LymeNet Flash: Involentary movement.

This is topic Involentary movement. in forum General Support at LymeNet Flash.

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Posted by Bob054 (Member # 26027) on :

Pams continues the rosepherin, starting with an

oral today. Over did it on Memorial day

(saturday), doc visit, bbq, the Ridgeview movie

screening. She's much more fatiqued last 3 days,

and "Lymes related narcolepsy" has returned.

Her Involentary movements seem more pronounced also.

(My Take) Her brain is signaling either her

tounge or gums that she must repeatadly move her

mooth to remove "debris"..Her left arm then

raises up like she is sewing, streching,

exercising, whiplashing her hand sometimes like

shaking water off. Somtimes hand goes behind her

head and she extends it so far, I think she will

dislocate shoulder. She says she needs to to this

to gain leverage in order for her toungue to clear the debris.

Pam uses the computer, on the the jewelry sites

to continuously scroll, seeing all the different

colors to distract her, Knitting also helps.

Hence she says its volentary although I see her

doing it in her sleep, sometimes much more

violantly and agressively.

She also get extremely agitated if I ask her to

stop, or adress the issue in any way. Yesterday I

told the PA at the docs, and found that Pam had

never mentioned it to them. Its probably the most

pronounced sypmtom, but only when she's fatiqued,

"spaced out", or not focused on any one thing.

Parastesia? It began 4 years ago while on

"Mepron" in fact the third day she began. Doc

said never heard of mepron reaction, probably

some kind of lyme symptom, and continued mepron

for the month as the protocol required.

Has anybody heard or expieranced this. Pam is

looking for validation, as this was the "truama

symptom" that caused all her docs at the time to

say she was either delusional, hallucinating, or

had Parkinsons, all of course except her Lymes

doc, doc "H" at the time (NY).

I'm leaning towards neuro symptom, that will

clear when Roshepherin tx is done, and that its

more pronounced now as rosherine is agitating that

particular spiro.

Thank you for any therory or expierances.
Bobby

** edited to change region to state **

[ 06-02-2010, 09:25 PM: Message edited by: sixgoofykids ]

Posted by sixgoofykids (Member # 11141) on :

Sorry, I don't really know .... maybe the constant mouth cleaning is OCD? What did the PA say?

Moving to medical questions