LymeNet Flash: Need info on Dr. Z in Chicago

This is topic Need info on Dr. Z in Chicago in forum General Support at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/20298

Posted by SickofLyme2 (Member # 16544) on :

Hello all!

This is my first post! [Smile]

I have had Lyme for 5 years (dx Aug 2003), been treated with doxycycline for 3 weeks at first. I saw Dr. D in March 2005. Did tetracycline for 3 mos, relapsed, then did 6 mos. I am now on my third course of tetracycline after having been symptom free for about 8 months. I am trying to hold steady with the tetracycline until I can see Dr. Z in Chicago on Aug. 5. However, I know the tetracycline isn't getting to the infection in my brain, and I don't know if Dr. Z will be able to help me.

Does anyone have personal experience with Dr. Z they can tell me about?

Thanks in advance!

Katie

Posted by bettyg (Member # 6147) on :

katie, welcome; so glad you found us!

anyone that is or HAS BEEN DR. Z, CHICAGO PATIENT, please reply by PM to katie!!!

katie, check my profile for a private message i sent you with other llmd recommendations!!
*****************************************

Posted by Lymetoo (Member # 743) on :

All I know is that he is NOT Lyme friendly. I'll see if I can bring up the info on that.

here's one link.. going for more:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=005701

See the links contained in my response on this thread:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=006249

Posted by "Munch"....

"I went to see Dr Z in Mar 2007. They told me he is NOT a LLMD on the phone.

I called today to verify and the person that answered the phone said they didn't know what a LLMD meant.

I was given a diagnosis of "post Lyme Auto Immune Syndrome." Would a real LLMD diagnoses that?

Struck me and my DH as odd because I never got the Lyme diagnosis first so how could I be a "post"?

For that dx -- Zithromax.

He also had a list of supplements like bromelain, papain, amino acids, multi-vitamin, sacchromyces boulardii and some others like Co Q 10, SAM-e, and fish oil.

Got a magnesium shot which did nothing.

We argued about the use of hormones. He said hydrocortisone was not a good idea. Convinced me to lower my dose which put me back in bed. Cortisol is the one thing that gets me vertical rather than horizontal.

He doesn't like HGH and won't prescribe it for any reason. I knew my IGF-1 was low but couldn't get it from FFC.

I've found a real LLMD and an endocrinologist. Now I have the proper diagnosis and treatment.

The endocrinologist says my HPA axis is shot. Now I have a diagnosis of AGHD or adult growth hormone deficiency and adrenal insufficiency (or Addison's disease) to go along with hypothryoidism."

Posted by SickofLyme2 (Member # 16544) on :

Thank you, thank you, to Bettyg and Lymetoo for your info on Dr. Z [Eek!]

. I am going to cancel my appt with him and work on getting one with a real LLMD. Thank you for your other suggestions and for the newbie package. I haven't had a chance to read all the way through it, but it looks like a wonderful arsenal that all of us with LD need! [group hug]

Katie

Posted by bettyg (Member # 6147) on :

katie, best wishes to you; we feel you made the right decision to cancel!

hmmmm, never thought of my newbie package as an "arsenal" before!! you are right! [lol]

print off the preparing for 1st llmd appt. [Wink]

Posted by SickofLyme2 (Member # 16544) on :

Thanks again, Betty. Can you give me an idea about what page I can find the info on "preparing for 1st LLMD appointment"? I've skimmed the material and used the "find" function, but had no luck.

Thanks,
Katie

Posted by bettyg (Member # 6147) on :

boy was i off on title!! [Smile]

Making the most of your LLMD visit

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005