I HAVE BEEN READING THE PROGRESS AND SUCCESS STORIES. I WANT TO KNOW IF PEOPLE WITH LATE STAGE/CHRONIC LYME, WITH CNS AND HEART INVOLVEMENT WILL EVER BE BETTER. LOOKS LIKE PROPLE ARE GETTING BETTER, EVEN IF IT TAKES YEARS. I AM STILL SEARCHING FOR A DOCTOR TO GO TO, IT IS UNFORTUNATE FOR ME THAT I HAVE TO CHOOSE ONE THAT TTAKES INSURANCE. I KNOW THE BEST LLMD'S DON'T. I LIVE IN UPSTATE NEW YORK, NEAR SYRACUSE. I WOULD LIKE TO HEAR FROM PEOPLE WHAT DOCTORS ARE STICKING WITH THEM, TESTING FOR CO-INFECTIONS AND INTERESTED IN TREATING THEM TO THE END AND DOESN'T GIVE UP ON THEM. I WILL TRAVEL UP TO 6 HOURS TO A DOCTOR. THANK YOU ALL. I DON'T HAVE ANY TIME TO WASTE, I NEED TO FIND THE RIGHT DOCTOR THE FIRST TIME.
Posted by sixgoofykids (Member # 11141) on :
Hi Suzy,
I got completely better from late stage chronic lyme with CNS involvement.
You're lucky you're in NY, there are a lot of good doctors there.
You might want to post in seeking a doctor for a referral.
I know it's hard to type when you're not feeling good, but many here have such bad CNS involvement they can't read posts in all capital letters. Posted by Lymetoo (Member # 743) on :
My doctor never gave up on me...but he is a long way from NY.
Thank you very much for your reply. Glad to hear you recovered!!
Posted by steve1906 (Member # 16206) on :
Suzy50, have you found a doctor (LLMD)?
Have you posted in seeking a Doctor?
Posted by Suzy50 (Member # 30466) on :
Not yet. I need to find one that takes insurance and that is posing a real problem.
There is one 6 hours from me and he sees lyme patients monthly. I am too sick to travel l2 hours plus see a doctor.
I am from Utica, NY, on the Thruway, do you know anyone in my area that takes insurance. The only other doctor I know of is in Morristown, NJ, 4 l/2 hours away. Yes, I have posted.
Thank you.
Posted by momlyme (Member # 27775) on :
Suzy50 - sent you a PM.
Posted by steve1906 (Member # 16206) on :
I hope momlyme has helped you find an LLMD!
Posted by triathletelymie (Member # 26456) on :