This is topic Just diagnosed... in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/26087

Posted by kulu (Member # 29398) on :
 
Hi everyone,

I just found out I have Lyme disease from the My Lyme ID test (Pharmasn labs / NeroScience, Inc.)

I became symptomatic in early 2006 whilst living abroad and the last 5 years has been difficult to say the least. Moving from one doctor to the next, fybromyalgia, CFS (especially the last couple of years) strange neurological symptoms and unremitting GI issues.

I never suspected Lyme and was beginning to think I was truly going crazy. I thought I had some kind of parasite, but my current doc is Lyme literate and ran a CD57 (my level is 22) and then the My Lyme ID which indicates a very active infection.

I'll start with Doxycycline and Flaygl. I've been taking an anti-parasitic for the last month which has helped a lot already.

I feel like I've spent the last few years in a dark hole of pain, and am finally waking up. Now I know what I have, everything makes sense. I feel for all those with this infection.

My understanding is that the My Lyme ID is a pretty good test. Does anyone know if there is a chance of a false positive? (I've been without a diagnosis for so long I'm cautious even now I have one.)

Hoping for better health...
 
Posted by Lymetoo (Member # 743) on :
 
Welcome!! We're glad you found us!

The test you mentioned is so new, that I don't know anything about it. All I've heard is that it's supposed to be more sensitive in picking up the Lyme infection.

I hope you have a good dr and that you will recover quickly. Remember, it's all "relative" when it comes to "quickly."

Hope you're having a great day!

 -
 
Posted by Misfit (Member # 26270) on :
 
I want to send you a warm welcome!
 
Posted by Lymetoo (Member # 743) on :
 
New introductions go in Medical... so I'm moving this there so more people can say hello!!
 


Powered by UBB.classic™ 6.7.3