[This is not my petition. Please spread the word; your signature will be greatly appreciated and I hope it makes a difference!]
Notes: (Details/link follows): 1. If you prefer, you can elect to keep your name anonymous on the public webpage for the petition;
2. You can add your "2�" about your own experience or research, etc. (You might want to prepare something before you sign, then you can cut and paste it in at the website.)
First, please visit this website: http://lymecryme.comLymeCryme so you can sign the petition if you agree. (There's a link for the petition at the Lyme Cryme website.)
I really think this is an important cause, and I'd like to encourage you to add your signature, too. It's free and takes less than a minute of your time.
Thanks!
Posted by bettyg (Member # 6147) on :
nancy,
fyi, we do HAVE 2 LYME PETITIONS that have been circulating for 14 months now!
and we have the LDA petition where last heard was 28,000 names on it! *******************
we desperately need your help/others to meet the 50,000 signatures for LDA's petition, and there's over 5200 on lynn's going to congress.
***********************
Nancy and to the originator!
I understand where you are coming from, but let us work on TWO existing ones vs. starting from scratch. It took 12-15 months to get the signatures we have gotten!
I also stated this in other post about this on lymenet; perhaps to the originator of the petition; i don't know.
it gets very confusing for us neuro lymies to figure out if we have signed a NEW petition or not.
i also checked the one you suggested out; it's ILLEGIBLE for us LOW vision folks; so people's comments will not show up well like lynne's did!
not trying to rain on your parade, but we have 2 that are working very well and took so long for them to take off!
[ 16. December 2007, 02:50 AM: Message edited by: bettyg ]
Posted by nancyatlymesupportcom (Member # 5045) on :
I wasn't planning on turning this into a thread. But I tried the link about the two other petitions but it let to a "test" post.
Also, if there are people with vision problems trying to access the petition, I hope they know that they can adjust the size of the text in their web browsers by clicking on "View" and selecting "Text Zoom" or "Text size" or similar and choose a size to their liking.
We, the undersigned concerned citizens of the United States of America, respectfully express our support for the expedient passage of the ``Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2005.'' (S.1479, H.R. 3427).
This bill, which can be viewed at http://thomas.loc.gov, provides ``for the expansion of Federal efforts concerning the prevention, education, treatment, and research activities related to Lyme and other tick-borne diseases, including the establishment of a Tick-Borne Diseases Advisory Committee.''
The bacteria which causes Lyme disease, Borrelia burgdorferi, was discovered in 1982. Although 24 years have passed since this discovery, we still lack accurate testing and live with controversy in the medical field over the diagnosis, symptoms and treatment of this devastating illness.
Many mistakenly believe that Lyme disease is definitively diagnosed by a simple blood test. In fact, the standard blood tests used to test for Lyme disease have been shown in several studies to produce an unacceptable number of both false negative and false positive results. The College of American Pathologists Proficiency Testing Program has concluded based on its own study that ``these tests will not be useful as screening tests until their sensitivity is improved.''
While developing an accurate Lyme test would be ideal, the diagnosis of Lyme disease could be improved through an increased awareness of the clinical presentation of this disease. It is widely recognized that a bulls-eye rash and joint pain/arthritis are symptomatic of Lyme disease.
In spite of extensive research, it is less well known that the Lyme rash is often not in bulls-eye form, that many never develop a rash, and that Lyme can produce psychiatric, cardiac and cognitive symptoms. Clinical observations and preliminary studies suggest many other symptoms may be indicative of Lyme. Further study in this area is critical to improving the clinical recognition of Lyme disease.
A lack of consensus in the medical community regarding the most effective treatment, particularly for chronic cases, adds yet another layer of uncertainty to the understanding of this disease. Among the most important issues in this regard is the long-term use of antibiotics for the treatment of chronic Lyme. One school of thought limits their use to four weeks, while the other supports their use for longer periods when clinically indicated.
Quality research in this area has been remarkably sparse, is long overdue, and is a necessary step towards effective treatment.
Lyme disease is more prevalent in some areas, however, ticks carrying the Lyme bacteria have been found in 48 states. In addition, due to frequent travel and relocation in the United States, people in every state are afflicted with this disease. It is imperative that doctors in all states are able to diagnose and treat Lyme disease and other tick-borne diseases accurately.
Due to the debilitating nature of the disease, particularly in its chronic form, people are often forced into long periods of leave from work or school; causing financial burdens on Lyme victims, their employers, and taxpayers. Because the disease becomes harder to treat the longer it is allowed to progress, more effective diagnosis will yield shorter treatment times, and lower costs to all involved parties.
It is our hope that the passage of this bill will result in significant progress in the diagnosis, treatment and prevention of Lyme and other tick-borne diseases.
Sincerely,
The Undersigned
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The Lyme and Other Tick-Borne Disease Petition to U.S. Congress was created by and written by Lynne Lyons ([email protected]).
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Posted by bettyg (Member # 6147) on :
signed Posted by treepatrol (Member # 4117) on :
Second page takes you to donations and Iam not donating theres no $0.00s ?? Posted by Raiden Kitsune (Member # 14125) on :
Don't worry about it; once you get to the donation page, you've already signed the petition. Just close the browser window if you don't want to donate.
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