LymeNet Flash: Girl would prefer cancer to CFS -- See article

This is topic Girl would prefer cancer to CFS -- See article in forum General Support at LymeNet Flash.

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Posted by T2JRW (Member # 10663) on :

Check out this story from Australia about Chronic Fatigue Syndrome.

Those who like to post replies to newspaper articles ought to suggest the possibility of Lyme.

http://www.news.com.au/story/0,27574,25926343-421,00.html

Posted by Need Lots of Help (Member # 18603) on :

I understand this girl completely. It is so sad, I hate seeing kids being diagnosed with this. It is such a waste that I lost so much time on this diagnosis when I actually had lyme.

And, you tell friends and family, I am tired, I have chronic fatigue and really no one cares. You are dying, no limbs are falling off, but still, we are sick!!

Shalome

Posted by bettyg (Member # 6147) on :

my reply there ...

Have you been tested for chronic Lyme/TICK disease? Have you ever had a bullseye rash or have an EMBEDDED TICK?

If yes, please join www.lymenet.org discussion board! I have info galore to share with you on being tested by a western blot igm/igg blood test sent to Calif., USA.

Have you been check for worm parasites?

I've read all your stories here; they sounded like mine too. I was misdiagnosed with so many illnesses/symptoms; over 125!

I've had CHRONIC LYME disease for 40 yrs. this xmas! 34.5 years MISDIAGNOSED by 40-50 drs! UNACCEPTABLE.

300 other diseases mimic lyme: CFS, fibro, ALS, MS, parkinson's, alzheimer's/dementia, bell's pulsy, most mental illnesses.

part 1 of 2

part 2 of 2

Many others mentioned the things I would have: Detox,

Are you allergic to gluten/wheat or casein/DAIRY products? If yes, to eliminate them completely from diet.

Treating for worms that take over the body.

I was 21 and diagnosed with mono/EBV back then CFS/FIBRO.

I also have sleep apnea and use a CPAP to sleep. My sleep study showed I get NO DELTA 4 sleep where your body rejuvenates/heels while you sleep; I know this has gone on 30-35 years with no delta 4 sleep.

I believed all my drs. over the years; then I got much worse and started doing my own resarch investigations! Glad I did.

Oral/IV antibiotics are needed plus herbs/supplements to help get you into remission.

Moms can have CONGENITAL lyme babies!

I hope moderators delete Damion/MEXICO's nasty post. There was 1 other one too.

Alex, good luck.

To all, go to www.underourskin.org and watch the 10 minute lyme trailer.

If you can get ahold of this, have your library order the UNDER OUR SKIN DVD, 104 minutes of 4 people's lyme stories, the politics involved by IDSA, infectious disease society vs. ILADS, intl. lyme associated disease aka chronic lyme literate mds!! My best to you in getting into remission.

Posted by Tincup (Member # 5829) on :

BG..

You rock!

[Big Grin]

Thanks for posting this T2.

[Big Grin]

Posted by bettyg (Member # 6147) on :

tincup; why thank you; and i'll take my bow... [Wink]

someone had to mention this!!