I was diagnosed with neuro lyme by a LLMD last Friday. I had a positive PCR urine test after having negative ELISA and Western Blot tests. I've had undiagnosed neurological symptoms for over 3 years. I called my primary care physician in hope that my insurance company will cover the cost of the port and IV treatments (at least for one month). My primary care physician is doubting the accuracy of the PCR test (IGenex did the test), and wants to talk to an infectious disease specialist at a local hospital. My primary care physcian indicated that he does not want me to treat for something I don't need to. I'm so confused. I don't understand why there is so much controversy around this issue, and how do you know if you're doing the right thing?
Posted by Lymetoo (Member # 743) on :
Cheryl...If you'll post this in Medical you'll get many more responses.
Lyme is very controversial. I don't see how they could dispute a PCR test....but they'll try.
Find and get to the best LLMD you possibly can,,,then and only then will it get treated correctly!!
Posted by Doomer (Member # 11013) on :
Post in seeking a doctor asking for names of LLMD"S in your area. Or contact the support groups for your state.
Please don't rely on an infectious disease doc to treat your lyme disease. You need to find an LLMD who will know how to read your test results and treat your lyme disease and coinfections any other doctor will not have a clue.
Cure Unknown, by Pamela Weintraub, is a new book on lyme disease that explains everything.