LymeNet Flash: non profit...need ideas!

This is topic non profit...need ideas! in forum General Support at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/20159

Posted by kgaTX (Member # 15314) on :

Hello all,
I have been ill for over 10 years, and I am finally starting to feel better after 2.5 years of treatment. Now that I have regained some strength, I want to start giving back and helping the Lyme community.

I am starting a stationary and custom invitation business with 2 other women and they have graciously allowed me to set up a non-profit organization that will sell a line of our work with the entire proceeds going to the Lyme cause.

Here is the problem.... I don't know where the money would be best used! I have thought of turn the corner, research centers such as columbia or individual researchers, ILADS, Texas Lyme organizations,etc.

I am just wanting some feedback! Any ideas and suggestions welcomed, I just want to see the money go to a place that would further the cause for better scientific research and patient care.

thanks!

Posted by bettyg (Member # 6147) on :

you came at the right time!

read down thru support here....

look for STYMIE LYMIE/DOC DAVE's post about starting a charity for this!!!

use for people getting lyme appts., travel, treatment since so many have LOST EVERYTHING.

if you are interested, post there, and show your above link to his too!!!!

we need as many working together for a good cause! they need treatment now; research TAKES YEARS!!!

so glad you posted, and a big thanks to you/friends for starting this !!!!

May God bless you/yours for giving back! [group hug]

Posted by kgaTX (Member # 15314) on :

betty, thanks for your thoughts!

I can't seem to find the topic you mentioned though....

Posted by bettyg (Member # 6147) on :

here it is, he started a new one too and that's in MEDICAL.....

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=068232

hope you 2 can connect! [group hug]

Posted by kgaTX (Member # 15314) on :

thanks for your responses! anyone else?

Posted by Keebler (Member # 12673) on :

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You'll need to see an atty. and get the rules for setting up a board of directors.

you'll also need to determine if it will be non-profit or not-for-profit. Slight distinctions and rules may vary by state.

It may be easier to set up a grant program with an existing agency than to file for and pay expenses as a 501 (c) (3) agency.

In some cities, the United Way can direct you to the top specialists. Librarians are great resources, too. Your own state's government will have the guidelines for state rules and registration.

Good luck - it's great to set up some sharing experiences.

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Posted by bettyg (Member # 6147) on :

hi there,

go to the link i told you about above,

cobweb carol put 2 non-profit links on there telling how to set things up!
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Posted by kgaTX (Member # 15314) on :

Thanks for your replies everyone!

I wanted to restate what I am asking for.... I am curious where you think I should donate the money, where it would best be used to further the lyme cause.

I have the setting up part under control, I just want to make sure I put the money where it will be used best.

Thanks!

Posted by bettyg (Member # 6147) on :

"my goals is to raise enough money to supply every library and school in the state of WV
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with a copy of both Under Our Skin and Cure Unknown"

why not start with your HUGE STATE OF TEXAS since there is so much IGNORANCE there that you lsot so many llmds ???