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Posted by disturbedme (Member # 12346) on :
 
I just had a doctors appointment with a gyn, but the point of this post is that he seemed pretty open minded to lyme disease and the amount of antibiotics I'm taking. Of course one of the first things he did was ask why I was taking so many antibiotics and I told him and he was really open minded about it.

He was also very young, looked like he just got out of medical school, maybe around 27 years old or so, so maybe that is why he wasn't all up in arms about me taking so many antibiotics and was really open minded about it. He asked me some things like if I had joint pain, etc., etc. We talked about lyme disease for a little while and then I also brought up that I have Bartonella. I was glad I wasn't accosted (I know some people have TERRIBLE stories with "ducks") about the subject because I'm a very emotional person and I probably wouldn't have known what to say otherwise, and probably would have ended up crying if he spoke rude/mean to me.

Just thought I'd post about it here. Anyone else have any open minded "ducks" (example: going to an appointment for something other than lyme and the doctor there was curious about the meds you were taking, etc and you got into a conversation with them)? Just curious because most of the time I hear horror stories of how rude they are when the subject comes up.
 
Posted by Lymetoo (Member # 743) on :
 
I have a horror story and several "OK" ones from new ducks. It amazes me every time a dr doesn't go off on a tangent like the first one did.

I had a huge argument with my then-PCP soon after I was dxd with Lyme. I won. [Wink] [but he thinks he won]
 
Posted by randibear (Member # 11290) on :
 
yeah, i've got my own horror story.

my pcp doesn't believe in lyme, so sad.

there's a doc in denton that i'm going to try. most ducks just don't get it and never will.

if they are a duck, they will not be open minded, period. well at least, that's my opinio.

if you ever do find one,you're dang lucky.
 
Posted by David95928 (Member # 3521) on :
 
About two years ago a young man who was well known locally for having had Lyme since childhood died in his sleep at age twenty-one. He was seemingly doing fairly well and probably had an A./V block. His father is a member of the medical community here and both of his parents are well known locally. I asked my doctor about it and he stated definitively that this young man died of Lyme disease.

Since then, I have encountered NO ARGUMENTS or SNOTTY COMMENTS from physicians in this town and that includes general surgeons, orthopedic surgeons, E R physicians, and family practice docs. My urologist at UCSF, in discussing my situation with a resident, compared having undiagnosed Lyme for twelve years as comparable to having undiagnosed syphillis for twelve years and fully supports taking antibiotics continuously in order to try to keep it beaten back. Last summer I visited my parents in Austin, Texas. There, I went to a walk in clinic for possible conjunctivitis. The doctor was completely cool about it and stated that our side is going to win because the facts are becoming more and more clear.

We just have to keep fighting.
 
Posted by Lymetoo (Member # 743) on :
 
Wow, David. That's amazing. I agree about the syphillis.

And Austin drs are "getting it?" Really amazing!
 
Posted by David95928 (Member # 3521) on :
 
About syphillis, I think our side should consider framing the IDSA efforts as analogous to the Tuskeegee Experiment. That incident is so infamous that it could have powerful public relations effects.
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by David95928:
About syphillis, I think our side should consider framing the IDSA efforts as analogous to the Tuskeegee Experiment. That incident is so infamous that it could have powerful public relations effects.

Very, very true.
 
Posted by Keebler (Member # 12673) on :
 
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At the point where they are open-minded, that is open to learning, they really are no longer a duck, but a doctor.


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Posted by merrygirl (Member # 12041) on :
 
My PCP is a kind man who while he doest think I have chroic Lyme he knows what I have been through and he agrees that until and IF he finds somethig else that is causing my problems, he thinks my llmd treatment is just fine.


I also recently have seen a kidney doctor who did not even bat a eyelash at my treatment and diagnosis of Chroic Lyme. He actaully said "Your history sounds all like Lyme to me"

and when I asked him about my Kidney problems being Lyme related, he said that he would have to research it. I asked him that if I could prove (by finding the Bb) in my kidney, what change in treatment would he suggest, and he said nothing.

So that was wonderful. I agree that they are no longer ducks and are real Doctors! These 2 doctors actually admit that just because they dont understand everything doesnt mean it doesnt exist! [Eek!]

I have had a few horror stories too..
 


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