This is topic Imagining things in forum General Support at LymeNet Flash.


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Posted by Mountaineer (Member # 14085) on :
 
My family doctor thinks I need to see a shrink. That

I'm imagining things and stuck on having lyme.

I have one of those quirky things going on and just have to deal with it.

What a quack.

[ 03-17-2009, 02:09 PM: Message edited by: Mountaineer ]
 
Posted by ugagal (Member # 18471) on :
 
Mountaineer I can so relate to your experience!
At one point in my illness when no doctor could explain my left-sided hemiplegia and my myriad of other symptoms, I actually had a neuro duck tell me it was all just "serendipity" and that my very elevated white blood count was from stress!!! Sometimes you've just got to laugh to keep from crying.

Fire your family duck and find a doctor who will actually listen to you...preferably a LLMD.
 
Posted by sutherngrl (Member # 16270) on :
 
These ducks give us a lot of credit actually if they think we have such power over our minds that we can actually change our blood count.

That is so insane! What will they come up with next???
 
Posted by Starfall1969 (Member # 17353) on :
 
Yeah, I know.

My "stress and depression" are what caused my right pupil to dilate too.

That and there's obviously SOMETHING I'm trying to get out of doing that I'm convincing myself I'm sick.

Don't you just want to get a big picture of a duck and mail it (anonymously of course) to your doctor, and write on the picture, "QUACK!"
 
Posted by sutherngrl (Member # 16270) on :
 
I'm trying to get out of playing golf and travelling and having a really great life!

It's much better to feel like I'm dying instead!

If I wouldn't get arrested for harassment, I would send out some of those duck pictures.
 
Posted by Mountaineer (Member # 14085) on :
 
He also said I waste money and time going to them

and they treat me and I would not feel any better.
 
Posted by ugagal (Member # 18471) on :
 
No- you are wasting money and time on them!
QuAAAAAAAAAAAAAAAAAAAAAck!!!!
 
Posted by Keebler (Member # 12673) on :
 
-

Lyme symptoms list at www.anapsid.org.

--

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/


From the May 2007 issue of Clinical Advisor


CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -(author's details at link)


As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.

Excerpts:


Meet the players


The opponents in the battle over the diagnosis and treatment of Lyme disease are the Infectious Diseases Society of America (IDSA), the largest national organization of general infectious disease specialists, (and)

and the International Lyme and Associated Diseases Society (ILADS), an organization made up of physicians from many specialties. ( www.ilads.org )


IDSA maintains that Lyme disease is relatively rare, overdiagnosed, difficult to contract, easy to diagnose through blood testing, and straightforward to treat ( www.journals.uchicago.edu/CID/journal/issues/v43n9/40897/40897.html - Accessed April 6, 2007).


ILADS, by contrast, asserts that the illness is much more common than reported, underdiagnosed, easier to contract than previously believed, difficult to diagnose through commercial blood tests, and difficult to treat, (especially)

especially when treatment is delayed because of commonly encountered diagnostic difficulties ( http://www.ilads.org/guidelines.html - Accessed April 6, 2007).

. . .

" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."


`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.


"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."


. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.


- Full article at link above, containing MUCH more detailed information.


-===


Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.


==========================

www.jneuroinflammation.com/content/5/1/40


Persisting atypical and cystic forms of Borrelia burgdorferi and local inflammation in Lyme neuroborreliosis


===========================


This article has much attention on both lyme and Cpn:


http://tinyurl.com/preview.php?num=64y3rv

(then clink "PROCEED TO THIS SITE")


May 2008 Volume 39 Number 5 LABMEDICINE
www.labmedicine.com - American Society for Clinical Pathology


CHRONIC BACTERIAL AND VIRAL INFECTIONS IN NEURODEGENERATIVE AND NEUROBEHAVIORAL DISEASES

- by Garth Nicolson, Ph.D.

===========================


AFTER reading the articles above this will make more sense and, sadly, shows the state of treatment (and - with the new committee gathered, it is still a horrible situation for there are no real experts on the new panel):


www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Connecticut Attorney General's Office

Press Release

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008

Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.


- cont'd at link.

Printable version: www.ct.gov/ag/cwp/view.asp?a=2795&q=414284&pp=12&n=1


===============


TESTING

You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:

www.igenex.com

IGENEX

-----

There are a couple other good labs for certain tests: Fry; Clognen; Focus. Your LLMD will know. Some say MDL does good work (but I don't know if they test all the bands).


========================

VERY important to read - even BEFORE testing:

Dr C's Western Blot explanation:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077


===========

TREATMENT

www.ilads.org

ILADS

The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.


links to treatment: http://www.ilads.org/lyme_disease/treatment_guidelines.html


and

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano'sTreatment Guidelines (2008)


=====================


www.lymediseaseassociation.org

Lyme Disease Association


- In the menu to the left of their home page, you can order DVDs of past ILADS seminars. You might also be able to borrow some from your local lyme support group.

This are invaluable to understanding how these infections work. And, none of this is taught in medical schools. None.


=====================


http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=029917


treepatrol's - Topic: Newbie Learning Help Links 5/21/08


=======


http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=069262


Topic: BettyG's NEWBIE PACKAGE, 7.19.08, with TABLE OF CONTENTS FOR ALL!


======


Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates


======


Post in: SEEKING A DOCTOR

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2


======


This book, by an ILADS member LLMD, holds great information about treatments options and support measures:


http://tinyurl.com/6lq3pb (through Amazon)


THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com


========


http://tinyurl.com/5vnsjg


Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner

web site options: www.gaianstudies.org/lyme-updates.htm


================

http://tinyurl.com/5drx94


Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang

web site: try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro through www.hepapro.com


=================


http://tinyurl.com/5crsjv


Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com


==========================

FILM:

http://www.underourskin.com

UNDER OUR SKIN


DVD is $40. and worth every penny. It explains a lot.


-==


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605


MAKING THE MOST OF YOUR LLMD VISIT


From Melanie Reber


-
 


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