LymeNet Flash: child #2 w/lyme_bart now too, needing some support from other moms

This is topic child #2 w/lyme_bart now too, needing some support from other moms in forum General Support at LymeNet Flash.

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Posted by just_ma (Member # 17111) on :

Hello everyone,
I dont know if any of you remember me, I was on here about 3 years ago. I used to be "ma" but cant remember my login info. So now I'm just_ma.

Anyway. Here I am agian.

My son, now 17 has refused to take his meds for the last year. His condition has just stayed the same.

There is nothing I can do to get him to see his LLMD, or take his meds. Saddly I have tried everything.

On Friday, my daughter (4) was dianosed with lyme & bart by her regular doc. Her blood work is almost identical to my sons. Only to be treated for 20 lousy days.

She has responded well to the antibiotics already with a reduction in fever. So I will be making that call to NJ tomorrow.

Money is a huge factor, even just to get her to NJ. I need to contact Lyme Aid For Kids, if it is still available.

I also have lyme/bart, so of course my own symptoms are flaring because I'm so upset.

I just feel so broken. I hate it that my whole family is sick from these rotten TBD's.

I guess I just need some extra support. I've got the fight still in me, but I'm so heartbroken. She is just a little girl.

Just_Ma

Posted by bettyg (Member # 6147) on :

welcome back ma; sorry to read of your daughter too! [group hug]

sending my prayers to you all... [Wink]

Posted by elle108 (Member # 11730) on :

Welcome back Ma..sorry to learn about your daughter...I came here, like you, because of my teenaged daughter's diagnosis after years of misdiagnosis.

The good news is that you know what to do with your little one. Not sure which LLMDyou use in NJ, but ours is great and has helped our fmily tremendously.

Elle

Posted by Lymetoo (Member # 743) on :

Welcome back, ma!! I just stopped by to say hello and bring this up to the top.

I hope your kids get better soon. I can't imagine what it's like to have your whole family ill.

HUGS!! [group hug]

Posted by just_ma (Member # 17111) on :

Thanks very much for the welcome backs! I've got my chin up a little higher and have prepaired myself for the fight ahead.

I think I just needed to re-fuel.

I am taking her to the local infectious disease duck today... just to see if he'll treat & for how long. (just because he takes our ins. the only referral I can get for her from reg. duck)

Hopeing I can get her the right meds at least for a couple weeks til I can get her to NJ to see the best, most wonderful LLMD in the world.

I'm sure I'll be posting in medical when we get back.

You are all always so supportive, thanks so, so much!
Just_Ma