LymeNet Flash: Life or death?

This is topic Life or death? in forum General Support at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/21654

Posted by pmerv (Member # 1504) on :

Do you people know that we have a new Lyme Bill? It's similar to last year's bill, and we are talking about it on Activism. Please come over because activists can't do this alone. Everyone has to do their part.

Are we finally going to have a voice at the federal level as to how funding is allocated? The Advisory Committee gives us a voice for the first time. Please come to Activism and see how you can get involved.

LDA has made it SO EASY even neuroLymies can do it!
Go to http://cwork.com/

All of us "activists" will be working on it, but legislators need to hear from their constituents. Let's ROLL! Let's do it like we're doing it for Oprah!

[ 03-04-2009, 02:39 AM: Message edited by: pmerv ]

Posted by bettyg (Member # 6147) on :

well done phyllis; it takes us ALL working as a JOINT EFFORT in accomplishing as much input as we lyme patients have done from ALL LYME BOARDS; not just this one!!

if you are so sick you can't do it, PLEASE ASK FAMILY/FRIENDS TO EMAIL YOUR CONGRESSMAN FOR YOU !! thank you!!

i truly think with the march 28 joint PLANNING meeting with HOUSE REP FRANK WOLFE; this IS YEAR 09 LYME BILLS WILL BE ON "SCHEDULES" AND DISCUSSED AT LAST after 11 plus years !!

come and join us! we need every ONE OF YOU. [group hug]

Posted by Robin123 (Member # 9197) on :

We all need to be activists now, to the extent that we can, as public awareness momentum is building from the ongoing UOS film showings, Pam's book, legislative efforts, etc.

Little actions, big actions, it all adds up. Whatever level you're comfortable with...

Posted by pmerv (Member # 1504) on :

Please everybody, go to Go to http://cwork.com/
Do your bit.

Posted by Tracy9 (Member # 7521) on :

Phyllis,
Please do re join us at www.lymefriends.com and post this. Our site crashed and we had to start over, but we have about 350 members, who would be receptive and would do this.

I think it would be good for them to hear from you!

Posted by kam (Member # 3410) on :

Copy and pasted letter today and found out who to send it to.

Also added my own story.

Hoping to get it in the mail tomorrow.

Posted by Peedie (Member # 15355) on :

I'll start faxing after work hours. Long list. I hope I can get through.
-p

Posted by Tincup (Member # 5829) on :

Hey Peedie...

Nice to see you.. and I see you've hit 500!!!

You said.. "I'll start faxing after work hours. Long list. I hope I can get through."

Not sure if I am reading this right.. but you only need to send to YOUR legislators.. not the entire state.

I mean more power to you if you do.. but don't get overwhelmed with it all.

OK?

And thanks!

[Big Grin]