Hi! So ok here's my story....I tested positive for lyme disease in the fall of 07. It was a fluke test the nurse practioner did because I went in with neck pain and no injuries. They started me on a cycle of doxy for 4 weeks. Then nothing really happened. I felt ok. Then all of sudden about a month ago, I couldn't move! My entire body hurt!! It was really scary. I went back to the doctor anfd they put me on doxy again for two weeks. Then I got a little better. They also referred me to a arthritis specialist? He said my lyme tiders had gone down??? No idea what that means. He also said I had a vitamin D deficiancy?? It still doesn't explain why I couldn't move for almost a week! Now my family doesn't believe I have lyme. They don't understand the constant pain I am in and none of my docs seem to know what they are talking about. I have no idea how long I have had this disease. I have worked bathing and training dogs for 5 years. I could have gotten it at any time. I dont specifically remember the bulls eye, but it could have just been in an unusal spot. So anyway, that is my story so far...I posted a topic hoping to get some referralss to a doc that know what he/she's doing! Thanks for reading me!
Posted by Clarissa (Member # 4715) on :
Hi newbie,
Just breaking up your paragraph so it's easier for some of we neuro lymies to read (vision problems). You'll get more responses that way! Welcome!
Hi! So ok here's my story....I tested positive for lyme disease in the fall of 07. It was a fluke test the nurse practioner did because I went in with neck pain and no injuries.
They started me on a cycle of doxy for 4 weeks. Then nothing really happened. I felt ok. Then all of sudden about a month ago, I couldn't move! My entire body hurt!! It was really scary.
I went back to the doctor and they put me on doxy again for two weeks. Then I got a little better. They also referred me to a arthritis specialist?
He said my lyme titers had gone down??? No idea what that means. He also said I had a vitamin D deficiancy??
It still doesn't explain why I couldn't move for almost a week! Now my family doesn't believe I have lyme. They don't understand the constant pain I am in and none of my docs seem to know what they are talking about.
I have no idea how long I have had this disease. I have worked bathing and training dogs for 5 years. I could have gotten it at any time. I dont specifically remember the bulls eye, but it could have just been in an unusal spot.
So anyway, that is my story so far...I posted a topic hoping to get some referralss to a doc that know what he/she's doing!
Thanks for reading me!
Posted by Clarissa (Member # 4715) on :
First of all, send your family all of these links:
Please watch this eye-opening video titled "Under Our Skin" regarding Lyme Disease that is being viewed country-wide.
Secondly, you DEFINITELY need togo to a Lyme Literate Medical Doctor (LLMD) so it's good that you posted seeking doctor question.
The doxy probably didn't kill all of the Lyme AND you may have some coinfections from that same tick.
Coinfections needed to be treated with different antibiotics. If you do a search for Bartonella, Babesia, Ehrlichia and mycoplasma you'll see that more testing is necessary.
Don't panic! You're on the right path and a LOT sooner than most of us were and have still gotten better.
Check out those links yourself because they will help to educate you, too.
Hang in there and I'm sure more people will be responding soon.
Best,
Posted by k9trnr (Member # 16539) on :
Thanks!! I appreciate the help!!
Posted by bettyg (Member # 6147) on :
k9,
welcome; glad you found us!
clarissa gave you excellent advise above!!
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
see my newbie package info; click on link at bottom of my package. @ http://tinyurl.com/58eyou Posted by tinkerbelle kisses (Member # 16661) on :
Hi! I'm new here too. My daughter was diagnosed with chronic lyme in September of 2005. She was being treated by Dr. Donta out of Boston up until Dec of 2007 when he just seemed to get too busy and sort of dropped her. Before he dropped her, he had taken her off all meds and was planning on starting her on a new cycle and just never answered any of my posts or calls. We put her on teasel root tincture and it really helped her alot. Recently however, she's been really syptomatic and she feels like she's worse than she ever was. I got her an appointment with Dr. Jones but it's not until the 20th of December and I still have to find out how to pay for it since my insurance will not pay for it. She's 16 and still trying to have a life in spite of this disease. So, that's my story. I "m just glad to have a place to go where so many other people are going through the same thing. It's really nice to know we're not alone. Posted by doc (Member # 14471) on :
tinker , just so u no your not to post doctors names . plz edit your post . click on pencil to edit . tkx ,Doc
Posted by aklnwlf (Member # 5960) on :
Welcome to K9trnr and Tinkerbelle!
Glad you found us here at Lymenet!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by doc: tinker , just so u no your not to post doctors names . plz edit your post
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