At this point I think nothing is sacred..no body part Note, this does not have to be the most painful symptom.
My weirdest symptom would be when my thighs and feet go completely numb for a while. Walking is comical when this hits me while I am out.
Posted by CaliforniaLyme (Member # 7136) on :
My weirdest symptom was my left hand moving my itself- chorea with athetosis!!!
Posted by Curiouser (Member # 14128) on :
The strangest symptoms have to be the sensory hallucinations.
Sometimes I'll hear things. A kettle whistling, a baby crying, stuff like that. Or I'll hear people talking when I'm the only one at home. Its not from neighbors - we're out in the country, and its not the tv either.
Smelling things too. Hot chocolate, watermelon, rotten oranges, and worse.
Seeing things out of the corner of my eye had me going for awhile too. Guess I'm used to it now.
On the bright side, if I really am losing it, at least it keeps me entertained. Posted by Monica922 (Member # 13496) on :
Wow sensory hallucinations... I just have supersonic hearing. I can hear the PeaPod delivery truck from a mile away.
Posted by meg (Member # 22) on :
I really enjoyed the drooling and walking into walls......those were very entertaining The subsequent bruising was very pretty too. LOL
Posted by AZURE WISH (Member # 804) on :
Lets see..
When I was in college I had a big canvas and I painted the background red violet...
for three days my whole vision was tinted red violet ...
that was in fall of 97... I never used big spaces of red violet in an art piece again.
---
I became allergic to dogs for about 9 months or so. if i touched them it would break my skin out in a rash. Never happened before that time and hasnt happened since.
--
After 20 years of symptoms not much seems "weird" to me anymore. Posted by Just Julie (Member # 1119) on :
I just gotta add a "long timer" point of view, which does pertain to symptoms . . . in all the years of reading and posting on lymenet, whenever I would be having a "weird symptom" moment, and I posted about it here, invariably, someone, sometimes lots of people, would post that they too had the exact same symptom.
I have to say, that that in itself, was more of a comfort than anything I could ever imagine. Just think, not only am I not going to 1) die, 2) die from MS/ALS, 3) become so incapicatated that I cannot care for my kids/family, but someone else out there has it too! And can give me at least a few different ways in which they handled it, or solved it.
I am so thankful.
xxoo, Julie
Posted by lymeladyinNY (Member # 10235) on :
Weirdest symptom - or symptoms?
I have had bouts of uncontrollable screaming and laughter.
I've writhed like the Exorcist girl all over my bed - so much so that I fell off! No levitating as far as I can remember!
My hands curling and my arms flinging up above my head - and staying there.
As recently posted, not able to make vocal sounds.
And yes, sometimes it does sound like people are talking or there's a radio on somewhere in the house - I open the door and don't hear it outside so I know it's not the neighbors.
I have many more symptoms, but those are some of the weirder ones!
Posted by Geneal (Member # 10375) on :
The more I read and look here, the more "normal" my symptoms become.
I guess one of the strangest ones is feeling like I am sleeping on cement.
My ear will hurt and throb so bad it wakes me up.
Being unable to find words, finding the wrong words, or getting them out
Has been very strange for me also as I am a Speech Pathologist
And used to help people with this problem.
I think these two are the ones that make me shake my head in disbelief.
Hugs,
Geneal
Posted by Monica922 (Member # 13496) on :
Hi Geneal I just noticed you live in Louisiana. Did you get the tick bite there? I have to add another good symptom...horrific dreams. I swear I had a dream last night where I was bit by another tick. I cold not sleep at all. NUTS
Posted by Robin123 (Member # 9197) on :
Taking care of things, then forgetting I took care of things, so thinking I didn't take care of things, and that I'd better take care of things, and when I go to take care of those things, to realize I actually already took care of those things, and on and on...oy
Posted by Curiouser (Member # 14128) on :
Here's another one for you. Have any of you noticed that your mental/verbal "filter" doesn't work anymore?
