this with me. Instead he was against me all the way.
I am angry the medical field has denied him the knowledge
and hurt he would not help me by finding out for himself to increase his knowledge. I am sorry.
Posted by sutherngrl (Member # 16270) on :
This is typical of the mainstream medical industry. One band is not a positive test result, so they just leave it at that. This is what they have been taught. It is sad but true.
Posted by jt345 (Member # 19638) on :
I am so sorry You have fell victim too the mainstream doctors. I wish I could take it away ,but no one can.
You have every right too be angry. This has just got too stop. sutherngrl is right. Must Dcctors get about one maybe two days on tic born illnesses.
Please feel free too PM me or ( I know I can speak for most here)anyone here. We are too help in any way We can.
Know that You are in my prayers. appleseed
Posted by John S (Member # 19756) on :
I wouldn't get angry at him if he was well meaning, GET ANGRY AT THE SYSTEM THAT PRODUCED HIM!
Posted by Geneal (Member # 10375) on :
Throw him into the alligator pit!
Hugs,
Geneal
Posted by Tincup (Member # 5829) on :
The IDSA is responsible for teaching them the wrong stuff.
Throw them ALL in the gator pit.
Posted by bettyg (Member # 6147) on :
i'm so sorry pinelady!
that's why it's so critical to teach every lyme/co patient here....get copies of every medical report, lab work, xrays, anything you've had done always.
sign those release of information forms to get them; PAY for them if you have too and it's very helpful for your SSDI, ss disability insurance, benefit claims to WIN your cases 1st time, 1st step!!
yes, write the IDSA HQ!
Posted by bettyg (Member # 6147) on :
i'm so sorry pinelady!
that's why it's so critical to teach every lyme/co patient here....get copies of every medical report, lab work, xrays, anything you've had done always.
sign those release of information forms to get them; PAY for them if you have too and it's very helpful for your SSDI, ss disability insurance, benefit claims to WIN your cases 1st time, 1st step!!
yes, write the IDSA HQ!
Posted by randibear (Member # 11290) on :
i understand completely. i went to my primary with a large bulls eye rash on the inside of my left leg. clearly lyme....i looked it up on the internet.
i said look at this, i just got back from camping and walking through the weeds with my dog and all, and i think it's lyme.
he told me "look stay off the internet, you're not a doctor. it's a spider rash, allergic reaction. take doxy for 2 weeks and go home".
i went back after a month saying i had an extremely hot sore neck and headache, with ringing in my ears. he said stress from visiting my mother....
forward 3 months -- blurry vision, severe joint pain, you name it....diagnosis -- stress from job...
took me over 6 months to find a llmd doctor, unfortunately a nut, then another year to find a good one.
now i'm chronic. personally, i'd like to take a, uh, thing, and shoot them....
Posted by jt345 (Member # 19638) on :
Sue that Man Take Him and the clinic for everything they have. find Yourself a guttesy lawyer and own His ***.
appleseed
Posted by Pinelady (Member # 18524) on :
I thank you all. I am sorry for us all and our families.
If I had been wearing his shoes I would pray God
would give me the grace and wisdom to look
beyond, and find the what if.
He even went so far to say in one of his
citations,"She is convinced something is wrong with her."
Duh, did he not hear me.
I could have just as well have been a crooked picture on the wall.
What did he not understand?
When I said I could hardly walk does that sound
like I was asking for antidepressants?
I am sure this is why we have LLMD's in the first
place but this has to change.
Posted by Dekrator48 (Member # 18239) on :
So sorry Pinelady!
Hmmmmm....Imagine if all of our Dr's were sued for misdiagnosing us.
I think we could certainly prove that harm was done.
You are not alone, Pinelady, not that that makes you feel any better.
Posted by jt345 (Member # 19638) on :
Way before I was I had dia. of lyme . My feet hurt so bad I could hardly work ,and a Doc. in town here(should I say HIS NAME?),walked out of the office. I looked at my chart ,and He wrote"worries alot".
Instead of trying too find out what was wrong he passed me off to apodieitrist. They made Me a pair of inserts that,cost me $500.00 . Did'nt help abit.
That Jerk still has His private practise here in town.
I want so bad to say who He was ,so no one else would ever go too Him. But I better not. My luck,He'd sue Me.
appleseed
Posted by opus2828 (Member # 15407) on :
I know how you feel. I had a positive band in 2001, an equivocal test in 2006 and finally tested positive last year. Positive according to the CDC.
My doctor always told me my lyme test was negative. Never mentioned that I had any positive bands at all. And I didn't know to ask.
Posted by Leelee (Member # 19112) on :
I am so very sorry you were misguided. It seems the way of the world with Lyme.
This won't make you feel better, but you are in good company here with all of us. I bet each person on Lymenet has been dismissed or misdiagnosed at least once.
Did you mention you were going to an LLMD now?
Best of luck.
Posted by Jin (Member # 11735) on :
Dear Pinelady, Here is a little something I learned years ago: Doctors are idiots. Many refuse to believe anything but what they were told. Medical schools are funded by the drug companies, so alternative ideas are ignored. I was told for years I was just nervous or depressed, and that I had IBS. IBS is a label they give anything that has intestinal symptoms that they have no clue what is causing it.
IBS = I do not know, But I am a doctor, So I am making this up. I spit up formula as an infant, and likely was born with Celiac Disease. Lo and behold, removing gluten has helped. However, I am still experiencing issues with digestion as well as Fibromyalgia and other things. Lyme is a good possibility. I am waiting on my Western Blots, and fortunately, my current doctor knows negative Western Blots do not mean Lyme is not an issue.
I had a situation similar to this several years ago. An idiot PCP I had was obsessed with me being mental, and missed a gallstone I had. Nearly three years later, I went to get another test where the technician informed me the very first test I had run showed the gallstone! To this day, I cannot be sure I would not be able to stop myself from squeezing that moron's neck until her head popped off!
This woman nearly ruined my life. I was forced to go through a colonoscopy, intercolisis, gastric emptying study, bloodwork, and endoscopy, all for the entire team of idiots in labcoats to tell me they thought I was nuts. I got stuck on an anti-depressant and forced to go to psychotherapy. All of it was a waste of time, money, and effort. By the time my gallbladder was removed, it nearly ruptured. I also had been told to eat a bowl of bran every single day. Guess what is loaded with gluten? Be careful with doctors, because they are likely to kill you!
Sincerely, Jin
Posted by Jane2904 (Member # 15917) on :
Yes, It is so sad. Almost been a year, since beginning the lyme battle for my daughter.
Positive Elisa, neg Wb, told no Lyme. She has allergies!!!!!
Positive WB from Igenex, treated for 8 weeks.
Still feel we are dealing with Lyme and Co infections. I feel she was not treated properly.
Pediatrician says it's all Anxiety, etc. from dealing with everything. Urgh!!!
Hope to get some understanding, when we finally see Dr. J next month.
All I can say is never give up! No Matter what the Ducks say!!!!!
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