This is topic Out of about 50 or more friends that I once had, only 2 understand me Now... in forum General Support at LymeNet Flash.


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Posted by eric555 (Member # 18343) on :
 
Out of about 50 or more friends that once I had, only 2 understand me Now...

Anyone else feel this way ???


[dizzy]
 
Posted by kehren (Member # 15220) on :
 
Friends, family, spouse, kids.....

everyone has thought I was crazy at some point and many still do.

It's the never ending struggle of trying to educate people so they might understand.

As time is passsing though, it doesn't really bother me any longer what people think.

The people who are worth anything have stayed or come back around and have opened their mind to understand.

The rest we don't need.
 
Posted by joalo (Member # 12752) on :
 
It's quality not quantity that counts!!!
 
Posted by hcconn22 (Member # 5263) on :
 
Yep, same here but NO friends, just my mom. Now only have lyme friends...
 
Posted by carly (Member # 14810) on :
 
Human nature is a funny thing, isn't it.
 
Posted by LisaS (Member # 10581) on :
 
Yes, I feel this way too. My friends ARE NOW YOU GUYS IN THE COMPUTER!
 
Posted by Robin123 (Member # 9197) on :
 
Eric, quite typical - people usually just don't understand. Our lives have been altered in significant ways by a still poorly understood condition (hopefully that will change soon as more publicity gets out), yet most of us look ok.

Hey - maye we oughta start something here - how about if we could figure out how to get something visible, like green measles, or something like that? Little green spots showing up all over us? Then people would see something... [Big Grin] (that's a green measle with some teeth)
 
Posted by Liz D (Member # 16739) on :
 
I have become reclusive because I just cant stand people telling me how good I look.... with the unspoken heavy in the air of 'how can you be sick if you look so good?'
 
Posted by AZURE WISH (Member # 804) on :
 
Yes ,,, the friends i had before i was disabled are long gone...

besides here at lymenet i have found understanding people on chat and lymefreiends

chat link :

http://client11.addonchat.com/sc.php?id=306727

lymefriends link (like my space for lymies)

www.lymefriends.com
 
Posted by eric555 (Member # 18343) on :
 
quote:
Originally posted by Robin123:
Eric, quite typical - people usually just don't understand. Our lives have been altered in significant ways by a still poorly understood condition (hopefully that will change soon as more publicity gets out), yet most of us look ok.

Hey - maye we oughta start something here - how about if we could figure out how to get something visible, like green measles, or something like that? Little green spots showing up all over us? Then people would see something... [Big Grin] (that's a green measle with some teeth)

Robin, if ever in Phily, look me up, since i still know how to draw real well, I can make some measles on you in any color you wish, this just might work...

[Wink]
 
Posted by randibear (Member # 11290) on :
 
sad but true.

i even have a nurse friend and she doesn't believe me.....

you loose so much....

and when your spouse doesn't believe you, it's even worse....

we are truly alone....
 
Posted by Barby (Member # 18348) on :
 
quote:
Originally posted by Liz D:
I have become reclusive because I just cant stand people telling me how good I look.... with the unspoken heavy in the air of 'how can you be sick if you look so good?'

I HATE hearing that. It really makes me mad now. So I tend to not talk about it unless I have to. Luckily my family listens. Not sure how they really feel about it... but they will support me no matter what. Also, I agree with a previous poster, it's quality that matters.
 
Posted by eric555 (Member # 18343) on :
 
barby same here,

actually heard it again from my very close friend that i grew up with,

he further added for me to stay offline as it only adds to my emotional stress and not my cure.

he says the more i research about lyme here online, the sicker i will think i am,
and so i shall be more sick.

so i guess its a sign that he admits that im sick even though he says i look perfectly fine and am very good looking.

i dont know what to do or say to that.

i guess just very upset.
 


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