I thought some of you would like to know that while reading on the Johns Hopkins website I came across their article on Lyme Disease.
As most of you probably know, Hopkins is notorious for antiquated viewpoints on lyme. Anyway, while reading their overview I noticed some pretty glaring changes to when I initially read the article (a couple of years ago).
They now talk about lyme being diagnosed "clinically" and treatment being based on several factors including "your opinion or preference."
A far cry from where we need to be; albeit, but it seems like maybe there is a slight change in the tide.....
Well, not all of the doctors there are doing this, not sure if any of them are.
I have recently been in contact with someone who had the usual bad experience with them. Someone who has had a positive antibody test in the past and no treatment for more than ten years, now in bad shape.
So, I remain a skeptic about that place.
Posted by poppy (Member # 5355) on :
Here's a quote from the website:
Some people may develop post-Lyme disease syndrome (PLDS), a condition also known as chronic Lyme disease, characterized by persistent musculoskeletal and peripheral nerve pain, fatigue, and memory impairment.
Interesting that they say untreated lyme can produce a bunch of problems, but the only treatment they describe is 3 weeks of meds for early lyme.
Maybe they should just say
We only treat early lyme, and probably not long enough. And we don't mention coinfections at all.
Makes you wonder if they get anything right at that place, if they can't think any better than this. A child could see the flaws in their approach. Unbelievable.
Posted by WIZARD (Member # 4597) on :
Mass General hospital website has the same quote, but you won't find a Dr. there willing to treat it with more than 3 weeks of Doxy.
They write what you want to hear, but getting it is another story.
Posted by Lymetoo (Member # 743) on :
So ignorant, so stupid. You are right. A CHILD could see right thru their "logic."
Posted by Keebler (Member # 12673) on :
- Remember, most IDSA ID doctors, such as those at JH, require a ridiculous criteria to be met before a lyme diagnosis would be made. Many who are ill with lyme go undiagnosed.
They also will not consider the true science of lyme. -
Posted by Keebler (Member # 12673) on :
Infect Drug Resist. 2011;4:97-113. Epub 2011 May 3.
Evaluation of in-vitro antibiotic susceptibility of different morphological forms of Borrelia burgdorferi.
Excerpt:
. . . Conclusion
Antibiotics have varying effects on the different morphological forms of B. burgdorferi.
Persistence of viable organisms in round body forms and biofilm-like colonies may explain treatment failure and persistent symptoms following antibiotic therapy of Lyme disease. -
Posted by poppy (Member # 5355) on :
It looks like these institutions are saying one thing on their websites and doing another in practice. And maybe this is a way to sucker people in, by appearing to be more enlightened than they really are. Bait and switch!
Posted by Catgirl (Member # 31149) on :
A lot of these docs know chronic lyme exists but feel the need to deny it (I've seen it in their eyes, telling me one thing while showing tell tale signs of lying through their teeth). Steere has a huge influence here in MA (old boy's network).
They fear losing everything they've worked for and simply don't want to lose their licenses. None of them are like Dr. D. That man has more integrity than any of them put together.