I know some of you have given me great advice as far as treatment and doctors. I appreciate that. I am starting treatment today. Doxy - 100 mg and work my way up. I had strong reaction last time I tried and ended up in ER. I have babs, lyme and ehr. My family is pressuring me to start again today. I am very sick, and they really don't understand this disease or the complications involved. They think "after doxy, I'll be better". Ugh, I wish.
My symptoms involve brain, spinal cord, and CNS issues, as well as vertigo, brain zappings, seizures, SEVERE pain in spinal cord and chest, as well as hearing and light sensitivity, severe twitching, trouble walking, you name it, I got it.
Anyway, right now I'm in Andale Kansas, a small town outside of wichita. (they have never heard of chronic lyme). They have already tried to admit me into a psych facility cause they think that Depression is the cause of some of my symptoms. Just wait till I begin treatment!
Please pray. I'm either going to die trying to fight this, or die locked away in a mental facility. I would prefer to die trying to fight this. Thanks everyone.
[ 09-11-2009, 01:12 PM: Message edited by: Brandimc ]
Posted by trishee (Member # 9699) on :
your story is that of many lymmies. I am praying for you. Please be sure your doctor is ILADS certified as these are the only that will check for co infections too. If we don't treat coinfections we don't get improvement. We know now combination of antibiotics and herbals is working to get people to remission. I've made it and you will too. Be sure to report all herx symptoms to your LLMD and be sure they are treating co infection as well. Treatment is desperately hard and long but you will find your way. I was helped my many on lymefriends.com. So many people gave me the support and strength I needed thru my 3 years of mostly IV treatment. Understand lymmies also suffer from thyroid deficiencies, GI problems like Celiacs disease and gastroparesis. All need to be cared for so your body can recover. I am now on gluten free diet forever. I have my life back and am here or on lymefriends if you need me. blessings, Trish
Posted by bettyg (Member # 6147) on :
prayers headed your way brandi hugs/kisses
wow, don't let them put you away!
please print this off and file it away somewhere; it should help you/all...
Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients .....MUST READ!! EXPLAINS EVERYTHING !!
written by Marian Rissenberg PhD & Susan Chambers MD,
I will pray that you get the treatment that you need to recover, the strength to endure it and the support that you need from family and friends.
All the best to you.
Posted by DaveNJ (Member # 17362) on :
Brandi,
keep the faith.....it will take time. one day at a time is the only way you can tackle this monster. You can do it though and we are all rooting for you.
Dave
Posted by Abxnomore (Member # 18936) on :
Was just asking about you today as I had not seen any posts from you.
Keep up the fight and all the best!
Posted by joalo (Member # 12752) on :
You will be in my prayers! Posted by JamesNYC (Member # 15793) on :
Good luck Brandi. Please keep us posted on what's going on.
Tell those Drs out there to see UOS! What is wrong with them?
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