Pam Weintraub, author, Cure Unknown: Inside the Lyme Epidemic.
[ 18. June 2008, 04:48 PM: Message edited by: Pam Weintraub ]
Posted by kam (Member # 3410) on :
Thank you for your advocacy.
Posted by Tracy9 (Member # 7521) on :
HI Pam,
Blake and I plan to be there, health permitting! I've been looking forward to it for a long time; it will be nice to see you again!!
Tracy Will
Posted by valymemom (Member # 7076) on :
Pam
Everyone from Natcap on Sunday whom I have spoken to can not thank you enough for your six years of investigation.
You peel back the layers of the tick borne diseases health crisis so beautifully. The mysteries unravel page by page and you have achieved a remarkable study to propel the demand for more research and conversation.
I encourage anyone who can make the drive to go hear Pam and buy her book for family and friends.
You are getting wonderful reviews, Pam; the last one I read was from a Yale professional (I forget name and title)
What an accomplishment!!!!
Posted by liesandmorelies (Member # 15323) on :
Pam
CONGRATS!!!! I have been posting about the unveiling of your book on lymezone.org.( I am the same name over there too)...
I just want to personally thank you for your advocacy and your voice, as you represent all of us. I can't wait to read your book.
I wish you much success with this endeavor, as I am tired of the "Lies and more lies" that are told regarding our horrible disease. If there is ever anything I can do to help you, please let me know.
DIE LYME DIE!!!!! Liesandmorelies
Posted by lymeout (Member # 8045) on :
How I wish I could be there. I'm glad I got to meet you at Nat Cap. I knew from the chapter I read online that I would like the book; but I had no idea how deeply it would impact me. I haven't finished yet, but as I read, I am finding such validation - the doubts piled upon us by skeptical doctors and family members, the agonizing decision to "walk on the wild side", wondering if we were hastening our daughter's demise. You have set my mind at ease for all those decisions and have given me courage to squarely face the doubting doctors and family members and say, "Here, read this! And then we'll talk!"
I bought 5 copies: three to circulate, one for my daughter and one for me to read over and over, until I absorb it all!
Please keep us posted on your future events. May God richly bless you, Pam!
Cindy
Posted by AliG (Member # 9734) on :
I was saddened that I couldn't make it when you were in NY & I'm not going to be able to make this one either.
Any chance you may be coming to NJ?
Posted by lymednva (Member # 9098) on :
There is a list of upcoming book signings and speaking engagements on the site she mentioned.
I think it will probably be updated as she adds to her list, so keep looking back if you don't see one near you yet.
Drats! I missed NJ, it was the first one. There is one that I wonder if I could make it to:
Thursday, June 19, 6:30 p.m. - Launch Event Co-sponsored by St. Martin's Press and Columbia University at the Arader Gallery in New York, Special Panel on Contested Diseases; click here for more information.
I'm wondering if that one is open to the general public. ???
Posted by Pam Weintraub (Member # 15718) on :
Ali --The Columbia event is closed to the public because it is largely for the media. In some other venues ie in Framingham we intentionally did NOT invite the media but only the community. The bookstore and library events are for the public. I hope to be adding a few more events, to take place during the summer, including one in Dutchess County. I will keep you posted. Pam
Posted by Lymetoo (Member # 743) on :
Sounds wonderful, Pam!! I hope to buy the book!
Posted by hcconn22 (Member # 5263) on :
Argh....we were too ill to travel to Framingham today. We are very disappointed, and wanted to go so badly.
I flew in from my daughter's graduation in Oregon late last night and my wife has been herxing for over a week, so we missed this event which we had been looking forward to.
We did pre order the book on Amazon several months ago, guess we will have to wait for that; unless we can make it to another book signing event.
It sounds like today's event however would have been the perfect setting to have been at, dang it.
Posted by lymednva (Member # 9098) on :
Blake, there are several other signings in CT. Perhaps you and Tracy can make it to one of those.
Posted by Tracy9 (Member # 7521) on :
Thanks, Diva...I looked, they are all REALLY far away. The Framingham one would have been closest, actually, only about 45 minutes.
Oh well....anyone there have any report on how it was?
Posted by shazdancer (Member # 1436) on :
Pam,
Just received my copy in the mail, and have only had time to go over the index and read a few passages. (It's the librarian in me, looking at the index, lol.)
