It's all over Arkansas. I am sure of it!! I'm not that far from you and I know it's here and it's definitely south of you as well!!
Naysayers can go jump in the lake!
I wonder where she lives? and I hope she is on Lymenet or some other board. She sounds like she needs some support!!
Posted by arkiehinny (Member # 26546) on :
I just can't believe that nobody in AR reports the cases! I mean, are the doctors just not testing for it, or what?
I don't think there was one documented case last year. I know it's untrue..it is rampant in the NW section, really, really bad!
Posted by sutherngrl (Member # 16270) on :
Same down here. I know so many ppl in MS with LD. Several are in my family and in the same county; yet no reported cases in the whole state.
I think the only cases that get reported are those that are CDC positive both on the Elisa and on the WB. Also my WB testing was done out of state. Maybe that has something to do with the reporting also.
Posted by Lymetoo (Member # 743) on :
If they're using Quest and/or LabCorp.. then TONS of cases will be missed! and like suthern said, they have to be CDC positive.
That's very rare for those labs. VERY.
Posted by arkiehinny (Member # 26546) on :
I also think it has to do with the doctors as well. Like in the Ozarks of AR...so many people get sick with what they call "tick fever", families, kids. They 'get sick' & are on antibiotics a while & are "fine".
Then BOOM, they get "tick fever" again. Treat all over again. So I guess the docs in those little mountain towns just shrug it off to 'another case', treat it until the next time they "get it".
I'm just assuming. Who the heck knows?
Posted by littlebit27 (Member # 24477) on :
It's the same here too, GA, all these people are oblivious to the dangers because their doctors tell them there's no Lyme in (insert state). Sad, Sad, Sad.
Posted by linky123 (Member # 19974) on :
My son and daughter were both bitten in Arkansas at camp. EM rash, the whole bit.
Given 2 weeks doxy. Only 100 mg/day. The rest is history.
My husband got RMSF in AR as well.
Posted by Joyful (Member # 25620) on :
I'm in AR but had to go to TX for a diagnosis...
Posted by arkiehinny (Member # 26546) on :
I'm convinced that, in fact, regardless of what a microbiologist from UAMS told me, Lyme is endemic in Arkansas but not reported for some reason.
Why would this be so?
Posted by Misfit (Member # 26270) on :
Southeastern okla here..so called "green country"..and i was told that lyme is VERY RARE in okla. Funny..but dh works with 2 people that have lyme and since i started talking about it ive had more people tell me about so-and-so who have it. Doesnt sound rare to me!
Posted by ChristieL (Member # 27786) on :
I am in arkansas, and believe it or not my lyme wb from labcor came back cdc positive!! My nurse practitioner who first DX me, said "they" had been seeing a LOT of lyme in arkansas since last year (dx was may this year, 2010). So you bet your you know what we have it here in arkansas! And when I asked (9 weeks after dx) if my case was reported to the CDC they said...umm... no, not yet!!! I was mad, this is part of the problem! If my results were positive even with that lab, and cdc positive requirements, they should have reported it! My NP is wonderful, she just does not have the knowledge she needs, she thinks i should be "fixed".. and I am not.. not even close~ When I am stronger, and being treated right so I can function, I am going to rile this state up!
Posted by arkiehinny (Member # 26546) on :
quote:Originally posted by Misfit: Southeastern okla here..so called "green country"..and i was told that lyme is VERY RARE in okla. Funny..but dh works with 2 people that have lyme and since i started talking about it ive had more people tell me about so-and-so who have it. Doesnt sound rare to me!
Hey Misfit...you're from the Arklatex, you're practically my neighbor! It's not rare at all. I'll tell you how uneducated medical professionals are.
I was in an ER tonight seeing a client. I mentioned to a nurse I'd been off on sick leave because I had Lyme....she asked, "What?". She had no clue, until another nurse filled her in, then she said, "OH! That....!"
Good grief.
Posted by arkiehinny (Member # 26546) on :
quote:Originally posted by ChristieL: I am in arkansas, and believe it or not my lyme wb from labcor came back cdc positive!! My nurse practitioner who first DX me, said "they" had been seeing a LOT of lyme in arkansas since last year (dx was may this year, 2010). So you bet your you know what we have it here in arkansas! And when I asked (9 weeks after dx) if my case was reported to the CDC they said...umm... no, not yet!!! I was mad, this is part of the problem! If my results were positive even with that lab, and cdc positive requirements, they should have reported it! My NP is wonderful, she just does not have the knowledge she needs, she thinks i should be "fixed".. and I am not.. not even close~ When I am stronger, and being treated right so I can function, I am going to rile this state up!
You can count me in, too!!! I've got your back.
Posted by linky123 (Member # 19974) on :
Hey Arkiehenny,
Is this microbiologist at UAMS the guy I've been hearing about who is supposed to be studying lyme?
My friends here have mentioned someone down there whose doing some sort of study of it.
I just sort of wrote it off as just another IDSA-type duck who might be looking at it; so I didn't really take it seriously.
Thus far, the closest llmds to us are in MO, and LA.
There's nobody here that knows anything about it. When I took my son in after his bite, the md wrote on his report - EM rash and possible lyme, but it was never reported to anyone as far as I know.
At the time, I had no idea what we were dealing with. But I distinctly remember asking the md if two weeks of the abx was enough and he said it was. Typical.
RMSF is here as well. My husband went to our PCP and he tx him immediatley with abx even before the labs came back. They take that a lot more seriously here. He said people die every year in AR from it.
So if you have a tick bite, you might get be taken more seriously if you tell them RMSF. Chances are the tick might carry both and the tx is the same. You might be able to talk them into more abx with a RMSF dx.
Posted by arkiehinny (Member # 26546) on :
linky123: Hey, here is the link to the dude at UAMS that I emailed who said Lyme was not endemic in AR. He has special research interest in Pathogenesis of the Lyme disease spirochete, Borrelia burgdorferi
Wow, thanks for the link. His research is really impressive. Hard to believe he doesn't believe it's endemic here.
Good to know we have someone here working on this. He seems to be on the right track. Most of what he wrote is over my head, but it was encouraging that he recognizes that it is a chronic illness and is so difficult to treat.
He could be a positive influence on our medical community.
I will be interested in following his research in the future.
Who knows, maybe he'll be the one to bust this thing wide open.
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