This is topic What do you miss?? in forum General Support at LymeNet Flash.


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Posted by kam (Member # 3410) on :
 
From the beginning when this hit hard and fast, my mind would take mini vacations.

10 yrs later, I still find that my mind goes to places I have traveled....outdoor places:

the beach

the redwoods

yosemite

backpacking in all 3 mtn ranges

backpacking and camping at Havasupai Falls area

swimming in a lake in the Lassen national forest...had the lake to myself...wonderful

etc etc etc

I find it interesting that I don't miss working although I did at first. And I do miss feeling like I am making a positive difference in the lives of others.

But, I feel that will come again...somehow...once health improves enough to do so

I don't really miss people. I do miss some friends of mine who helped me when I first came down sick and are living in a house that his parents built and on a ranch.

it amazes me what they do in their 80's

I do know once I am well enough to be around people, I will choose can do people with a positive outlook.

I miss having a car that I can get in and travel, the health to do so, and the money to do so.

I think I could travel if I had a reliable vehicle that pulled a trailer and had a way to transport my power chair.

I could travel a bit and then pull into a campgrounds and rest up before I hit the road again.

So, what about you. What do you find yourself missing??
 

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Posted by Fuel1212 (Member # 29312) on :
 
I miss the days where I could exert myself to the max and would bounce back by the next day without a wink.

Now I have to think about all of my actions and worry if I will pay the price that night or next day for walking an extra step, Lifting an object..

Very tired of Spirochetes being my puppet master and pulling my symptom strings

Mark my words... I will beat this. I am stronger and smarter, and most importantly I have the Lord!
 

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Posted by BoxerMom (Member # 25251) on :
 
Eating anything I want! Wow, do I miss food!!!

And friends. Food and friends. Sign me up.
 

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Posted by phyl6648 (Member # 28522) on :
 
I miss ME, the person I was before lyme. Oh so many things I took for granted.

Being able to work.
Going shopping.
Going to Church.
Laughing.
Cooking and have Family and friends over.
Traveling
Doing for and helping others.
I miss people, I was always a people person .
Most of all I miss not being able to go and do with my grandchildren and keeping my great grans.
Miss money, no work, no money.
Miss my independence
I miss the way I use to look, I don't even recognize me.. my skin, my hair, my glow that I once had . Can no longer go to a beauty salon due to MCS plus not feeling up to going.
Miss waking up and getting out of bed with a list of things to do and able to do.

I could go and on but will stop here. good post.
 

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Posted by kam (Member # 3410) on :
 
I can relate to all of the above...I was thinking about how I miss my confidence too and self esteem and problem solving skills
 

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Posted by James1979 (Member # 31926) on :
 
I miss my good looks. It must have been an entire hour since I last saw myself in a mirror.

Just kidding, guys.

I miss eating Ezekiel bread. I think the first time I'm able to eat that again, I'll probably pass out from being so happy. I'll have to put pillows around me beforehand to break my fall.
 

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Posted by payne (Member # 26248) on :
 
being the guy that could.(:

now, ask what good has this done for me ?

Humbles me and finding the limitations to my body and mind...with God's Hand.
encourages me to take best care i can to this Temple God has provide me to walk this earth in.
 

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Posted by AZURE WISH (Member # 804) on :
 
I miss -

being able to work and pursue a career

being able to work on my art

being able to have friends and family visit

being able to help my family and friends

being independent

sitting upright

eating with a fork

standing for more than a few minutes at a time

watching movies listening to music

having the curtains open

soap

wearing daytime clothing

being able to have new things come in the house

leaving the house and being in the world

sense of safety is gone... the wrong mcs trigger could take me out fast

being able to walk from the couch to the bathroom without the aid of walls.

being able to read or be near a book

having glasses that arent taped together

etc etc
 

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Posted by penguingirl (Member # 28688) on :
 
Being able to shower or bathe without having to stick my arm out (picc line)

Exercise like I used to (was a gym rat)

But I will get there soon one day!
 

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Posted by skies (Member # 28064) on :
 
There is so much that I miss, I'm not sure where to begin...

BUT, first and foremost, I miss good food and good wine..!!

Good friends..having an actual life. I miss being happy and feeling good about myself and feeling beautiful.

I miss my old personality--I had (still have, somewhere in here) such a good sense of humor and the ability to relax and enjoy myself. Seems that I'm just crabby, irritable, uptight, depressed, and aggitated every day now.

I miss my brain..I hate feeling in a fog so often. I don't feel very smart anymore.

I miss having the energy to do whatever I want whenever I want to do it..

I miss being able to sleep like a baby all night long without the help of sleep aids.

I miss waking up and feeling rested and thinking that I have something to look forward to.. now every day is pretty much the same and I don't look forward to much of anything.

I miss the old me...so much!!

Sorry..depressing reply, but true. Good to vent.
 

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Posted by lymeladyinNY (Member # 10235) on :
 
I so relate to all this.

I miss being active in my children's lives, and I miss my son who can't live with me because I'm too sick to care for him.

I miss all the little, everyday things that used to be done without a thought - a full day's work, for instance.

When I was a teenager, I would get up early, do chores all morning, put in hay all afternoon, do more chores, and then go swimming in the pond. Next day: up and did it again. I was slim, strong, and able and took it all for granted.

