LymeNet Flash: New here: MS now Lyme

This is topic New here: MS now Lyme in forum General Support at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/21852

Posted by adamttt (Member # 19691) on :

Hi everyone im new here and just wanted to do a brief background of my situation.

I was diagnosed with MS in November 2002, and have slowly declineed in mobility where its now harder to walk further than 10 metres.
My balance has also suffered, and bladder problems.
These are the symptoms i have, i dont have any others.

2 weeks ago I recieved test results back from Melsisa Diagnostics (in Germany):

"I can briefly summarize your results as follows:
1) all serological tests for co-infections were negative
2) the LTT-MELISA for Lyme was positive, indicating current ongoing Lyme
Borreliosis."

So now i do have Lyme disease it makes me question if i actually have MS.

I have an appointment to see a LLMD next week where i should get their recommendation on the abx progra.

Posted by Dekrator48 (Member # 18239) on :

Hi,

Welcome to the board!!

You may actually want to move this post to medical questions so more people will see it...you can copy and paste it.

It sounds like you do have lyme.

I'm not sure what the LTT-MELISA equates to in the US, but I'm guessing it might me an ELISA here.

Many people who actually have lyme have been diagnosed with illnesses like MS, fibromyalgia, CFS and others.

Here is a link to a great presentation...scroll to frames 48-50 and read them. When you have time, I recommend reading the entire thing.....

http://tinyurl.com/db4co2

Lyme is a clinical diagnosis...means it is made based on history and symptoms and can be supported by labwork.

Did you have a western blot?

Here is some other great lyme info....check out the symptom checklists in the articles for sure....but read it all when you can.....

http://tinyurl.com/dgpvfz

http://tinyurl.com/dztby6

http://www.ilads.org/files/ILADS_Guidelines.pdf

http://www.lymeinfo.net/multiplesclerosis.html

I am glad to hear that you have an appt with an LLMD next week. That is exactly what you need.

In the meantime, educate yourself on lyme with the above resources before you go.

There are also many resources at the top of list of posts.

Good luck!

Posted by bettyg (Member # 6147) on :

Welcome; i'm so glad you found us!! You've come to the right place for education and support!

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/lyme_disease/treatment_guidelines.html

Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf

this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77378

please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!

http://tinyurl.com/Bettyg-NEWBIE-PACKAGE

***************

please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber
print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.

Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink]

otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

Posted by adamttt (Member # 19691) on :

Thanks Dekrator and Betty for this valuable information, i will go through it all when i can, thank you [Smile]

I have an appointment with a LLMD on Tuesday, so i will keep you updated on how it goes