then the last three days I've been feeling terrible. I know it's only three days, but it's depressing nonetheless.
I don't know if it's because I overdid it on Friday. My husband and I went to DC and walked all over town. We saw the Whitehouse and the Capital, saw some museums, etc. We also went to the National Zoo and walked all over that as well. It was a lot for me, I admit, but I was feeling so good most of Friday, I thought I'd be okay.
I guess I must have overdid it because that night I had a really bad episode with stiffness in my legs in public, very embarrassing (which two days later is completley gone -- it's amazing how the stiffness comes and goes so quickly. I hate it).
Then on Sunday I had what seemed to be a panic attack. And today I'm feeling my usual blah, feel-like-I have-the-flu kind of thing. I just feel fatigued and weird and overall ill.
I can't help but cry. I hate this disease. I hate feeling good for so long and then feeling sick again. It's like the disease is laughing at me, toying with me.
This is just so hard.
Posted by 3greatkids (Member # 3838) on :
Sounds like you used up all of that energy.
Glad you were able to have a trip.Sorry you feel terrible.
I hate this Lyme too and for that reason.I store up energy and poof....it is used up in a heart beat.
It has gotten better.I had to learn to throw in the towel and give into Lyme and rest.
In the beginning,I could rest a week,go out and BAM,in one day,all my energy was zapped.
Then,slowly,I could rest 3 days and have a super day and have to rest again.
Slowly I noticed a difference.I only did important stuff,errands,family events.
Now,I take a nap here and there and must rest all day at least one day/week.
Yes,it is very hard,dealing with Lyme.Being very active,on the go and then hit w/ this has been very hard.Slowly,I have been able to be spontaneous again...making life fun.
Until then,store up that energy and learn to use it for special times.I think the Fibro people call it energy banking.
Give yourself a couple of days and I bet you will be feeling so much better.Think of the great time you had.DC is such a beautiful place!!!!
Posted by Lymetoo (Member # 743) on :
"I can't help but cry. I hate this disease. I hate feeling good for so long and then feeling sick again. It's like the disease is laughing at me, toying with me."
For me, that is the hardest part! Getting slapped in the face just when you're beginning to feel better is REALLY hard.
Posted by Aniek (Member # 5374) on :
It's easy to overdo it with all the adrenaline of a vacation. Give yourself some time to recover. Take some warm baths, rest up, and get your hubby to give you a massage.
Or maybe DC made you sick. That would explain why I always feel awful these days. Posted by AZURE WISH (Member # 804) on :
The rollercoaster nature of this disease can be challenging to deal with...
it will get get better... hang in there.
Posted by bettyg (Member # 6147) on :
i agree with all of the above posters.
you overdid it, BUT ENJOYED EVERY MINUTE YOU WERE OUT EXPLORING THAT DAY! good for you; reminisce on those good memories thinking back to why you hurt now! they are so few and far between.
aniek, loved your response with everything going on in dc politics, etc...depressing!
also with thanksgiving comin up and IF you are planning a big gathering and fixing all that food; STRESS!
have everyone pitch in and help or go OUT! make a reservationn or you'll be in line on your feet FOREVER! Posted by Geneal (Member # 10375) on :
I am feeling your pain and hitting the lows with you.
I think mine is more related to flagyl though.
I cried for the first time over the weekend in months.
It actually felt kind of good to get an emotional release.
Plus my Mom always said the more you cry the less you pee!
Hang in there. I think the upcoming holidays make things so much harder for us.
I know I am more easily overwhelmed. It is easy to compare where I am
At Thanksgiving or Christmas than any other given day of the year.
They just stand out. Makes the journey a really long one filled with some ups but more downs.
This too shall pass.
Sending you Angels to comfort you and hold you.
Hugs,
Geneal
Posted by tdtid (Member # 10276) on :
I can relate to what you are saying, SOOOO very much. We have a small time frame where we think we might be among the living again, so we get out there and live like "normal people".
But then, the next day, we crash and burn and it IS depressing. Yes, we hear we must have over done it too much and my husband will tell me that if I look at where I was a year ago, this is so much better.
For me, I think it's hardest because once you have some good days, you have further to fall. When I was bed ridden all the time, sure, I was sick as a dog, but I was ALWAYS sick, so it wasn't messing with my emotions in the same way as this roller coaster of up and down.
So yes, although I don't have a solution for you, I did want to say that I relate 100 percent and hey...maybe someone will come along and tell us ALL how to fix this problem once and for all.
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I know it's only three days, but it's depressing nonetheless.
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