I've noticed lately that, rather than choosing the words I say, things just kind of spill out. For better or for worse.
Tact has become a thing of the past.
Random thoughts get said out loud.
Thank goodness, I'm still able to practice restraint when it comes to typing. Otherwise, I can see being thrown off several boards. Posted by Geneal (Member # 10375) on :
Dear Monica,
Yes I do live in Louisiana. Covington area (about 60 miles north of N.O.)
The tact thing comes and goes for me.
Some day I feel like a Tourette's patient with random curse words flying out of my mouth.
Not good with two little people around who emulate everything I do and say.
I often use a "bad" word, realize it once it leaves my mouth,
And then "cover" with my kids saying it again with a sound alike word.
Like ship, axe, and that old dam is breaking.
They are really too smart for me.
Hugs,
Geneal
Posted by pmerv (Member # 1504) on :
Meg, you are a scream!
My most interesting symptom was the time I had double vision for a brief time, probably less than 1/2 hour. Two of everything.
And then I don't know what it's called, but everything looks tiny, like you're looking the wrong way down a telescope. That used to happen when I was a kid and I don't know if I had Lyme then or not.
Not really a symptom but the trippy feeling the first time I took my minidose of amytryptiline was fun, too, but unfortunately it only happened once.
happy new year, everyone!
Posted by charlie (Member # 25) on :
feet itching deep inside the ball of the foot behind the toes....impossible to scratch without gouging in there somehow. Posted by Andie333 (Member # 7370) on :
Full body paralysis...lasting about 4 hours was my strangest symptom. That happened twice at the beginning of my treatment.
I know what Julie means, too. As soon as I could, I came to this board and posted my experience with paralysis and within hours several other people had shared their similar experiences.
next would be changing words. Thinking one thing and typing something entirely different. Weird for me, because I'm a writer.
And the creepy-crawlies--the buggy things that used to crawl all around on my head and down the side of my face. Ugghhh...
with these diseases, I never knew what to expect from one day to the other. Still don't!
Posted by MADDOG (Member # 18) on :
Without a doubt it was when I was driving home from a local nature reserve.
Down a road I had been on hundreds of times.
And suddenly didn't have a clue were I was.
I drove for miles lost then sudenly recognised the fair grounds.
MADDOG
Posted by kbholley (Member # 12938) on :
Mine would be the Alice In Wonderland syndrome and not being able to judge distance, seeing me play pool is a hoot, I keep shooting over the cue ball or to either side of it.
Posted by beckyM (Member # 13944) on :
Mine was when I lost the hearing in my right ear for the first time.
I was on the phone with a friend of mine who is also a nurse.
We were chatting away and all of a sudden I couldnt hear her.
I kept sayng "hello, hello, are you there?"
Finally I switched ears and she was back.
I said "there must be something wrong with the phone"
She replied "I heard you the entire time" I just couldnt hear her.
It took me a little bit to relaize I couldnt hear out of my right ear...I didnt even notice.
All I could do was laugh because now I couldnt even tell when I was loosing my hearing???
It came back after about an hour. And goes in and out.
But now I am more aware of when it happens.
Bek Posted by lymeparfait (Member # 14268) on :
My wierdest symptoms: accute smelling...can smell people smoking cigarettes three cars ahead of me with the windows up on a freeway! No one else around me can smell the same things.
fingernails are very brittle, weak, and flimsy
body twitches between thumb and forefinger and eyelids
Posted by lymeladyinNY (Member # 10235) on :
Lymeparfait, I know what you mean about acute smelling issues. I'm always asking my husband, "What stinks? Does this house smell?" I think I smell, too! So, I'm always self-conscious of that!
Another strange symptom I have is the occasional inability to say anything beyond "the thing". I'll repeat it over and over because I can't seem to get anything else out.
When that happens, my husband knows to be on high-alert for a seriously bad Lyme time. "The thing" is accompanied by many symptoms, like stabbing headache, screaming, thrashing, head banging, and inability to walk.
