Hello, my mother was just diagnosed with Chronic Lyme and we just went to see a LLMD on 7/1. He started her on Clarithromycin 500mg BID. This physician said he doesn't really get into the whole complete vitamin regamin, he just recommended Vit B complex, probiotic, a liver protector and a thyroid protector. I am reading Dr. Burrascano's guidelines and it seems that there should be alot more added to her treatment regimen. Should I look for a local LLnutritionist or follow Dr. B's guidelines?? We live near Menomonie WI.
Posted by Remember to Smile (Member # 25481) on :
Hi, Looking. I saw you posted a similar note under "Seeking a Doc" and replied there. Meanwhile, I think the topic is bigger than just "Seeking", to was glad to see you posted in our "General" forum.
I cannot suggest a Lyme-friendly or Lyme-aware nutritionist in Wisconsin, but i can share a bit of info.
I'm sorry your mother is challenged with Lyme disease now, but it is a great blessing that you are assisting her!
I'm curious if your LLMD has a record of getting multiple patients into long-term remission without "the whole complete vitamin regime"?
Very wise to consult the ILADS' 37-pg. Treatment Guidelines by Dr. J. Burrascano. (I put my copy of his Oct 2008 16th Edition in a 3-hole binder and added dividers. Makes it easier for me to make notes and refer back again & again. And since Dr. Burrascano now teaches about Lyme disease throughout the USA & in other countries, we can mention his name in our posts.)
I'm not a healthcare professional and cannot comment on Clarithromycin, but definitely, YES to milk thistle for liver support! Supplemental Vit D3 and injections of Vit B-12 are necessary for many Lyme patients seeking remission.
Probiotics are vital, as is a Candida-control diet (Gluten-free, no wheat, no yeast, no sugar, no simple carbs, no fruit). Seems there's consensus that Florastor is among the best (I take it). It's also important to rotate among several strains of probiotics to keep harmful parasites on the run. Selecting probiotics stable at room temp can make dosing easier to remember. (Probiotics in fridge can become out-of-sight, out of mind).
Except for kefir! Every morn I drink "SO Delicious Original Coconut Milk Kefir" (w/only 3 gr sugar/serving it has much less than other types of kefir). If that won't suit your mother, maybe blend the Orginal with their Strawberry Coconut Milk Kefir for a sweeter taste. Everyone should drink ~3 oz kefir/day (That's less than a "serving size" on bottles.)
The following presentation is from a Feb 2010 Lyme support group meeting in Pennsylvania. You may wish to compare this info with other ideas received on LymeNet and the sound recommendations of Dr. B (respected worldwide):
I'd been benefiting from the Terry Naturally Curamin anti-inflamatory that Mr. Briggs suggests before I'd found his presentation online. Curamin is excellent for diminishing my Lyme arthritis pain.
Please keep in mind that the treatment of Lyme disease & co-infections is a still-developing science and each unique patient is impacted by a different set of circumstances & pathogens. Any ideas you have about your mother's treatment should be shared with her LLMD before making changes. Taking a few new steps each month can be safer than attempting to re-make a lifetime in just a couple months.
All best wishes, Smile
Posted by METALLlC BLUE (Member # 6628) on :
Is your mother Jackie by chance?
Posted by pab (Member # 904) on :
Menomonie, WI is my hometown. I was in Menomonie on Friday for a wedding.
Posted by Hoosiers51 (Member # 15759) on :
A lot of the supplements are "hit or miss"...meaning it's hard to even know if they are going to help or not until you try them.
I make it a rule to not stay on a supplement if it doesn't actually help me with how I feel. Or I'll stay on it if it's doing something like helping my liver.
So you could just do some research on this site, and use trial and error to decide what supplements she should be taking.
A lot of supplements are honestly a waste of money, but then when you find ones that help, they are worth their weight in gold. So it's hard to give advice on them....even many ND's are just guessing on what will actually help.
I just do it myself. But not everyone is willing to take that on.
Posted by Lymetoo (Member # 743) on :
I wouldn't worry about the supplement so much. Use trial and error and add one or two every few months.
I got well with about half of what Dr B proposes.
Posted by momofthree (Member # 19490) on :
Dr. B gave a speech in Green Bay. He said low carb diet, no caffeine or alcohol. Take a good multi vitamin and NT factor and probiotic.
I am trying to get his notes online.
Posted by massman (Member # 18116) on :
Supps do not have to be "hit or miss" if the computerized technology is used by a good practitioner.
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