This is topic soooo sick in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/29269

Posted by lyme-o (Member # 35115) on :
 
My poor husband has been so sick today. He is supposed to get IV Drugs starting this week. But it seems like he has been deteriorating so quickly in the past few days. If only the doc would move a little faster. That has been such an issue. Getting the dr. to move faster. And he is a Lyme Doc.
 
Posted by MannaMe (Member # 33330) on :
 
Are you doing anything for him in the supplement line?

Supplements won't treat Lyme, but they can help build up his immune system so he can fight lyme better.

My husband is also the one treating Lyme. He has been taking supplements for years. We feel that kept him from crashing completely.

He did take garlic soft gels after he was diagnosed with Lyme until he could get in to see his LLMD, and get on meds.
 
Posted by lyme-o (Member # 35115) on :
 
Which supplements do you suggest?
 
Posted by MannaMe (Member # 33330) on :
 
omega 3 fish oil, (be sure it is mercury free)

magnesium, (glycinate is best)

b complex, (for stress)

vitamin C (my husband can tell a difference with vitamin c in a very short time!)

CoQ10

A good whole food vitamin / mineral supplement


I suggest starting with these. My husband uses all of these plus more. But he didn't start everything at once.

Adrenal support may be very beneficial also.....

How long has your husband been sick?
 
Posted by lyme-o (Member # 35115) on :
 
He also has neurological issues with his leg. A terrible limp now which started back in March of this year. Then we thought he was having a heart attack in July and he had a heart cath which showed he wasn't plugged up at all. But he continually got worse. Now he has terrible air hunger and just has all he can do to walk between the couch to chair. They are supposed to start IV drugs hopefully tomorrow. I am just so scared that we'll find out its ALS after all this. But thanks for your supplement suggestions.
 
Posted by Catgirl (Member # 31149) on :
 
I remember someone saying on either "Under Our Skin" or Burrasacano on "Putting Lyme Behind You" that you won't know for sure until you treat the lyme, and if the patient gets better, then it's lyme.

Lyme cure/recovery isn't over night (some people take years) so I would imagine it takes time to determine the ALS/lyme connection.

Is his doc ILADs trained? They are the best docs for lyme (no doc, just my opinion). www.lymediseaseassociaton.org

Hang in there and give it some time. Try to stay positive. [Smile]
 
Posted by lyme-o (Member # 35115) on :
 
Thanks so much. Yes, his doc is ILAD trained. But so darn slow in returning phone calls as is his nurse. Very frustrating. Thanks again
 
Posted by MannaMe (Member # 33330) on :
 
Wishing you and your husband the very best!
 
Posted by aperture (Member # 34822) on :
 
My LLMD keeps reminding me that Lyme treatment is a marathon, not a sprint. I can completely relate. It can get absolutely miserable trying to kill the little bugs. He's lucky to have such a great advocate in you...Fighting for him when he can't.
 
Posted by lyme-o (Member # 35115) on :
 
He is on Day 3 of Rocephin IV Drugs. I've seen definite improvement. But a long way to go. Thanks
 
Posted by MannaMe (Member # 33330) on :
 
Oh, that's so good to hear! We need to rejoice over the little things.
 
Posted by karenl (Member # 17753) on :
 
Did you test for mold and treat for parasites?
 
Posted by OptiMisTick (Member # 399) on :
 


[ 12-05-2011, 03:58 AM: Message edited by: OptiMisTick ]
 
Posted by OptiMisTick (Member # 399) on :
 


[ 12-05-2011, 03:59 AM: Message edited by: OptiMisTick ]
 


Powered by UBB.classic™ 6.7.3