This is the second time I've posted here, but I thought of some more symptoms!
Posted by fetz (Member # 11843) on :
Arrgh! I totally feel for you with the RLS. It was TERRIBLE when I was pregnant. I would have to get up and move constantly and never got a good night's sleep (for that matter, neither did my husband who said he got beat up every night).
My oddest symptom was when I went completely blind for 4 days. It started with just tunnel vision and then was total black within 30 minutes. After starting IV, my sight came back.
The same thing happened with my hearing a couple of years later, and now comes and goes.
I'm really getting tired, though, of people just saying I'm crazy because of the odd symptoms. Refreshing to read that others have some of the same.
Posted by Tracy9 (Member # 7521) on :
OMG, how hysterical!!! What a great thread!! I can relate to almost everything.....except the internal itching of Charlie...??????????
My two weirdest or annoying symptoms are :
1. Dropsie...I can't hold onto anything. I drop things; they just seem to slip through my fingers, or scoot away just as I am reaching for them.
This is a close cousin to Bumpsie, where I can't judge spatial stuff at all and am constantly bumping into walls, doors, doorjambs, people, animals, you name it. And of course, the multicolored bruises are Bumpsie's signature speciality.
2. Noises that drive me freakin' crazy....my husband loading the dishwasher, putting a spoon in the sink, vacuuming, shutting a door too loudly, SNIFFLING, putting away plates, shutting cupboard doors, or doing anything that creates a sudden noise. I never realized it was a Lyme symptom, then one day I noticed these sounds never bothered me before.
I laughed so hard about tact being gone....didn't know that was part of this either. I just thought I'd gotten way more brazen with age.
Posted by sixgoofykids (Member # 11141) on :
My funniest symptoms have to be the cognitive/memory symptoms. I've always said, when the cognitive symptoms go away, it'll just be joint pain and fatigue, how boring!
I would get lost driving places ... didn't know where I was or where I was going. I would have to take one of the kids with me to remind me. Sometimes I would just turn on random streets I'd never been on before for no reason, others I wouldn't recognize anything in a place I'd been a hundred times.
Also, could not go to the grocery alone ... I'd get so disoriented, I'd need someone to tell me to just pay for the stuff and go home.
One day I asked my oldest daughter five or six times (at least) in an hour period, whether she was working that night. The following day, she walked up to me, took my face in both her hands, moved my head back and forth while she said, "I work tonight ... I thought you'd remember this since I know you won't remember if I just tell you."
People would ask me things ... I didn't even realize they expected me to answer, I'd just sit there and look at them like they were the TV or something.
Posted by vicki9902 (Member # 12640) on :
I recognize so many of these symptoms. My
strangest one most recently is my teeth feeling
strange like I've had a bunch of sugar and need
to brush my teeth. But brushing my teeth doesn't
help at all. I also hear a pulsing sound all the
time. Since I've started my antibotic treatment
my tingling in my face has got a lot better.
Posted by vicki9902 (Member # 12640) on :
I recognize so many of these symptoms. My
strangest one most recently is my teeth feeling
strange like I've had a bunch of sugar and need
to brush my teeth. But brushing my teeth doesn't
help at all. I also hear a pulsing sound all the
time. Since I've started my antibotic treatment
my tingling in my face has got a lot better.
Posted by LymeCFIDSMCS (Member # 13573) on :
Some may be Lyme, some CFIDS:
That thudding sensation in ear.
A sensation that everything was tilting to the left, so strong that I would start stumbling in that direction.
Seeing something and my brain thinking it was something else even though my eyes didn't see an actual hallucination. i.e. one time I saw this big shrub in the dark and my brain said, "Oh there is Big Bird." In other words, my brain recognized what I saw as something else.
Being suddenly unable to move or speak.
Having my hands go into claw shapes (this only happened once) and being unable to pry them apart.
To that person who wrote about red violet, it's really funny because I had this dream in which someone kept talking about a color called red violet or rose violet and it seemed really significant so I wrote it down. Interesting, no?
