Hi all. I'm glad I found this support group! My symptoms started a little more than two years ago, and was just diagnosed in January of this year. Had all the frustrations of many doctors who suspected MS, "all in my head" "only after pain meds" blah blah. But I finally found a lyme literate doctor (actually a specialist) so Thank God for that. I've been on Amox and another antibiotic for two full months with no improvement. So Monday I meet with a surgeon to insert a port and I guess I'll be on iv antibiotics that I learn to do myself. A little nervous about that but I want to get well! Hope to hear from you so we can support each other! Thanks.
Posted by t9im (Member # 25489) on :
HI Indy fan:
The good news is you found this site and members provide good advice / support / help from their experiences.
Don't expect immediate results and actually most become worse before they become better.
Co infections complicate the whole scenario.
Posted by IndyColtsFan (Member # 30785) on :
Hi Tim. That's what I'm afraid of because the antibiotics I was on, I could tell no difference. Didn't get really down like I've heard, my only problem was the pain I have was getting worse. The other antibiotic was Flagyl. Couldn't think of the name the first time I posted.
Posted by Lymetoo (Member # 743) on :
Being on antibiotics for Lyme WILL make you feel worse. That is normal.
I do hope the IV helps and we're very glad you found us here!!
Please read in Medical Questions for great information and help:
Each forum also has special links at the top of each page containing information you may find helpful.
Posted by Nicole2011 (Member # 30672) on :
welcome Posted by MADDOG (Member # 18) on :
Hi Indy Have them keep an eye on your gallbladder if the med is rocephin!!
You have to feel worse to get better.-HERX.
Welcome, but sorry you have lyme.
MADDOG
Posted by just don (Member # 1129) on :
Welcome aboard!!!
You and my grandson would make a great pair,,,of Indy Colt fans that is. He lives and breaths Colts
Hope your treatment goes well!!!!!
Posted by IndyColtsFan (Member # 30785) on :
just don..Can't have enough Colts Fans! Despite last season, we will be on top again!
Posted by map1131 (Member # 2022) on :
Hey IndyColtsFan. I too am a huge Colts fan. I love Peyton Manning.
I'm sorry you are dealing with the reality of lyme disease. Do you suspect you were bitten in the Hoosier State?
We're told IN doesn't have lyme & co. That's a joke. lol Lately, the last few months there has been numerous people from IN posting in seeking a dr asking for info on lyme literate dr there.
I guess you must of traveled to the northeast? They only have lyme & co up there. I'm being a smarty pants this morning.
Seriously, you've found a great place for support on lymenet.
Pam
Posted by IndyColtsFan (Member # 30785) on :
Pam..yeah your post just struck home. The first neurologist I saw about two years ago said...unless you were up northeast ect ect it couldn't be lyme! I guess ticks can read signs posted at the Indiana border that says "No ticks with Lyme's allowed"!! LOL Now I'm being a smart pants! Posted by Beth22 (Member # 30232) on :
yeah, this recently diagnosed indiana girl who lives out in the country and has been picking ticks off of herself for 20 years was just baffled by the 4 doctors who told me lyme was unheard of here.
Posted by 4Seasons (Member # 14601) on :
Are you getting a port or a PICC? I've had no problems so far with the PICC in my right arm for eight months.
My daughter needed a port for longer treatment. We first tried a port under the skin that requires accessing weekly by the nurse. It was a nightmare for her.
We moved on to a Groshang catheter, which she had for 1 1/2 years without problems. She doesn't need it anymore - she's well now!!!!!!
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