I have 2 words:
THANK YOU.
Posted by kam (Member # 3410) on :
Hurray! I was able to read Chapter One on Line.
Sent an email off to local public library asking them to consider ordering it along with web site url.
Giving my brain a rest and then will go back to read more that is on line...the intro, etc.
It may be a month or two before I can do that due to limited reading skills.
I have the need to find out how your son is doing if at all possible.
Posted by shazdancer (Member # 1436) on :
When you go to recommend this to your local library, be sure to tell them the book was recommended by Library Journal, which is the journal of the American Library Association. Their recommendation carries a lot of weight in the library field.
-- Shaz
Posted by Pam Weintraub (Member # 15718) on :
Thank you all for an interest in my book, CURE UNKNOWN. I want to clear up the questions about distribution.
The book is now in bookstores across the US, from NY to CA to Maryland: At Borders, Barnes and Noble, Walden, etc. They are also available online at Amazon. Hopefully it will be in many libraries.
As to sale and donations --those monies are donated by the sellers themselves. If someone has signed on as an official book seller with my publisher, St. Martin's Press, they may contribute their entire profit (up to 50% of the cover price) to anyone they want, but the next such fundraiser I am aware of will not be until July 12 in Ridgefield, CT. The monies collected there will be donated by the seller toward studying ticks in Connecticut, a very worthy and important job.
Again, meanwhile the book is available in most bookstores --so you can just pick it up.
You can see my upcoming tour stops here, including events next week in Stony Brook on Long Island and in Stamford, CT. Pam Weintraub
I just read chapter 1 on your website. I am hooked, and also just ordered it from my local bookstore. It will be in next week.
Thank you Pam for your hard work and dedication.
Posted by Tracy9 (Member # 7521) on :
Pam, How many books do you need to purchase to be a seller, and hold a fundraiser?
Blake and I bought two copies so we didn't have to fight over who got to read it first. He is finished, I am about halfway.
We cannot say enough about the value of your book. It is amazing. We are giving one copy to our pediatrician to read, and keeping the other.
I have about 25 people I wish I could buy the book for.
Everyone in America and the world for that matter should read it.
I think this is probably one of the most important books ever to be written. I wish there were a way to have every doctor read it.
I hope there is a wave beginning, that word of the book's importance is spreading, and that more and more people will have to have it, as we all did.
I'd love to see evidence of that.
Blake suggested trying to get it on Oprah's Book Club list? Any efforts underway for that?
Thank you for rocking the Lyme World with your book.
Posted by lymeout (Member # 8045) on :
Pam, I think you said that you feel that the researcher in comparative medicine - SB -is one to watch for possible breakthroughs. Do you feel that he is independent of this group who are controlling everything? I ask because I just saw his name listed as an advisor to the ALDF. If you go to their website and click on the "Learn More ABout Chronic Lyme", the only thing it links to is the Forbes article that was such a hatchet job on lyme patients and literate doctors. I can't imagine any self-respecting person associating with a group who would debase their own professionalism with such tacky and immature behavior! He probably isn't even aware of it; but I would like to think that if he were, he would disassociate himself from them!
I apologize for bringing this up on this important thread. Is there a more appropriate place to discuss things like this?
By the way, one person reported that she got the last copy available from her neighborhood bookstore. I'm guessing sales are brisk! This book can open some really important doors as far as public awareness and changing the opinions of practicing physicians if they take the time to read it!
Posted by Pam Weintraub (Member # 15718) on :
Tracy --I think 20-25 books can qualify someone as a seller. Send a message and I will put you in touch with the publisher if you want.
re: Dr. Barthold, I feel he has a deep understanding of the Borrelia organism and that he has pursued his vision --even if quietly-- with integrity and an embrace of nuance and complexity. He is a basic researcher who does not care to get involved with the Lyme fight or the patient advocacy. If he were not independent he would not have published this work. I understand that he ALSO is adviser to the patient-founded and run NRFTD. He might provide balance to the ALDF.
Pam Weintraub
Posted by valymemom (Member # 7076) on :
Pam
Did you see your book and Andy's movie are both mentioned with a short description in the Washington Post Health section?
Posted by Pam Weintraub (Member # 15718) on :
valymemom --I did see it. Thanks! pw
To all, remember the talks and signings this weekend, in Stony Brook out on Long Island and in Stamford CT:
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