As the Lyme Walk- For those who can't of the Corning Finger Lakes area begins to get underway: we are asking for your help for contribution to the walk a free and easy way to give a voice to Lyme disease and those who suffer from it-
Our goal is to promote awareness and prevention of Lyme Disease with this we're asking you to contribute your story and face to the walk as a free way to get your story out there to make non-Lyme suffers understand a little more. The ideal goal is to have 100's of ''Lymie's'' to hand out for each walker so every walker has a person they are walking for.
What we need:
- Your name (First names only please!)
- Your state (no city or anything else)
- Your Photo (just a head shot is fine, we really just want to be able to put a face with the stories and having a photo- makes the story all more real to the person walking for you.)
- And of course a very brief description of what you have been through, symptoms, how long you've had it and how Lyme has affected you. We ask that you limit the story to 5 sentences or give us the liberty of editing your story for the walk due to lack of space on these cards we will be handing out
- *Upon sending in your story please have the photo and story either together as one document or clearly labeled with your name if it is two files*
Our Vision-
We hope to have each walker carrying with pride or pinning their lime green square to their shirt and throughout the upcoming year they are thinking of you and sending thoughts and prayers to you and your family. We want each person to have a personal touch and be able to take ownership in the walk itself so they are not only walking for a cause but also walking for an individual.
If you would like further information regarding the walk- we encourage you to visit our website at www.lymewalk.org or e-mail Victoria Wilcox at [email protected] Posted by bettyg (Member # 6147) on :
victoria, i forwarded your email to my lyme group list.
a reminder here on what victoria wants is:
ONLY TWO INCHES MAX OF INFO ON EVERY ONE OF US!! **********************************************
they are limited on room.
V, did you get mine ok way back when? it was at time during of 1 of 2 hospitalizations for you. Posted by kam (Member # 3410) on :
forwarded your message to AZ's support group
Posted by Tincup (Member # 5829) on :
Up for ding dong me... so I can find it again.
Posted by victoria (Member # 11267) on :
May 15th is just around the corner and we only have 20 stories!!!
Guys, we can't make this ideaa a reality without your help!!
Posted by bettyg (Member # 6147) on :
wow, only 20 stories to date....
at least you got mine on the 2nd time around....
how about making a post in MEDICAL about it, and then show the SUPPORT LINK, and ask folks to make ALL REPLIES HERE!!
you've worked to hard/long on this to be a DUD now! Posted by blueaboutlyme (Member # 15261) on :
I would be happy to do this, but I have only had symptoms for seven years, and I was just very recently diagnosed.
It is a very long and complicated list of symptoms and surgeries, though.
I would keep it short, of course.
Am I still a good candidate?
Posted by bettyg (Member # 6147) on :
blue, 2" total is all that can go on back of tshirts is what Victoria told me!! hard to do! Posted by victoria (Member # 11267) on :
Remember any one can do this!
Posted by bettyg (Member # 6147) on :
how many WALKERS have you signed up?
and you only have 20 MEMBERS PHOTOS AND STORIES TO DATE!!
come on folks; this is an easy task to do: 2" only of info about your lyme disease;
when/where yu got it; etc.
these high school girls, victoria and sarah, have worked very hard on this AWARENESS PROJECT! let's all pitch in to help them!! thanks everyone! Posted by victoria (Member # 11267) on :
As of right now a week or so into pre-registration we have 90+ walkers... Without any teen walkers that will be registering next week at school.
I would hate to have to just have the same 20 stories circulating because no one was willing to step up to the plate.
I would be willing to take stories of those who have passed on as well- ALL should be recognized in this effort.
Thanks in advance!
Posted by bettyg (Member # 6147) on :
vic, i just posted this link to another lyme group i go to occasionally; hopefully, THEY will chose to particiate in this wonderful AWARENESS WALK representing EACH ONE OF US!!!
vic and sarah, thanks for all the work you 2 have done on this!!! a labor of love! Posted by disturbedme (Member # 12346) on :
Hey, Vic.
Just asking that you already got my story, right? (I AIM'd it to you!)
I love this whole idea!
Posted by KirstenS (Member # 15146) on :
Hi Victoria, I sent you my story along with a photo.
What a wonderful idea! Thank you for doing this for all of us. Please let me know how it went.
Best of luck to you and everyone walking! Posted by victoria (Member # 11267) on :
Thank you!
Keep the stories coming!
Posted by bettyg (Member # 6147) on :
vic, i got someone interested from another lyme board!
she will send you an email as she's not good with pc and would to send this to you SNAIL MAIL; her name is CONNIE! Posted by victoria (Member # 11267) on :
Brava! Betty G.!
Wonderful work. I continue to hope and pray we will have enough stories!
Victoria
Posted by bettyg (Member # 6147) on :
victoria, how many stories are you up to?
you had around 100 walkers last time you/i talked...
come on everyone, please help victoria and sarah out even if you don't want to send them a photo.... 2" only VERTICAL length is all they need from you! Posted by victoria (Member # 11267) on :
To date we have more walkers- don't know an exact count but still rising- we're getting registration forms everyday... And we get a Lyme story like twice a week! Please keep them coming! thanks!
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