This is topic Family member got inner ear removed for vertigo, before I knew about Lyme in forum General Support at LymeNet Flash.


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Posted by Janice70 (Member # 16319) on :
 
He had severe vertigo, and finally got his inner

ear surgically removed.


I don't know if he would have agreed to get

tested for Lyme even if I knew about it back

then, but of course I would have pushed really

hard for it. But now it's too late, and he lost

an ear.


He still gets slight vertigo episodes (not

nearly as bad as before), but is trying to keep

that a secret, for some reason.

He lives in a Lyme endemic region, and has

noticed several tick bites throughout his life.
 
Posted by Lymetoo (Member # 743) on :
 
Wow. That's really sad. How can you do without an inner ear??

I understand about people not listening. Happens all the time.
 
Posted by FancyRatFan (Member # 3088) on :
 
Hi Janice,


I was wondering the same thing.

"How can you do without an inner ear"

I didn't even know you can have that done.


I can relate a little since for me it wasnt' a family member. I had a friend who had most of the symptoms that I had but to a lesser degree. The two that she had that I didn't have were Vertigo and Mycoplasma. (sp?) We lived in different areas. We'd talk about our experiences and different diagnoses through the years.

A few years later I found out I had lyme disease. Than I found out what having lyme meant. She wouldn't get tested. She told me once that she didn't want to be sick as I was.

I couldn't blame her, I didn't want me or her to be sick as me either.

She's was a very out doorsy lady. Even worked in construction all her life.

She saw some information on lyme somewhere and poiinted out one or two differences. That was enough to convince her it was not lyme.


She kept searching for answers. Sometime after my dx we stopped talking. I think about her from time to time but haven't heard a word from her.

It is sad. It's hard to allow them to keep searching, spending money when they haven't taken an honest look at the possibility of Lyme disease.

If they find out it is lyme then at least they can search in that direction.

Hopefully someday your friend will open up more to the idea.

Fancy
 


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