Posted by CatCCC (Member # 14262) on :
I have a serious case of Bumpsie (I've been asked by doctors if someone is beating me, glad I finally know what that symptom is called, haha), but my weirdest symptom would have to be the pain snail.
I hallucinate sometimes when I'm really hurting, and apparently the "pain snail" shows up at those times and gets blamed for the situation.
My pupils are also always dilated (they don't constrict) so I look like a druggie. But who needs drugs when you can see snails that are invisible to other people? Posted by justag (Member # 11145) on :
CatCCC, maybe we can relate somehow, my right pupil is more dilated, i.e. right pupil bigger than left one! But my right eye has double vision, blurry and halo symptoms, and left eye is fine! So no benefit from dilation Posted by Clarissa (Member # 4715) on :
Wow. This is all so validating, especially after dropping my cd player in the bathtub last night....which was on the heals of slicing my finger while cutting a lemon for my water.
I have no tact, whatsoever. I feel like Jim Carey in the movie Liar Liar...I'm incapable of even a white lie.
My parents' have called me "fox ears" since I was a child. I hear e-v-e-r-y-t-h-i-n-g. And the smell thing...I live in FL and the smell of Hawian Tropic sunscreen makes me want to HURL.
I left a knife in the refrigerator the other day and I constantly leave my glasses in some "mystery spot" in the house.
Walking through molasses, searching for words, CREATING words is even funnier...that's when I blend 2 words together. I could be a stand-up comic during this phase.
Manic laughter until tears are streaming down my face...
I wish we could all have one big slumber party! What a stich that would be. Posted by CatCCC (Member # 14262) on :
justag,
My pupils are usually the same size (huge) but occasionally, when I have a bad headache, my pupils become uneven.
I have never heard of this problem being intermittent, even my neuro-opthalmologist says I'm "interesting!"
Sorry to hear you have blurred vision... mine is okay, except for it being too painful to read things up close, and for my (increasingly frequent) hallucinations (I blame my brain for that, not my eyes, however).
Have you tried drops or anything for your pupils? Neuro-Opt wouldn't give them to me b/c they would lower my BP too much.
Here's to being completely bizarre, everyone! Posted by TheCrimeOfLyme (Member # 4019) on :
Walking into things that ARENT there and stumbling to get past it or flat out running into things that have always been there- such as the hallway wall.
Forgetting words- such as "wall". Took me a few seconds to remember what it was called.
Getting up from a very important task only to forget to finish it.
Butterfly ear. Somewhere- deep inside my right ear, I am positive lives an annoying butterfly that from time to time creates an awesome "wing flapping effect/noise" in my ear.
TONGUE TWITCHING.
Drooling.
Dropping things from only my right hand.
Posted by fetz (Member # 11843) on :
Hey everyone,
Just this week I started having a VERY odd sensation and I'd love to know if anyone else has experienced it.
The end of my nose has been tingling....feeling like pins and needles. Anyone? Weird, huh? I don't even want to tell anyone else.
Posted by lymeladyinNY (Member # 10235) on :
Hey fetz, my nose has problems, too. I feel like the bridge of my nose has weight on it, like there's something pushing down on my bridge. My nose also feels numb there sometimes.
When I first got this symptom I kept looking in the mirror to see if anything was noticeable. Nope, looked like the same nose I've always had.
Now I'm starting to get used to having weights on my face.
- Lymelady
Posted by PinchotGail (Member # 5066) on :
Oh my gosh what a good thread!!!
Lymeparfait (luv yur name!!) accute smelling...can smell people smoking cigarettes three cars ahead of me with the windows up on a freeway! No one else around me can smell the same things.
...THIS IS SOOO ME!!.....I can't stand to be in cars and smell the exhaust ahead of us.....always reaching for the recycled "air" button!!!...I have acute smell powers and it drives my family crazy!!
I've not met Dropsie, BUT, I have a good relationship with BUMPSIE!!!!