I didn't necessarily like living on a farm back then, but what I wouldn't give to go back to that life now! And boy, was my mom a good cook and we ate like kings. I didn't realize how hard it is to get a good meal on the table.
 

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Posted by burnsjw (Member # 11819) on :
 
I miss family and driving to stay with family. I miss being around friends . I miss working tons. I miss going to church. I miss cleaning my house,believe it or not. Ha. I miss walking in woods. I miss walking anywhere, feet hurt. I miss going to the store. I miss going to ballgames. I miss my balance , memory, having no pain. I miss sleeping at night. I miss sleeping at night and feeling rested. I miss fishing. I miss sitting upright for any length of time I want. I miss running. I miss being around people. I miss being able to help my husband do work around the house. But, I am thankful for what I do have.
 

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Posted by searching4truth (Member # 28481) on :
 
I miss ME!
 

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Posted by lymeladyinNY (Member # 10235) on :
 
This thread is so poignant - there's a lot of emotional pain behind all the words. Love and hugs to all.
 

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Posted by 4Seasons (Member # 14601) on :
 
After over 30 years of this it's hard to recall what life was like before. I am so changed by this experience and it's not all bad. I have learned to appreciate the smallest of things.

I loved to travel and planned to do much more of it, so I guess that is what I miss most. I wanted to see the world.

I miss being able to plan anything.
 

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Posted by treepatrol (Member # 4117) on :
 
My life back the way it was.
 

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Posted by sutherngrl (Member # 16270) on :
 
I miss travelling with my husband. I miss being sponteneous, deciding to just take off for the weekend. No pills to pack, no worries. Those were the days.
 

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Posted by Dogsandcats (Member # 28544) on :
 
I miss being able to plan to go somewhere and not worry about a flare, herx, etc.

I miss being part of something. I don't miss the friends I thought I had. Lyme can cause people to scurry off. I am truly blessed by the few that stayed.

I have learned more than I have lost. That would be a good post, if it hasn't been done...other than the medical stuff, what have we learned in our life from Lyme...
 

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Posted by Caris (Member # 33234) on :
 
This thread made me cry.. Indeed to everyone.

I may or may not be dealing with Lyme.. but I relate to all the ache for what was or what could be.
 

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Posted by kam (Member # 3410) on :
 
This morning I miss not being able to drive for longer than 15 min on a good day. I use to like to just get in the car and go exploring or go for a drive in the country.

Going to see if I can read what others wrote now.
 

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Posted by rera2528 (Member # 29886) on :
 
Just going outside without wondering if I need a hat, long sleeved shirt, gloves, pants--I've been on "cyclines" for 6 months. Also, going outside without worrying about bugs, ticks, etc.

I also miss gluten. The list of foods is long, but right now, that's the one I miss the most.
 

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Posted by Susie R (Member # 30780) on :
 
I miss having energy to burn. I miss running up the stairs two at a time just because I could. I miss being able to cycle---I was planning to cycle across American when I first got sick. I miss the feeling of being fit and able to meet any adventure head-on: hiking, biking, and climbing.

I miss exercising hard. I miss feeling strong and vital. I miss the sense of thrumming life force inside me.

BUT....

I have learned a lot, too. Having to sit still means I have the time and space to listen to the 'still small voice' within. I am closer to God. My world has gotten very small, but in some ways, it has gotten deeper.

It is a journey, and I intend to stay as open and deeply involved in life on this leg as I was during the expansive, active part.

I don't know what's next. I'm scheduled for a biopsy of a suspicious lesion on mammogram next week, just as I have started abx for lyme and bart. I can't imagine having to go through cancer treatment at the same time as this, but if that is what is to be, then so be it. I will deal.

It's humbling!
Susie
 

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Posted by kam (Member # 3410) on :
 
Not able to read what others wrote yet but hope too. This morning was one of those times I get frequently....a little voice in my head yearns to go home.

But, where is home? This started 10 yrs ago when this hit and it continues today. I want to go home.
 

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Posted by BleedGreen (Member # 33468) on :
 
I can't say I've lost anything near what anyone here has physically, other than my strength and energy. What I miss the most is the peace and serenity I got from going into the woods and just sitting or lying there, watching and listening.

My love for being outside, going to the river, or just walking in the woods. Laying on the soft grass in my backyard on a nice day or night and watching the clouds or stars.

It's very simple, I never considered myself the outdoors type. I never realized how important it is to me to experience that from time to time until I was introduced to ticks and LD. Now I am scared to death to even walk through the front yard, cut through the grass to the playground with my son, allow him (when he's older) to spend his days playing in the woods in a tree fort; going to the river; or just walking through the woods to places he's never been with a friend exploring as I did as a child.

Some of my fondest memories of my life was from times I spent in the woods. I will not be the same and I dread the day my son discovers the things that I did when I was growing up.

I feel like I can't rob him of this, I have to just bug spray him and dress him properly. But I remember my mother telling me to wear long sleeves and pants when I played in the woods... T-shirt (maybe) and shorts is what it ended up being.

On the other hand I feel like I have to protect him, there are so many other things in life that a TBI can rob of him. My first step is moving out of this endemic area, hundreds of miles away where I spent my childhood. I guess in time I'll see how I'm going to handle it, probably just curl up in the fetal position and cry until he gets home then do an alien autopsy checking him for blood suckers when he gets home.
 

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Posted by BleedGreen (Member # 33468) on :
 

quote:

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Originally posted by searching4truth:
I miss ME!

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