LymeNet Flash: I CAN'T TAKE THIS ANYMORE!!!!!

This is topic I CAN'T TAKE THIS ANYMORE!!!!! in forum General Support at LymeNet Flash.

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Posted by Starfall1969 (Member # 17353) on :

I guess I am never meant to go on another vacation, as I have been going downhill hellaciously fast since we got back.

We climbed to the top of 2 lughthouses while we were there, and I guess that was too much for my crappy Lyme body to take.

I started with head pressure around the base of my skull right after I was done climbing and descending, and I haven't really felt right since th en.

I had a few days of stomach cramps--no diarrhea or vomiting, and my appetite was normal, so WTH? I just upped my probiotic for those few days.

Now last night I woke up around 2am and my arm was asleep--just figured I slept on it wrong, but I couldn't get it to wake up.

Now all day today I've been fighting that sensation off and on, and now my whole left side is whacky--weak, shaky, and my arm is half asleep and feels cold.

I have no issues with my grip, the left is just as strong as the right. I just feel not right on the left side.

I haven't felt this bad since I first started having symptoms over a year and a half ago. Like everything I've done as far as treatment has just come undone.

My LLMD is out of town till later this month, when I have an appt with him. If I live that long.

WTH?? WTH?? WTH??

Posted by catskillmamala (Member # 12536) on :

Starfall,

So sorry that you are so knocked out from your trip. I had a few trips like that, now I seem to be able to tolerate travel better. The question I have is did you have any chemical/mold or food additive exposures that are unusual? It could be that what you're feeling is not from climbing the stairs but from something else.

Posted by Tincup (Member # 5829) on :

Well young lady..

If you aren't going to go on vacations anymore... can I go instead?

[Big Grin]

I can't say what your problem is... but trying to climb up two lighthouses is a lot for even some healthy people.

I know I know.. you use to be able to do MUCH more than that with no problem. Right?

Well ... now it is different. Now you have to be more careful.

You can't think that just because you took a vacation that the Lyme agreed to do the same thing.

I know... it sucks. But the Lyme is in charge of you right now... like it or not.

And at the very moment you think you've finally got it under control... it spits in your face and says... "I don't think so!"

Not fair, not fair, not fair.

To live in the same body where Lyme has taken over you must both compromise.

Until the day you finally regain control for good... if you ever do.

I wish there were a better answer here... I really do. But I do know there will be less traumatic days ahead if you accept the fact that Lyme has a mind of its own and you can't always beat it down and expect it to stay down.

Get some rest and know you will be in my prayers tonight. Ok?

[group hug]

Posted by Starfall1969 (Member # 17353) on :

catskillmama--I never even thought about any exposure to other things like mold or whatever.

I'm not sold that hotel rooms are as clean as they claim to be anyway. Who knows how often, if ever, they clean the comforters, so who knows what's on them?

And food additives, heck, who knows when you're eaating out? We ate at chain type restaurants, so none of the local type restaurants.

Tincup--thanks for the advice and the prayers.

Yeah, I don't like the idea of being possessed by this damn disease. It's like I'm demon possessed sometimes the way this crap just comes up.

I just got to the point where I'm wondering if I have ALS or something fatal--a family friend died of that recently, and I have another friend who had similar sx and was just dx'ed with a brain tumor.

It's hard getting rid of those poison thoughts.

Just gotta hang in there and wait for my LLMD appt.

Posted by carly (Member # 14810) on :

You're not alone, star.

I went away for the holidays, too. I tried not to overdo it.

All I can say is it's NOT fair!

None of it.

Posted by aklnwlf (Member # 5960) on :

Starfall,

I used to get the blinding pressure/base of skull headaches early in my treatment too.

My LLNP thought it could be Lyme encephalitis and prescribed Diamox (a diuretic) that worked wonders for me.

Mine weren't execerbated by any activity but I was getting them almost daily for awhile.

The Diamox took care of that issue completely.

Good luck!

[hi]