Also one other odd one I had for awhile (that's not been back lately).....is feeling earthquake like tremors while laying on the couch in the evening late before bedtime. Would only happen once-that was it.
They weren't happening I'm sure in my PA area, but I felt them!! I'd look at my lymie dog and "ask him"..."DID YOU FEEL THAT?" ......he says "NO".
And SixGoofyKids......OMG!!!
One day I asked my oldest daughter five or six times (at least) in an hour period, whether she was working that night. The following day, she walked up to me, took my face in both her hands, moved my head back and forth while she said, "I work tonight ... I thought you'd remember this since I know you won't remember if I just tell you."
....THIS IS A REGULAR OCCURENCE IN MY HOUSE WITH MY 2 DAUGHTERS AND HUSBAND!! I do this all the time.
Uh gosh, gotta laugh.....whew!!!!!
Gail
Posted by disturbedme (Member # 12346) on :
Lymeparfait: accute smelling...can smell people smoking cigarettes three cars ahead of me with the windows up on a freeway! No one else around me can smell the same things.
Me too. My husband started saying that I had the nose of a blood hound. I can smell everything while no one else can smell what I'm smelling. The biggest problem for me is being able to smell the 'toilet' water after it's been flushed a long time after. I hate it and it disgusts me so we always have to shut the bathroom door after flushing the toilet.
I too also ran into walls/doors. It's not as bad as it used to be though since treatment.
Other than those things, I don't find too much funny as I feel so terrible some days and don't even have the strength or desire to laugh at all.
Posted by heiwalove (Member # 6467) on :
add me to the 'nose of a bloodhound' crew. drives me crazy. example: my roommate is currently painting her room, she has her door closed, windows open, and fan on, and the fumes are still enough to make me ill. of course, no one else in the apartment smells anything out of the ordinary.
hypersensitive hearing - got that too. i can hear a pin drop, doors opening & closing make me jump, etc.
also, yes, bumping into doorframes - ALL THE TIME! it's a rare event when i navigate my way through a doorframe without smashing into it first.
this thread is so validating! thanks for starting it. Posted by bejoy (Member # 11129) on :
I used to have this little invisible hair that would tickle the end of the right side of my nose, and I'd brush it away, but could never get rid of it.
And dropsie, yes! I had this for years before finding out I had lyme.
I have a menagerie of one or two glasses out of about five different sets. Then I gave in. The most recent new set was plastic.
It's really nice to be able to find my way out of a grocery store again, and then to actually be able to find my way home. And what's more, to usually come home with what I went shopping for, put it away and make dinner all in the same day!
My most obvious symptom of a really lymie day: getting plugged in to lymenet and not being able to get up or say anything more than UmHm to anybody who tried to speak to me. It was the best pain relief possible!
Posted by kbholley (Member # 12938) on :
I know that I have already posted on this one, but I have the problem of grabbing stuff and be off to one side or the other, which means what ever I am reaching for gets knocked over.
My solution: The big to go cups with the lids on them, they are plastic and they have tight lids on them.
It has cut down the amount of times I have to get on my hands and knees to clean up the spill or if I am having a really bad knee day, I run my socks over the spill, the I change my socks.
My husband thinks its a hoot, and waits till I sit down, to go get a towel to clean up my mess.
I'll ask him why didn't he do that before I tried to do it with my socks, he says its because he loves to sit back to see how I will handle, to determine what kind of lyme day I'm in.
I'm 39 years old and have more old age symptoms than my 61 year old mom.
Posted by Lymetoo (Member # 743) on :
Tracy9 said, "1. Dropsie...I can't hold onto anything. I drop things; they just seem to slip through my fingers, or scoot away just as I am reaching for them.
This is a close cousin to Bumpsie, where I can't judge spatial stuff at all and am constantly bumping into walls, doors, doorjambs, people, animals, you name it. And of course, the multicolored bruises are Bumpsie's signature speciality."
^Thanks for saving me all the typing!!^
I have experienced about half of the things you guys have mentioned. THINGS, lymelady!!
