Hey to all, I have been diagnosed with lyme back in May of 08, and have been on various antibiotics since. The disease went undiagnosed for approx 5 months prior to initial treatment. Being a police officer and workout junky, I find myself becoming very disillusioned with the longevity of my ailments. I am seeing a very well respected LLMD, but he is quite a distance away. I have been on Doxy, Menacycline(please pardon spelling)and now clarithromycin for 4 months. Some days I feel okay, but others are so challenging to get through. My primary symptoms are: pain in the hands, forearms, feet and calfs. I feel general fatigue and just plain bad. I would appreciate any opinions, support or info. Thanks to all!!!
Posted by njlymemom (Member # 15088) on :
hello Matthew
Sorry to hear you have joined the lyme community.
Take heart, it takes time but it will get better.
Have you been tested for coinfections?
What testing have you had done, and what are the results.
Good to hear that you are under the care of a LLMD.
Do your feet hurt on the bottom? This is one of our Bartonella symptoms. It does not sound like you have joint pain. How would you describe the pain?
I think that it is great news that you have been able to continue working out.
I hope it gets better for you, take care.
Posted by shelly23 (Member # 16124) on :
Hey Matt, i think we see the same Lyme doc pm me. Also i had the same pain at the beging but now like you its in my hands and elbows.
Do you arms feel weak or hands like it hard to lift things
Posted by bettyg (Member # 6147) on :
hello my old friend matt! i wandered what happened to you; we used to have some good pms between us remember? lol
i think one key is NOT OVERDOING EXERCISING! perhaps other "workout junkies" can chime in better.
matt, you're on doxy; i hope you are really protecting your skin since we burn so easy, and lyme affects many of our eyesight.
for me....lights, glare, and reflection are like looking directly at the sun; INTOLERABLE! i were my deepest RX sunglasses with wraparounds over eyeglasses frame, and make sure i wear LONG sleeves/pants always.
CAP IS NECESSARY; any driving; use gloves!
good to see you again, and you are still working thru all this treatment! uffda... Posted by matthew (Member # 16072) on :
Hey Betty, How are you? Thanks for all your feedback. I didn't disappear, just been caught up in this horrific economy. I have been trying to sell both business and home. They seem as hard to dispose of as the Lyme. Anyway, I'm not currently on Doxy...That was during the initial diagnosis. I am now taking clarithromycin (500 mg twice daily). its weird, I actually felt good today, but I know another downward spiral is potentially around the corner. I'm gonna take a trip to see my LLMD in about two weeks. I deeply appreciate your continued support. Kindest regards, Matt
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