How about this one?....Itching [which for me is an indication of yeast rearing its head] which feels like it's in my blood veins....ONLY in my LEFT arm.
VERY VERY strange!!! Posted by BunkerHill (Member # 13523) on :
1. Ear canals itchy and scaly - little or no earwax production.
2. Little growths popping up - mainly on arms - look like little warts almost.
3. Hearing things like the phone ringing when it isn't.
4. Forgetting what I was just going to say - in this post!
And some already mentioned:
1. Extreme sensitivity to cologne/perfume smells. Can even taste them. Often have to leave the room & go outdoors.
2. Dropsies
3. Seeing things in peripheral vision that aren't there.
Posted by hanginginthere (Member # 11685) on :
Share a lot of similarities with you all.
Got another one & wondering if I'm wierd and alone in that
I get an overwhelming sense of deja'vu, complete with smells and an overall 'wormy' (for lack of better description) sensation. It's not terribly unpleasant...but I can never quite wrap my mind around what it is I'm experiencing/remembering/seeing, etc. And then, it's gone and until it happens again I can't remember what it was!!
Very strange...used to happen every day in the shower & bathroom, but happening less often with treatment!
Posted by MusicMan (Member # 11966) on :
Hi everyone!
Yeah it's been awhile since I've been here and won't be on for too long but figured I'd give you a few of my more stranger symptoms.
This one comes and goes: The closest I can get to a description is it feels like my backbone is vibrating, on and off maybe for 5 or 6 seconds at a time.
Another really weird one and I feel a little strange about saying this one but....
Every time I have a bowel movement, my nose runs like crazy! And I mean EVERY TIME!
One more and I'll let ya go.
I wake up every morning with nausea and just when I feel like I'll be sick, I sneeze and it's gone!
Steve
Posted by anthropisces (Member # 15672) on :
I'm having loads of fun with my as yet untreated Lyme disease (or whatever the hell it is that I have)
Here are a couple of neat and fun things that everyone should try at least once.
I was in a parking lot pulling out onto the street and I had to ask my stepson "am I on the correct side of the road?" When I pulled out onto the street is was so crazy. It felt so strange to be driving on the right side.
It was though possibly influenced by my trip to irelad a month earlier...still scary though.
Then there is yesterday when I could not remember what the product of 9 x 7 was...and I'm an engineer!
Posted by proudmom (Member # 15532) on :
My daughter and her family took me to the circus for my birthday. Believe me that was the best gift ever!
We were standing in the line to get in it seemed like forever. Big crowds of people milling around and lots of noise and my grandkids were running around.
We got to the turnstyle my wonderful symptom kicked in I handed the woman my ticket, she scaned it then when she went to hand my ticket back I took her scanner!!!
It's like having 2 brains at that moment, one saying "Take that" and the other saying "OMG what did you just do???" I was so embarrased and had no way to explain why I did that. Posted by njlymemom (Member # 15088) on :
i didn't find this funny
but it is the most embarasssing
could not recognize my best friend
known her for nearly 18 years, just couldn't
recognize her at a back to school night
a few years ago
i hadn't told her how bad things were getting
and did tell her that i didn't snub her
and had to explain what happened.
a true friend - she understood
not many like her in the world!
Posted by proudtoserve (Member # 14811) on :
It was the middle of the night and I was sound asleep.
I woke up to my bed shaking like an earthquake was happening.
Scared I shook my husband awake and told him to check down stairs.... thinking if it wasnt an earthquake then maybe something crashed into the house or somehting in the house fell that shook the house.
So, angry, my husband humored me and went to search the house. He returned and told me nothing was wrong....
Come to find out hte next morning my mother had gotten up to use the bathroom and dropped the toilet lid. which made a loud noise.
for what ever reason my brain took that noise and told my body there was an earthquake.
I never knew a toilet lid could shake my bed like that!
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Note, this does not have to be the most painful symptom.![[Big Grin]](biggrin.gif)
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